Tag: PTSD

Saturday Blog 12122020

by Midnight Demon, posted in blogging, Chronic pain, chronic physical pain, CRPS, depression, mood disorders

Saturday Blog 12122020

I’ve had a rough day. I can’t seem to get going. I woke up with hunger, which is unusual so I had some ramen noodles as that was what I was wanting. I got the download link to One Night Lonely with Mary Chapin Carpenter but I haven’t been able to download it to my phone so that my MP3 recognizes it. It is stuck in dropbox app and I don’t remember how to “free” the songs. I have to google it I guess.

I had partial yesterday and a meeting with the therapist which felt good to talk to him. He validated a lot of what I was going through and is willing to have a reduced schedule for me because of my pain. I will go three days a week and go to 3 groups. I haven’t decided if I will do that. I am going to give it one more full day to see how I do. It is tiring even though it is on virtual. I can’t say I am learning a lot because it is a lot of old stuff through the years being brought up once again, with the distress tolerance and wise mind and mindfulness. All DBT stuff I have learned before.

The therapist and I talked about how I was really feeling and I honestly told him how I felt. It felt good to finally tell someone that pain is again causing me to be so miserable. It was good telling someone that this might not work for me because of pain and he understood this to be a barrier in treatment.

I did have a good session with my therapist Thursday afternoon. She thinks trauma is the reason I get suicidal and depressed because I am not dealing with it. I thought about what she said and it made sense. I told her let’s work on it then but she thinks I don’t have the coping skills to deal with it right now. We are going to give a few weeks of partial a shot and then go from there. She is on vacation in a couple of weeks so it might not be until the new year that we work on this. I have no idea what it entails. I am tempted to read my “trauma and recovery” book that I got in college but I don’t know where it is right now. I think it is in the basement with my other books from my office. I just tried to find the book but it isn’t there so I don’t know where it is. I will just order another copy.

Trauma has been something I have stayed away with in therapy for a long time. It was something I never thought I needed to go through. Seems like now I got to face it and I am not sure I can do it. I just hope my therapist doesn’t refer me to a trauma specialist because I won’t go through with it. I don’t want to see two therapists for basically the same problem.

I’m listening to Taylor Swift’s folklore again. I want to get the new album but I have to deposit money in my account. I will probably do that tomorrow. My favorite song on this album is exile. It is a duet and it is so good. I have it on repeat right now.

pain is lonely

by Midnight Demon, posted in blogging, Chronic pain, chronic physical pain, CRPS, depression, mood disorders

Pain is lonely

I was scrolling through facebook and came across the meme “Pain is lonely” and it struck a cord with me. It is lonely. You have no one to talk to about it that really get it, unless you talk to someone that has the similar chronic pain that you have. I find that even though I talk to my BFF sometimes she doesn’t understand the kind of pain I got through with my ankle and foot. She understands everything else, how pain can make you cranky and tired and not motivate you to do stuff. It is a tradeoff. I rather have some understanding than none.

I got a call from the partial hospital place and they sent me email to fill out and send back. I had to fill out some form using adobe but it was confusing so I just saved it and sent the form. If it is wrong I am sure they will let me know. I have my first meeting at 9 and then group start at 10. Fun. I told them I have an appointment at 2 that I need to keep. It is my therapy appointment. The schedule is DBT based with some creative groups in between. Looks like a regular hospital group program but without the admission.

I went to pick up my prescription because I thought my neurologist changed the order. She didn’t but just gave me more refills. WTF I told her specifically I am taking more than what is prescribed like we discussed. Fuck. I hate when she doesn’t fucking listen. I hope she has it in her notes. Fuck. I am so pissed off.

My mother’s covid test came back negative but she has a cold. Despite me and my sister telling her to wear a mask, she refuses. She wears it around her neck with her mouth and nose exposed. Helpful. Not. I am staying in my room and using sanitizer when I get back to my room just to disinfect my hands. I do not want to get sick. As far as I know, I am the only one that got the flu vaccine.

My neck muscles have been really hurting me today on my left side. It feels like I pulled a muscle or something. I might have slept wrong again. I am going to tell my neurosurgeon when I see him because the pain isn’t going away and I haven’t found much relief. Heat, rest, meds, and stretching have not helped.

I am so tired. I didn’t sleep well again. I woke up around 0230 to pee and stayed in bed for a half hour before I finally got up to go. The urge was there but it wasn’t strong enough so I wasn’t sure if I had to go or not. I should just go anyway rather than lay there wondering. It took me some time to get back to sleep afterwards. I set the alarm for my appointment that was canceled on me due to covid. I am not going to reschedule the test. This is the third time I have had to set up an appointment since my surgery and I am not going through the anxiety again. So fuck it. I am not making another appointment.

groceries and other stuff

by Midnight Demon, posted in blogging, Chronic pain, chronic physical pain, CRPS, depression, mood disorders

Groceries and other stuff

I had my grocery delivery today. I got everything that I ordered and when I was putting the chicken patties away, I saw another package in the freezer. I must have bought them and totally forgot about them. I took out the hamburger rolls from the freezer to thaw out so I could make them but I had meatloaf leftovers instead.

