I think I am the Energizer Bunny. I keep going and going and going…

I think I am the Energizer Bunny. I keep going and going and going…

I had set my med and wake alarm at the same time. One woke me up. I got a few hours sleep as my pain was keeping me up. My mood was too as I had hit the suicidal lows. I know I was ecstatic about the book but like anything good that happens, it doesn’t seem to last long and my mood drops severely.

My groceries came a little after 0930, which gave me plenty of time to go to the Square to get the beef I needed for chili cornbread casserole and Starbucks which I was craving severely by this point. I figure I would take the new journal and break it in with stuff I always keep in the beginning of the book. I had breakfast as I had my yummy espresso. I cut it down to four shots, mostly to be saving money. I will get more if I have a crummy night sleep and then need to be somewhere.

After I finished eating, I tried to write but I grabbed the pen I accidently washed. It was self-contained and I am glad it was because it exploded. I got ink all over my hand. Nice. I packed up and went to the butcher shop. I looked over the ground beef selection and fish. Fish was ridiculously priced. It was like $10/lb and most of the packages were not even close to a pound. I went to the register and then went to the bus stop, almost forgetting my espresso.

I had to go to Walgreens for my mother. I also had some coupons that were going to expire so I did a little shopping. I got stuff for my mother and I. I had no idea what I bought was going to be so fricken heavy. I mean I got a 4lb bag of sugar and it felt like a ton. I guess between my two journals and the sugar, I was carrying a lot. I also got some other stuff but nothing really heavy. I guess I was tired with the heat and carrying stuff just was not in the works. I had to take breaks so it was a long walk home.

I had forgot to take out the corn for the casserole so I had to wait a bit before cooking. I rested a bit and showed what I bought to my mother. I put it away. She was happy I got the stuff off. I told her I couldn’t get the Dawn dish detergent because they didn’t have a scent I liked as the blue was out of stock. She said why and I said because I don’t want to smell apples while washing dishes.

I got tired of waiting and started cooking the onions and then the beef. When the beef was close to done, I put the oven on. While the beef was going through the last few minutes of cooking, I got the cornbread mix ready. I had bought some milk because my mother had very little left. I guess that was also heavy in addition to the sugar I was carrying. It was only a half-gallon. I wanted a quart but they didn’t have them, just half and gallon. Oh well. When the beef was done, I mixed the other ingredients in and then put the milk in the bowl with the cornbread mix. I put the beef mixture in the Pyrex dish and then poured the cornbread mix. I didn’t spread it evenly. I had the oven on 400 degrees. It took forever to cook and brown. Last time I made it, I didn’t cook it long enough so parts of it was not cooked. There was no egg in it so it is okay to eat. I didn’t want to put the whole two boxes in but I did. Next time I won’t put all of it (like I said last time (shrugs)).

While the casserole was cooking, I made lemon pudding for the pie I wanted to make. I put the pudding in the graham crust and…I didn’t have enough pudding because the crust was bigger than I thought it would be. Crud. I put the cool whip on it anyway. It is still in the fridge. I’ll have some later. I was fricken hot. I wanted my bed and the AC. The cornbread was taking forever so I did the dishes. I then waited some more. My battery on my phone was draining. I was listening to Mary Chapin Carpenter’s Come On, Come On album as today is the 26th anniversary of its release. I love the album. I was singing along. I don’t think there is a song I dislike on it. I have listened to it so many times that even if there was, it probably grew on me.

My doc changed the time we were supposed to meet. Now I am seeing her Friday instead of tomorrow. I am glad because the bus I take home is being rerouted due to a 4th of July thing. I went upstairs to cool off as the casserole was done and it needed to “rest”. I was conflicted as to whether I would have a slice or have a leftover burger. I had a burger and then went upstairs. I am so damn tired and wanted a nap. I tried to take one but my foot cramped up. I took some magnesium rather than an Ativan. I have not been drinking fluids today, which is probably why I cramped. I have been trying to drink water or Powerade but I haven’t been that thirsty.

I am now listening to the Sox hammer the Angels. They have a 6-0 lead right now. Hope Porcello doesn’t cough it up.

