Am I a hopeless case?

Am I a hopeless case?

My med alarm woke me up. I reluctantly sat up to take them. I wanted to go back to sleep but my bladder said it had to go. It was really quiet in my house so I thought my mother was out. I went downstairs and peeked in the kitchen. My mother was there and the TV was on mute, hence why it was quiet. I did my business and brushed my teeth. I went upstairs wanting to go back to sleep but I needed to pick up my package at the FedEx office. I was debating on how to get there. Then I got a phone call that wrecked my day.

The phone call was the social service dept at the hospital where all my doctors are (except my neurologist who is at a different hospital). I could tell by her voice she wasn’t going to give me pleasant news. She was speaking slowly which was annoying. I let her say what she needed to. The whomever decided I needed “long term care” and they do not provide it. So she gave me some other places I could try. I got upset. One of the places she “recommended I try” was Psychology Today’s website and I told her the therapists there do what you are doing to me once they hear my history. She was taken aback by that. It is true, that is why I am stuck in therapist limbo because I have a history of suicide attempts AND could possibly be in crisis, which makes therapists uncomfortable. Rather than dealing with it, they just don’t see you or pass you on to someone else. So I got a few contacts, one was a social worker referral line. I am not going to call them. I sent a message to my PCP’s social worker to let her know I was upset they denied me services.

After the phone call, I just cried. I was so frustrated and angry and when I get like that, I just cry. I felt pretty hopeless. I feel like I am just this hopeless case no one wants to take on. I still have the other therapist I put on hold but I really don’t want to go back to see him when he really hasn’t helped me in the year I saw him. All I got from him was venting my frustrations on my medical care and other stresses, like my mother being an asshole. I wrote to my psychiatrist to let her know. She told me the hospital does not provide therapy (then why are they number 1 in psychiatry???) and we will talk about this more tomorrow. I didn’t respond to the email. I had started to cry again.

I feel utterly defeated, worse than I have ever felt about not having a therapist since 2016. I keep replaying the scenario in my mind when I asked my therapist if we should end, not expecting a yes but got a yes. I was shocked. Then I couldn’t get a hold of her as it was the holidays and I just thought when I spoke to her next things would be eased out and we go back the way it was before. Nope, she was going to terminate. In a month. With no appointments in between that January appointment and the February one. Since then I had to call like seven therapist before I landed the one I saw until my physical mobility was shot. I think I stopped seeing him in January. I wasn’t getting much from him anyways. More than a few times, he pissed me off so much I would cancel the next appointment. He never asked why, just did it and never talked about it. All my previous therapists always asked why I canceled and got the third degree when I did so. In a lot of ways he is different than all of the ones I saw before. But he was okay with me being suicidal. I could talk about it with him like I couldn’t with anyone else. But that is all it was, talking. No plans or structure or anything else to cope with how horrible I felt. So even though I had someone I could talk to, I often felt alone with what I talked about because there was a lack of care with the heaviness I spoke about. No idea if I am making sense. The last straw for me with him was when he told me to Google relaxation techniques after I told him my PTSD was keeping me from sleeping. He just said it was “anxiety” keeping me up. So now I will have Google as my therapist. No one else wants the job.

just my daily blog post

Just my daily blog post

I woke up and didn’t want to get up. But I wanted coffee and a shower. I got up and my feet were killing me. I walked to where I have my clothes and that was extremely difficult so I decided not to take a shower. There would be no way I could stand and I can’t seem to sit and shower. I no longer have the hand held showerhead in there as my mother hated it. And whatever my mother doesn’t like goes away. Pisses me off because I take more showers than she does.

I had some coffee and unfortunately, we chatted. It was all that she felt that if I saw the “right” doctor, I wouldn’t be in so much pain. I told her even if I got an ankle replacement (not even remotely possible), it wouldn’t help. I tried to explain that my nerves were messed up and my brain kept thinking I was in pain when I wasn’t. It fell on deaf ears. No matter what I said, I couldn’t change her mind. I flipped on her and told her to go to the hospital she wanted me to go to. She said she did and the doctor was a jerk. Oh, really? I said I could find you another doctor, he isn’t the only knee surgeon in the place. She didn’t answer me. That shut her up.

I went upstairs once I finished my coffee to get dressed as I had to do an errand for her and get my prescription at the pharmacy. She wanted me to buy some things and I got them for her. I came home and my feet wanted to murder me. I had wrestled the lace up brace on and it was going to stay on. I hate this thing. I won’t be wearing it tomorrow when I see the neuro because if I have to take it off, I won’t be able to put it back on and my ankle will hate me. I am not looking forward to it because it is a long way to go to see my neuro. It takes about an hour and a half from where I live by public transportation. Then there is a walk from the station stop. If I didn’t like this neuro, I would see someone else.

