Tag: mental pain

overslept and out of breath

by Midnight Demon, posted in blogging, Chronic pain, chronic physical pain, CRPS, depression, mood disorders

Overslept and out of breath

I overslept for my PT appointment today. I couldn’t get up 8 like I wanted to I had woken up around 6 to pee and had a hard time getting back to sleep. I should have stayed up. I went to the pharmacy to pick up my meds and when I came back up the street, I was out of breath. I was also sweating a lot. I feel like walking up the street was my cardio workout for the day.

I had therapy yesterday and it was annoying. Therapist wants me join a chronic pain support group. I am supposed to text her when I do. I looked up the number yesterday but it wasn’t there so had to email the partial program guy to get the number. He has responded; I just got to call now. I hate talking on the phone with people. I rather email them. I hope the group meets via zoom rather than in person.

Therapist and I only had a half hour session because she messed up her schedule. That was fine by me. I got her patronizing lecture of how she is the clinician and basically knows what is best for me. I feel like canceling Monday’s appointment. She probably will talk me out of it though. I don’t know. I hate canceling with therapists. Sometimes it is just easier to show up than cancel. I just hate when they ask why and you don’t have a “good” reason.

Back has been acting up since walking back home from the pharmacy. I took a Zanaflex which I hate doing because it makes me sleepy. I am not doing anything tonight so I don’t mind if I am sleepy. I have been lax in taking it during the day. Neck and arm/shoulder has been okay today. I haven’t been so sore like I was the last time I was dry needled. I had five appointments this week so I was spent which is probably why I overslept. It takes so much mental energy to go to these appointments even though they are virtual, well except my PT. PT is in person. But even that is mental energy to get dressed and taking the bus to show up.

I tried canceling my therapy appointment for Mon and it failed. She basically said given the severity of my depression and suicidality she didn’t think it was a good idea to not meet, at least to just check in. So I will be seeing her. I hate her. She is always calling me out on my depression. I just need a fricken break. I don’t get what is so hard about this.

I was able to sleep for a little bit but my leg kept jerking so I couldn’t go into a deep sleep. I took some meds to try and make me relaxed. My neck is tight so I could use the ease of the meds right now. I am not in pain right now, which I guess is good. Back is still cramping so I don’t know what to do about that. I am ready to take some more magnesium. It seems that is the only thing that quiets down my back. And it has no side effects so I am for it.

depressed

by Midnight Demon, posted in blogging, Chronic pain, chronic physical pain, CRPS, depression, mood disorders

Depressed

Yesterday I was really down and needed to talk. I felt I had to tell my youngest sister I was depressed so I texted her and we spoke for a few minutes before my therapy session. I feel all I did was worry my sister as she didn’t understand where I was coming from. I told her I just couldn’t get the stuff in my room done because it was too difficult for me with this shoulder pain that is bringing me down. I am in more pain lately because of it and it is really making me depressed. I just don’t see a way out other than suicide and no one wants that.

I had an appointment with my therapist yesterday. I asked her if I needed therapy and she didn’t know how to respond to it. I was in a really depressed state while talking to her. I was also in pain with my shoulder. I tried massaging out the pain but I wasn’t successful. I really hope tomorrow’s PT session helps. I talked about being in pain in therapy. I felt like I was falling on deaf ears. Just like when I was talking to my middle sister about it. I sent her some memes (sister). I don’t know how else to get things across to my family how bad things are with me. Then my therapist thinks I got to change and I was taken aback by this. She has been hinting all along that my perception of my family needs to change so that I don’t get so upset by them because they are not going to change.

I know I have talked about finding another therapist but I just can’t right now. My depression is too disabling. I will stick with this therapist because I am tired. I don’t have the energy to look for one. The one I am seeing isn’t bad. I know she wants the best for me and that is why she pushes me and challenges me so much. Maybe I should tell her to lay off so hard. I am seeing her tomorrow afternoon.

I seriously need to lower the Latuda. My muscles are spastic at times and that isn’t helping my shoulder pain. I changed my PT appointment to virtual today. I don’t know if this is going to be helpful or not but it snowed and I don’t want to risk falling because of snow drifts. My sister said it was messy out so I really don’t want to go out. Besides, the temp changes have caused my ankle to flare up so walking wouldn’t be good for me today anyways.

I went out yesterday to get my haircut. It had been two months since I seen my barber. It is always good to see him. We talked shit and it felt good. I love my haircut. I get it cut the same way all the time, bald fade and light on the top, though I am letting it grow. I took a shower and it exhausted me afterwards. My back cramped up because someone turned down the heat in the house so the house was cold. I didn’t want to leave the shower stall because it was nice and warm.

awake at 3am

by Midnight Demon, posted in blogging, cauda equina syndrome, Chronic pain, chronic physical pain, CRPS, depression, mood disorders

I woke up at 3

I woke up at 3am and am still up so I ordered breakfast. I am kind of hungry. My mother’s baby monitor alarm went off shortly after I woke up. She had to go to the bathroom and my sister was there to help her. I was supposed to watch her tonight but got a flare after an emotional response to my mother after she called me a “she”. I hate when I get emotional flares of pain. I hate that CRPS is so dependent on my state of mind sometimes.