What I started writing yesterday and stuff I did today

What I started writing yesterday and stuff I did today

So this is what I wrote yesterday:

I am so flipping enraged. Just came from seeing my pcp. He was interested in how I was doing with the med change. Jerk said he was extremely skeptical about opioids helping me at all. Well take this chickenshit, my pain is reduced 50% aside from flares, which nothing seems to help. He was glad he was wrong. But can you imagine the big “I told you so” if I got no relief? I can’t believe the ignorance. Totally dumbfounded and hurt I would left to deal with excruciating pain and nothing to treat it with when there is something to treat it. So anyone who says opioids don’t work for CRPS, THEY ARE FULL OF CRAP!! So I then tell him my back has been acting up due to weather changes. My lumbar spine and sacrum do not want to move. Asked if taking ibuprofen was ok and he says it has risks of heart problems and hypertension. But mostly stomach issues. I should use it sparingly. Why the fuck is this over the counter if it causes so many problems? And doctors prescribe it like candy or more potent NSAIDs like naproxen or diclofenac?? Idiot. I just rolled my eyes. I cannot believe this idiot is practicing medicine at a world class hospital.

Today I find out that he is worried about my sodium levels as they dropped again since the last time I had them checked. He is going to talk to my psychiatrist and has ordered blood and urine tests to rule out what is causing my blood sodium to drop other than medication. I wrote back to him and asked what the tests were (I am a lab geek, after all) and if the PCOS I have might be affecting my pituitary, thus messing up my blood levels. I don’t think I will get an answer tonight as I thought of this around 1900. He did tell me that if I felt ill to go to the urgent care.

I spent most of the day clearing off my bed so I can change my bed sheets. I had to do it in increments because my back kept flaring if I stood longer than 10-15 minutes. Then I couldn’t find my reacher on my bed so finally cleared off nearly everything except my office essentials like my journal, laptop, and book that I am reading. I made pancakes this morning and then had buffalo wings for dinner. I was so sleepy after dinner that I had to lay down. I was hoping to sleep but I couldn’t.

Tomorrow, I will be able to change my sheets. I plan on washing them and my blanket. I have another set of blankets that I will put on. They won’t be as warm as the Red Sox fleece I am using now. I think I am going to put the hospital blanket on and then the Red Sox. That should keep me warm and if I am too warm, I can always take it off. I have to keep my leg warm because the AC might make my foot cold. Plus I get cold and like to get cozy under the blankets at night.

I was feeling really down last night. Pain was elevated and so was my suicidality. I wrote a blog. When I finished it, I sent it off to a couple of suicidologists, including the president of the American Association of Suicidology because something she posted on Twitter bothered me and I had written about it. She tweeted me in the morning and we had a discussion but I could tell she wasn’t getting what I was trying to say. It amazes me that these people want to prevent suicide yet belittle the thoughts of those who actually live with chronic suicide ideation. She had written a study that had showed more than 132 people are affected per suicide. It was dispel the thoughts that Dr. Shneidman had that at least six people were affected. He said this but never studied it. No one knows where he got this number and he is deceased so we will never know. Her study was important. But what the bereaved suicide loss persons don’t realize is that saying loved ones will be hurt and others will be affected, some how guilt trips them into staying when they do not wish to live anymore. I was trying to explain this and we weren’t getting anywhere. Depression already caused excessive amounts of guilt. Add this information and it is overwhelming, which is what I was trying to get at but obviously wasn’t explaining right. She is a very intelligent person but I really think that lived experienced people and others who think of ending their lives might be too painful for her to deal with and so gets offended. I have seen it happen to me one too many times. Yes, it does make you stop and think of who you are hurting when you are thinking of taking your life. But then you (the suicidal person) have to wonder, is my suffering greater than those I love? And if this was a physical, terminal illness like cancer, would they still feel the same?

It just bothers me so much that people who are already suffering from huge amounts of pain, physically and mentally, still go on with their lives because they basically feel trapped. I know I do. I feel trapped by not want to cause pain to my family and friends with my death and the pain I already have that I was so desperately to end. It is tearing me apart some days, especially when the dawn approaches and I no longer have such intense feelings of ending my life. One of the suicidologists was glad I had made it through the night. She was the only one that said that. I am sure the others would have thrown my ass in the hospital if they could. I write a lot about my feelings because I don’t have a lot of support. It is also cathartic for me to write. If I lose this, for whatever reason, I know I will die. I think I even emailed my psychiatrist last night about why am I still around? Why am I still here. And will she let me go? I was half expecting a response or a phone call. I got neither. I see her next week so I know I will talk about it, least I hope to if I am not chickenshit. She sometimes scares me because she has this way about her that when she says something, I have to listen and “follow orders”. I have never not done what she said when she says it in that tone she has. She has known me for a long time. I respect her a lot and she respects me a lot. She looks up a lot to me because I have been through so much.

Next week is going to be difficult as I have a lot going on. But right now, all I care about is changing my sheets and reading Harry Potter as well as keeping track of the Sox. Oh, almost forgot, the blog that I wrote early this morning was chosen by some paper and published on their platform. Pretty cool!