After this, I came back to my room to rest. I wasn’t in a huge amount of pain but I was sure as hell sleepy. I kept nodding off so decided to take a nap. Without meaning to, I slept the entire afternoon. I woke up around 1830 not knowing what day it is. I thought I missed my appointment. But it was still Wednesday. I got up to have something to eat. I really didn’t know what I wanted. My mother made hot dogs and potato pancakes. I had one and then made some tea. I got a couple packages of crackers with peanut butter and had that for supper. I didn’t want to make anything. All I had was pizza or hot dogs. I really need to go to the grocery store to get some food but I am waiting until I get my monthly food stamp money to be deposited on my card. I will go then, if my feet don’t kill me.

I wrote to my therapist last night telling him that I can no longer see him temporarily and could we see each other monthly or so until I literally can be back on my feet. I haven’t had a response yet. I emailed my psych to let her know what has been happening and she wrote that we will go slowly on the new mood stabilizer. I didn’t expect anything else. I told her I thought I was hypomanic the other day with my burst of energy, which is further fucking up my sleep. Today I left a message with my TG doc asking about the T increase as I haven’t heard from her still. I haven’t heard back from her or her secretary either. I feel like so many balls are in the air and no one is catching them. I hope I hear back from my therapist. I feel bad about not seeing him but as I explain to him, it takes a lot of energy which leaves me really hurting after our meetings. I just hope he doesn’t want to end. I will be screwed. I told my psych about this and she didn’t say anything about it. She never does when it comes to therapy. She has told me that whatever I decide she is okay with.

With all this I am feeling really down and feeling useless because I just can’t walk like I used to. I really hope PT helps with my right foot as I need to get better from it. I hate being in so much pain and not knowing what to do to help relieve it. Last night I was putting diclofenac gel on and my heel was really swollen. The gel is the only thing that helps bring the pain down some but not totally. A little is better than nothing. I am really surprised my pain meds doesn’t touch the pain in my heel at all. It just makes me think that something is going on either with the heel or the tendons around it. The golf ball was really inflamed last night as well, and I think that swelling is what irritates my heel because it is right where the plantar fascia is. I’ve been using ice but it numbs it and that is all I get from it. It doesn’t help to bring it down. I really hope my PT has some ideas to help me get back to walking again. I don’t know what I am going to do otherwise and I am NOT getting a cortisol shot! I don’t believe them and think they weaken the tendons more than reduce the swelling.

the golf ball

Feeling really sad about therapy

I have had to miss therapy all week because of pain. Yesterday I didn’t go because I thought I would have PT but slept through the appt. I’ve been thinking a lot about what I am doing in therapy, like is it useful or am I wasting time. I know my therapist cares, or at least portrays that he does. He doesn’t give any “homework” or any structure. We just talk and he might respond like the last 5 minutes to the things I’ve said. Sometimes it is really hard to talk the whole 45 minutes. I have a hard time thinking what to say. But I get through it.

What is making me sad is that I’ll be starting PT again and that always stresses me out. Maneuvering appts and spending 45 minutes on the bus to and from. Then remembering to do the exercises the way I was told. The having flares because I went to an appt. I hurt worse with therapy. Sometimes I hurt for days. Throw in fucking weather dysfunction like going from 63 degrees to 30 the next day kills me.

I think I am going to have to stop therapy while I have PT. I really need to work on my right leg or I am not going to be able to walk. Just getting around my house some days I need a walker because both feet are terrible. My right heel is causing me to walk funny and causing ankle pain. Sometimes I can alleviate it but lately it has become so bad after therapy that I just can’t recover. It is too painful to calm down in a day or two. So with this in mind, I got to let my therapist know. Trouble is, I don’t know how. Stress isn’t good with my CRPS. It makes my pain worse for that foot/ankle. And causing me to put more weight on it because I can’t bear weight on my “good” right foot, well it is a mess.

Mentally I know I am not that great. But I’ve always been suicidal and this guy has taken no interest in trying to decrease my thoughts except through talking about it. Yes that is useful but doesn’t help when I am now planning my death because I can’t stand the cycle of pain anymore. He doesn’t have any structure to deal with it and has even said I am free to do it once I leave his office, as long as I am not going to do it right when I leave. As an autodidact suicidologist, this terrifies me of this approach. But basically he is saying he can’t save me. And I don’t want him to. I don’t want anyone to stop me. Hence I plan. But I am getting off track.

I don’t know how to say to him can we temporarily stop until i am a little better than what i am now. I am terrified he will say no and end our time. Which then means i am screwed with having to find someone once i am better. I am really scared he might say this. But if i just keep canceling week after week, he might think i don’t want to see him anymore.