I had the breakfast but couldn’t finish the 3rd burrito. It was cold and I was already getting full. I thought about making a cup of tea but didn’t want to stay in the kitchen. I wanted to try to get back to bed. So I am writing a blog to exhaust myself before trying to get back to sleep. I had woken up with back pain which is never a good sign. I took some Tylenol to try and settle it down. I really hope I didn’t so something to my back. I see the neurosurgeon next week and I wanted him to sign me off but I am not so sure he will now that my back has flared up. I have been doing more stuff lately so I can understand why my back is flared. The sneeze I had yesterday morning didn’t help. I felt like I pulled a muscle and that is what it feels like.

I have lots to do today. I need to clear off a space in my room so it is less dusty. I also need to change my bedding. My new foam topper should be arriving today. I don’t know when but I hope it is in the morning and not the evening. My hope is to put it on my bed and then watch my mother while it settles on my bed. I have to have it like that for at least 24 hours. So I can’t be on my bed at that time. I am going to need a chair to sit down because I can’t stand while doing stuff for long periods. That will definitely flare me up more. I really need to get stuff done in my room. My sisters want to replace the rug with a wood laminate. I don’t mind. I hate having a rug anyways. I just hope my bed doesn’t roll on the floor. I got wheels on my bed that have sunk into the rug. One of them have broken due to the weight of me and the bed. But they are cheap plastic wheels so I am not surprised. I hope I can remove them and just have a stopper instead.

The other day I had a phone call with the reporter that is doing a book on suicide. He is interviewing people from the study I was involved in last year. We have become good friends. He asked me how the partial hospital was going with it being virtual. I told him how it was and how distant you can be while being online. You really don’t make friends with the group members because there is no real interaction.

I had ordered my meds by mail and I receive one of the two packages. I should be getting the other one sometime today. I hope so because I am running low on one of my meds. I am surprised it has taken this long. I usually get them right away after I get the email that said they have been shipped.

I am constipated again so I just took some Miralax. Surprisingly, I haven’t had the soft stool that I usually get while taking it, which is good because that means no accidents. I have lost the control of loose soft stool. I can’t keep it in anymore. Hard stuff I can but if it is soft and mushy, forget about it. I think I need to take Miralax regularly for a few days so that I can go every day. I feel backed up when I don’t go for a day or so. I feel like I should take 1000 mg of magnesium at night just so I can go. I hate being constipated. It is the worst feeling in the world.

One thing I have noticed since going to partial is that my suicidal thoughts have gone away. I am not so suicidal anymore. But I still wish that I was dead. I haven’t actively planned anything in a while. I think that is good. I will bring it up in therapy on Monday. I haven’t heard from partial about extending my time. I hope they do. I am so anxious about this. I hope they approve it and will be sad if they don’t.

listening to the 80s

by Midnight Demon, posted in blogging, Chronic pain, chronic physical pain, CRPS, depression, mood disorders

Listening to 80s

I felt like listening to Pandora today so just turned it on and 80s music started playing so I will keep it on that. I love the 80s. I had coffee and I am somewhat energized. I haven’t decided what I am going to do today. I need to go to the grocery store for half and half and coffee. I might go this afternoon. My back is still bothering me from trying to find this book that I just ordered another copy of. Fuck it. I still got to go to the bank and deposit some money so my account isn’t overdrawn.

My allergies are bad today. I keep clearing my throat and coughing to clear it. I hate when I am so congested in the morning. Makes me gag. Brushing my teeth was fun. I am sucking on a cough drop to sooth my throat. My sister is out of quarantine Tues. I can’t wait. She must be so bored.

I need to shower today. I smell. I need to be better about showering as I have just been showering once a week for a while now. I used to shower every other day but I have let it lapse. I just seem to shower when I can’t stand the feel of my hair anymore. I have a full beard now so I need to wash it or it gets itchy. I have decided to keep it for now. I like it. I just wish the tiny bald spot would grow hair. It is one of the reasons I have to not keep the beard.

My back is still bothering me from looking for the book last night. I don’t think it would be wise for me to go out today. I don’t want to get stuck while out like I did before. I will just get upset. But the only priority today is to shower. Just hope my back doesn’t crap out on me. It is really bothering me right now. I just want to lie down and rest. I am getting hungry but I don’t feel like making something to eat. I haven’t had anything to eat since yesterday. I only had Ramen noodles all day and some pretzels. I don’t really know what to eat. I want to make a chicken sandwich but for some reason it is nauseating me so I don’t want to eat anything. I might make a fluffernutter. It is a sandwich with peanut butter and fluff (marshmallow crème).

The one self-care thing I absolutely hate is nail cutting. I swear my nails grow superfast and I feel like I am cutting them every week. I hate it. I hate toe nail cutting more. My sister just came up with food so I don’t have to worry about it for now. Yay! I will have some in a little while.