Ankle has been hurting me all day and both foot and ankle got ice cold so I have thermal socks on now. The pain has been bad and has put me in a bad mood. I tried taking a nap earlier and couldn’t settle down enough to sleep. I rested for an hour. I took my BT med around 1500. I gave in to take it. My ankle is now still having the same kind of pain so I might take another one. My feet aren’t hot so I am going to keep the socks on until they are. It is cold in my room but I like it. I still have the AC in the window. My brother in law hasn’t taken it out yet. I got to call and remind him. He has been weirder than usual lately so I don’t want to bother him.

I did the check in earlier today when I wasn’t okay. I wrote a few sentences about it. I couldn’t go into more than that. I used the Dario app. I find that it is sometimes easy to write on it. It gives characters used and a word count which I find useful. I thought about tweeting what I wrote because it was within the character limit but I didn’t. I would have had to figure out how to copy and paste and I didn’t want to.

I have been having cramps for the past couple of hours and it is really annoying because I don’t know if it is the bladder or uterus. I had emptied my bladder a couple of hours ago and it hurt afterwards. I don’t know why. Hope I don’t have an infection. I really don’t want to go back to the hospital to drop off a specimen. If it continues I will get in touch with my PCP over my uro, though I am seeing my uro next week for the urodynamic testing. I am so nervous about it. I hate being exposed and having things stuck in me. It is so triggering for me because of the trauma I went through as a kid for a similar test. Those memories still haunt me. I hated that they refused to let my mother in the room after me screaming for her. I was just so scared me being like 4 or 5 years old.

Saturday Blog 28112020

by Midnight Demon, posted in blogging, Chronic pain, chronic physical pain, CRPS, depression, mood disorders

Saturday Blog 28112020

I woke up and went to the bathroom. I didn’t brush my teeth because my sister was bitching about needing to shower. She couldn’t wait and I didn’t want to hear her so I will brush later. Maybe she will go out and I don’t have to hear her today. I came back to my room and my foot exploded. I am in a 10 out of 10 pain right now, 10 being the worst. I didn’t do anything but climb the stairs back to my room. I might have twisted it a little as there was stuff on the damn stairs to be brought upstairs. I don’t know. All I know is that I am hurting and I won’t be able to pick up my prescription today.

The concert last night was so fucking awesome. I don’t think I stopped smiling until I fell asleep a half hour before it ended, around 2130. I couldn’t help falling asleep. I was so relaxed. I slept through the night for the first time in forever. Encore is tonight so I will hear what I missed. Hopefully I won’t fall asleep again! I really enjoyed myself. I don’t think I ever enjoyed a concert so much. I knew all the songs except one and it is an album I don’t hear very often. The chat that went on was very cool. If a song was playing that no one knew there was some people that responded with the name of the song. It was so fucking awesome hearing her play her music.

I won’t be able to get groceries this month. I will just get my drinks and maybe something else but that is all. I will have to go to the grocery store to get what I need. I don’t really need anything except for the drinks. I am running low.

I need to shower today. If the bitch sister is out, I might shave as well. Depends how the foot pain goes. I really need to shave. But if I can’t, a shower is more important. I just want to go back to sleep. I am so tired and I just woke up. I hate when you feel tired when you wake up. I need coffee. I have been switching it up, drinking between Newman’s Own, Starbucks breakfast blend and Pike. I have been drinking solely coffee since I don’t go to Starbucks anymore for my espresso. I miss having my espresso drinks.

I want to watch Mandalorian today. I hear baby Yoda is more adorable than ever. I’ve seen the new memes and he is so fucking cute. I also want to watch the Taylor Swift documentary on her latest album. I got to be in the mood to watch shows or I just don’t watch. I am paying for the service but I don’t watch all the time. I get bored easily.

I just sent my therapist a letter about something that is bothering me the last time we met. She said that my management of my crisis is the wrong answer. I don’t know what the “right” answer is so we need to talk about this because it is really pissing me off. I am still here during my darkest nights so I think that says something. Most importantly, I don’t attempt when I feel so bad.

I am getting hungry. I want to make scrambled eggs with cheese and put hot sauce on it. Frank’s came out with a chili lime that I love. My nephew likes it too. He is the king of hot sauce stuff. He buys different ones to try. Think I will get him some from Amazon for Christmas. He will love it. He loves habanero sauces. I do, too.