I have no idea if i am making sense. It sucks that my pain is interfering with this but fuck, I am disabled for a reason. If I was well, I wouldn’t be in this predicament.

Comments are very much welcome to this post. Thanks for reading.

Happy Fucking Monday

Happy Fucking Monday (*** warning more swears throughout rest of blog***)

So I had shit sleep. I didn’t go to bed till after 330. I think I last looked at my phone to check the time and it said 349. What time I actually fell asleep, who knows. Needless to say that when my med alarm went off I wanted to chuck my phone against the wall. I just checked to see if I actually took my meds and I missed a Lamictal. Oh well. Least I took the majority of them. My alarm to get up went off and I grudgedly sat up and checked the messages on my phone. As I did so and hating the fact I had to leave the house in a bit to go to my therapy appointment I didn’t want to keep, my mother starts screaming my name at the top of her lungs. WTF does she want? A call came through on her line asking for me that was “computer related”. UGH I told her to have them call my cell. Both feet were killing me in the short few steps to the bedroom door to scream at her this message.

A few moments later in my bad mood, the idiot calls me. He had an Indian accent and said they were trying to get access to my computer as “they couldn’t get the signal” and they needed to send an important “security patch”. At this point I became sarcastic as fuck saying really? Are you calling from Dell? No, Microsoft. Oh Microsoft? Wow. That sounds really important. I said you are full of shit. He then says “no we are legit. I can send you our license number.” I said you can send to 800- I don’t fucking believe you! And hung up. Fucking dickwad. I was hurting so bad but had to get ready for this appointment I didn’t want to go to. I went downstairs for some coffee after deciding fuck the bus I’d take a cab as I wasn’t going to Uber. I wasn’t going to be driving all around town picking up other people before my destination for $4. I’d pay the $12 for a single way of getting to where I want to go.

When I got downstairs, I told my mother it was a scammer and the next time hang up. She gave the “I don’t know”. I told her I NEVER give her number out so they wouldn’t be calling you, they would call my cell. She doesn’t fucking think. UGH!!!! I had my coffee and a couple of cookies. Then I thought I better eat something more so I am not hungry later. I made a roast beef sandwich and I think I forgot to put back the stuff. I didn’t care. I then decided I better put on the fucking lace brace. My mother had redone it but I still had to take the top laces out to put it on. My mother blamed the swelling. Fuck. There is no swelling the thing is made to be fucking tight! I put the thing on and then had her help me lace it up as I couldn’t move to see where the holes were. Just as we are doing this, she get a call from her doctor’s office and the line is staticky so she goes to the kitchen line. Fucking fuck. I am still in my pajamas and the cab is going to be here in 20 minutes. I fucking did the best I could with the damn fucking thing and went up to my room to get dressed. I was going to wear jeans and a button down shirt but fuck it. I decided sweatpants and sweatshirt as it was cold out.
Went downstairs to put my shoes on with the other brace for my left foot. I chatted with my sister. My new pens came. They are so pretty! I love them. I don’t care much about the mechanical pencil but it was 50% off so who the fuck cares. That made my day somewhat.

I went to therapy and no fucking lie, the dipshit told me to Google relaxation techniques for my PTSD/”anxiety” for the trouble I am having going to sleep. I am afraid to lay down to go to sleep because I don’t want my foot to go berserk. What the fuck am I paying him for if I have to Google shit?? I was so fucking mad. I decided to walk to the train rather than take an Uber. A guy that smelled like piss and shit got on the bus ride home. It was a pleasant ride. But it wasn’t over. I still had to go to Walgreens for my dear mother. There was no prescription ready for her so I walked all over the store for nothing. My foot loved that. I went to the register and decided to get the stamps she wanted. The girl was knew and didn’t know how to price check. FUCKING FUCK. Her trainer had gone off to help another customer. So I waited. The trainer didn’t know about the stamps (price had gone up but still rung up as old price) so I paid the old price as they couldn’t figure the fucking thing out. My feet were ready to divorce me at this point. I was in so much fucking pain. The brace was tight and I needed to get it off.

Came home and went upstairs to my room to change. I was getting settled after wrestling the damn brace off my foot when my damn fucking bladder said it had to go. Fucking little bitch couldn’t tell me when I was downstairs. So I go and then ask my mother if a package came for me (the one that Amazon said they delivered but really didn’t). No package so I went back upstairs and my right foot is so bloody angry right now. I am ready to look on Amazon for chainsaws. My mother is making dinner and wanted my help and I said no because I can’t stand. I am hurting too much thanks to you waking me up and have me racing to the bedroom door for a fucking scammer! She is hurting but I don’t care. I went out and did shit, she has been home all day. So happy fucking Monday. Can’t wait for Friday’s double header with doctor appointments.