Painsomnia and Midnight Demon Friday 22 June 18

I had started a blog on my laptop to publish yesterday but my brain kept getting foggy and couldn’t focus. I knew if I forced myself to write, it would come out crappy.

Now it is after 2 am. I can’t sleep. Midnight Demon is out. Has been since 10 but had no writing urges. I’m just writing now because I felt like it. I feel suicidal. Been planning for months and now it is almost time. I’m wondering where the weeks went. I haven’t done much other than look over my will. My pension is still wherever it is with my employer. I have emailed my psych that my death is inevitable. I asked her to let me go.

Pain has been decreased by 50% since my new longer acting pain med was started last week. But it does nothing for flares. I am not in a flare. Just pain that is left over from the meds. It doesn’t take all the pain away. Nothing will do that. But this pain is what is keeping me up. That and the thoughts of ending my life. It is like a monkey on my back. It goes away for a while and then comes back full force.

It is a familiar feeling. A part of me knows it will pass. Another parts truly believes this will be the end. I am tired of fighting this. I had made my decision 3 months ago. Now the 3 months is almost up. I extended the date due to circumstances beyond my control. Next week I will check out the location. I hope it will be suitable. I am still afraid I won’t go through with it. My psych might intervene. I don’t know if I will end up back in the hospital. I told her it was useless.

My hope level has been fluctuating a lot. My friend reminded me I’ve been in rough patches before and got through them. I didn’t tell her this was it. I feel so stupid. One of the suicidologists I know that is the president of AAS did a study on the effects of a suicide. In the study she found that >132 people are affected. If that holds true, I will have ~400 or more. And that just includes my online/high school/ co workers friends. Doesn’t include my humungous family.

I feel guilty about this. Today she posted saying that it was a reminder to suicidal persons as they often feel no one care or that no one will miss them. Makes me mad. I don’t want to cause pain to others yet why should I go on in torment of my CRPS and depression? I feel it is a guilt trip. A huge one at that. I stuff those feelings when I am deeply suicidal. Then when it lowers or I look at the people I love, I wonder how could I do this to them? I am in agony over this. It is truly hurting me. Call it ambilvalence. Call it selfishness (please don’t as that is NOT what it is but i don’t know another word). I just am so conflicted as to what to do. I can’t stuff them. I want to die. I need to die. My time is coming. Question is, to be or not to be.

Feeling shitty and can’t sleep

It is almost 2330. I had a burger later and then got sleepy. I’ve been trying to sleep for an hour but my damn foot keeps acting up. Bottom of my foot has this pressure pain. I am getting zaps in the side of my foot near my toes. My metatarsals are being ripped apart.

Then my brain is working none stop. For some reason, the source (evil demon from Charmed) keeps popping in my head. I will be talking to someone and then their eyes change to black and they want to envelope me. I don’t get it. I don’t usually have nightmares, not since I was a kid.

Pain is driving up my suicidality. I have been thinking about canceling my therapy appt for Monday. But I want to see him. I got 3 appts this week. I was going to have 4 but I am going to cancel my eye appt. I’ll just reschedule it. I have been trying to do the exercises my PT gave me but they are different than the ones we did when I saw her. I can do the one for my right foot but my ankle is too angry to try to do. I have no idea if having my knees up and doing one exercise is going to upset my foot/ankle. It was alright with the AFO on but I don’t wear it around the house. The. There is one exercise that sounds more like part of my notes than an exercise. Have no idea what that is about.

I think I am going to go back to regular pillows and not use the body pillow I have. It is annoying me. I also need to change my sheets but I have accumulated a bunch of shit on my bed that will take a few days to get off. I started clearing off some stuff. I have a gazillion pharmacy papers from my meds. I tried using the privacy stamp on it but it didn’t work. So it is back to the “to be shredded” pile, which is overflowing at this point.

Last night I was in a suicidal mood and sent my psychiatrist an email about things running through my head. I was expecting a phone call today but nothing and no reply. I forgot she was on vacation last week so that was why she didn’t read the article and blog I sent her. I really wanted her to read the article. But because she didn’t, I couldn’t talk to her about what was on my mind. She said she will get to it. I hope so.

Foot is hurting really bad. I took the breakthrough med a little while ago. I think a placebo would have worked better. I also took some more fiber pills. I went a little bit today but that was all. I am expecting a colon blow. But it just feels stuck. I feel really uncomfortable. Usually one will work and I am taking 3 different things. I don’t think the senna works for me anymore. I hope i go tomorrow.