Category: Chronic pain

Day and night in ER

by Midnight Demon, posted in Bipolar Disorder, Chronic pain, chronic physical pain

I only got about 3 hrs sleep. I was able to shower and catch the 2nd bus to the Square. I paged my psych when I was at the bus stop. The bus came and I was relieved. I got to the ER and talked with the attending. Then I went to the main part of the ER and waiting 3 or 4 hours for psych to see me. I had 2 nurse practitioners and the attending psychiatrist. I told them how I didn’t want to end up in the hosp I was at in the summer. I told them I wanted the unit at this hosp or just send me home.

After the interview and lunch, the NPs came over and said I was sectioned so in had to go to another part of the ED where there are babysitters. I had to change to scrubs as they didn’t want me to leave. Ridiculous. I did what they wanted and waited some more. They were waiting for a bed to open on the unit and until then, I had to stay put. Lovely. Looks like I’ll be spending the night here. Oh joy.

Really annoyed

by Midnight Demon, posted in Bipolar Disorder, blogging, Chronic pain, chronic physical pain, depression, disability, mental illness, mood disorders, physical pain, suicidality

I’ve been trying to sleep the past 2 hours but every time I lie down, my ankle and/or foot acts up. So I take something and that particular pain goes away only to be replaced by another pain in a different area of my foot or ankle. It is driving me nuts. Right now I have a brace on my foot. I had some medical tape on. That helped some of the pain until I moved my foot upward. Every time I move it, I’m in excruciating pain. It makes me want to die right then and there. I pound my pillow and I moan. No one can hear me. My mother is sleeping and deaf.

I posted a pic on Instagram with the brace on. I posted suicidal. I hope the cops don’t show up at my door tomorrow. I don’t know why I did that. I’m going to take it down. I don’t want trouble. Fuck. I am pointing my ankle downwards and I’m hurting. WTF. I’ve had enough of this bullshit.

I’m canceling my PT appt for today. The weather calls for flooding rain. I don’t want to go out just to get soaked waiting for the bus. I’ll email my PT after I cancel to let her know why so she doesn’t think I’m blowing her off. If I had a car, it would be different. Traveling by public transportation sucks sometimes.

I think the Zoloft is causing me to be nauseous. I had lowered by dose last week and was doing fine until tonight. I had to take a zofran to get rid of the feeling. I really dont want to puke. I’ve been on Zoloft for a year and a half or so. I’m not surprised it is making me sick. That was why I had to come off it. Most SSRIs cause nausea with me. When I see my doc next week, I’m going to ask her to possibly switch to something else, maybe venflexitine (Effexor). It has been the only drug I haven’t been on. I might have to have a break between meds or it could cause serotonin syndrome, which is not fun.

I took neurontin tonight to help with the burning. I hate when the physical pain is gone and it is replaced by nerve pain. I was reading an article about how there are few meds that help with nerve pain. What pissed me off was that it didn’t say what meds worked. Left you feeling like what is the purpose of the damn article. Hate that.

I had to put lidocaine on my big toe because it was acting up. I don’t know why some nights the top of it really hurts like it is being torn apart.

I hate when I am so very tired yet I can’t fricken sleep because of pain. I’ve taken all that I can. Just wish it would let up a little so I could sleep. I can imagine what my sleep study is going to be like. Always takes me forever to settle down to sleep. I even took an extra Ativan and I’m still up. Pain just doesn’t care what I take. Pisses me off. Think I’m going to brush my teeth. I need to go to the bathroom anyway. Stupid bladder! Walking downstairs is going to be fun. I need an immobilizer for my ankle so it doesn’t move. Maybe that will help. I just need it at night because that is when the pain is worse.

Foot Pain, Ankle Pain, Psychache, when will it end?

by Midnight Demon, posted in Bipolar Disorder, blogging, Chronic pain, chronic physical pain, CRPS, mental illness, mood disorders, physical pain, suicidality, transgender

I feel asleep around 2100 only yo wake up 3.5 hours later. I had to use the bathroom. While I was there, I figured I might as well brush my teeth. My foot started hurting so I rushed.

I went back to my room and couldn’t settle down. It’s starting to be a never ending story of pain. Now my heart is breaking and I don’t know why. I should feel better now that I know my mother knows I am a man. I thought that would take away some of the depression but it hasn’t. I still feel hopeless.

I wrote a tweet and someone flagged it on FB. I got a message asking if I needed help or someone to talk to. The report is anonymous so I have no idea who reported me. I’m just glad no cops showed up at my door. 

I’m so tired of this crap. I’m sick of being in pain all the time. I wanted to make cookies and instead, I slept all day. I might do it later today. I love the cookies.  My niece wants me to frost them so I might so that. I think they taste better without the frosting. But, I can only make the cookies if my pain is down and it shows no sign of that happening. 

I never bought the zucchini. Maybe I will Monday when I am out. I really want to make the zucchini bread. I really like it and it is easy to make. One of my friends posted a recipe for dark chocolate molasses cookies but you need brown rice flour. I’m not sure where I can find that. I also need to buy molasses. Maybe the next time I am in the Square, I’ll look in the grocery store there. They have some organic stuff and might carry the rice flour.

I don’t know why I feel so much psychache. I guess it may be due to my friend not really loving me like she says she does. I’ve known this for a while now. I’ll go for days without hearing from her and then she will be in some crisis or another, needing to talk to me, usually late at night when I want to sleep. It just annoys me that the only time I hear from her is when she is feeling bad, like I don’t exist until she feels she needs me. I just learned to distance myself from her.

I had texted my therapist about the news about telling my mother that I am transgender. He responded. He is glad I did so. I also texted my former therapist and she never did. I don’t think she will. I emailed my psych and she didn’t respond either. I see her this coming Friday so I’m sure we will talk then. I should be feeling elated that my mother knows but I still feel like shit. I think the pain of my ankle/Foot is just bringing me down so much that I can’t feel anything else but misery. 

Not sure if I mentioned it but I have decided that Oct 10th I’ll be changing my name, legally. It will cost me around $200. I’m going to make sure I get enough extra paperwork so I don’t have to go back to the courthouse. I’m not sure how many I will need to change my name on various things. I’m excited and scared about taking this step in my transition. But none of that will matter if my pain causes me to end my life. 

It is a constant battle trying to keep myself here. It is a roller coaster of emotion all the time, from feeling deep despair and suicidal one minute to feeling ok the next. I know one day I will end my life. I just don’t know when that will be, sooner or later.

Am I weak?

by Midnight Demon, posted in Bipolar Disorder, Chronic pain, chronic physical pain, CRPS, depression, grief, mental illness, mood disorders, physical pain, psychache, suicidality

I called UNCLE. I was slowly drifting off to la la land and then the unknown entity in the form of a knife started stabbing the middle of my foot. I am filled with such despair right now, I’m beside myself.

I just want to die but I can’t leave my room because I can’t bear weight on my damn foot. I’ve been trying to distract most of the night but I am angry. Angry the meds work on certain pains I get in my foot and ankle, angry my PCP doesn’t meet with me frequently enough to see what I am going through, angry that I am forced to use mobility aids around the house to try and lessen my pain. Angry that my friends in real life don’t get what I am going through. My sister came up to visit and she wanted me to go downstairs to see her. I told her I was in too much pain. There was silence. I felt like I could hear her thoughts saying yeah right, like I would stay in my room to avoid her. 

The past few days have been awful pain wise. I’ve been trying my best to stay on top of it but it’s hard when the pain keeps changing and now it is affecting my bones. I get severe bone pain in my foot and ankle, specifically, the malleolus and metatarsals. But only half of my foot and ankle hurt. The last three toes going up to my ankle and outer foot/ankle hurt really bad. It is draining me. I can’t tolerate the pain. I want to die.

I’ve been thinking about my therapist that I’ve been seeing the last few months. I’m going to be straight with him and see if he is willing to help me or just play with his nails. I need encouragement if I’m to continue living. I haven’t gotten that from him at all. I miss my ex-therapist. She always provided encouragement and support. 

I see my psychiatrist Friday. She has been on vacation the past few weeks, but I’ve been emailing her about what has been happening in her absence. I’ve come up with a suicidal plan. I think I emailed it to her, I’m not sure. If I did, She didn’t respond. Im sure we’ll talk about it when i see her. If my therapist doesn’t want to help me with my problems, I’m going to stop seeing him. I mean, what would be the point? Ramble for 45 minutes every week with no feedback or analysis of what I am talking about? I’ll have better luck talking to a wall.

Chronic pain has got to settle down. It is killing me and will kill me. Even though I’m on pain meds, and they do work, however my pain is so intense and unpredictable that I never know when I need to take a pill to control it. I can’t say, ok at 7 pm the pain is going to be this so I’ll take this pill at 6 pm so I’m not hurting. It doesn’t work that way. Maybe in a perfect world.

I’ve been fighting sleep since 2130. Every time I get relaxed enough to drift off, my pain increases or I feel like my foot is on fire. Then I need to take another med to calm the flames. Trouble is, this med takes hours to work so in the meantime, I’m hurting and going berserk with pain.

Why is it when I talk about killing myself, people just don’t want me to die? I understand but if I was an animal, I would have been euthanized by now. Why can’t humans be euthanized? I know in certain countries you can be via assisted suicide. But I don’t have the money needed to fly there and pay for services just to die in a foreign land. I am so sad I no longer can work or walk anymore. Being in pain sucks. I do have the suicide disease. My dream come true. Now I just need a concrete plan to go ahead with it.