Category: Chronic pain

Ramblings 320

by Midnight Demon, posted in Bipolar Disorder, Chronic pain, chronic physical pain, CRPS, depression, disability, mood disorders, physical pain

I was in a lot of pain after dinner. I took my night meds around 1900 and then read Twitter. One author I follow had retweeted an actor/comedian about his movie the Big Sick. He said it was free on Amazon Prime so I decided to watch it on my Kindle fire. It is really good. It took my mind off the pain for a couple of hours.

My foot started acting up once I started moving. I had to go to the bathroom and when I stood, OMG, it dos not like it one bit. My ankle and foot felt like it was fused. I couldn’t move them and if I tried, I was in mega pain. Going down the stairs was difficult. I did my business and then decided to taste test the stuffing my mother made. It wasn’t in the fridge. It was at the other end of the house, on our front porch. It was good. My foot didn’t like going around the house. Hated going back up the stairs even more. I took some pain meds and an Ativan. I am hoping to sleep soon.

I checked my bank account and it was off. I logged on and Zipcar had charged me $70. WTF. My first thought was someone hacked into my account. I went on the Zipcar site and learned it was the annual fee. Fuck. My therapist is not getting paid this month. I wish they had sent me a notification saying they were going to charge me so I could have budgeted it. Assholes. That really set me back. I will still have some money after everything is said and done but I hate skipping a bill because it is hard to play catch up. Next month I should be able to double it, provided no unexpected expenses come up.

I am really tired of being in pain all day. I wish I could stay in my room all day tomorrow but I got to do the family thing. I just hope i am not going up and down stairs all day because I’ll refuse. I don’t want to flare up if I don’t have to.

My mother was cold earlier so I had to turn up the heat, even though it was like 50 degrees out at the time. Now it is 38 and the heat kicked on. It is not cold in my room but it will be roasting soon.  I still have the window open and I think it stopped raining. I rather be cold than hot.

I am going to see if I can find another movie to watch that is free. If not I’ll call it a night and snooze, I hope. Hopefully the pain meds settle the pain a little so I can sleep. I still can’t believe I’ve been in pain from 0730 continuously till now which is 2300. That is nuts. It is just awful.

Painsomnia 

by Midnight Demon, posted in Bipolar Disorder, blogging, Chronic pain, chronic physical pain, depression, mental disorders, mental illness, mood disorders, physical pain

I was pushing for 0200 to go to sleep but i had to pee and then brush my teeth as my mouth felt yucky.  I haven’t brushed in two days so i really needed to get rid of the yuck.

Pain has been keeping me up. Started with my metatarsals and then moved up to my ankle bones. I took extra meds and 1200 mg of neurontin. It hurt so bad, not as bad as it was last week. I figure I would write as sleep isn’t coming just yet. I am really tired. I’ve been playing with my phone. Making grocery lists for tomorrow, making a coping plan on one of the apps I downloaded. Dr. Jobes is supposed to come out with a mobile app. I can’t wait.

I’ve been fighting the suicidal urges. I can’t help it as I feel so rotten and hopeless. Pain is really bringing me down. I’ve posted my distress on Twitter but no one has said anything. 

I printed put the RMV forms for name change and stuff. I don’t need a letter from my doc to give to them. I do need to being some bank statements and stuff to prove who I am. Which reminds me, I nees to call the cable company to change my name. I hope I can do it online. To change everything on my license will be about $75, I think. 

I still need to call HR at my work place to find put when I will be getting an updated insurance card. I just need the one for prescriptions so i can change it at the pharmacy. So many things needing changing.

Dammit, my bone pain in my foot is back. I’m not going to sleep tonight. Ao much for wanting to do one errand later today. Maybe I will in the late afternoon. 

I am ordering some stuff from Amazon. I saw a body pillow that converts into a nice back pillow and arm rest so you can read. It is $60. Hope it is worth it. I’ll get it next week, hopefully. My online grocery order keeps going up and down. I order stuff then take it off. I really want to make a spinach, egg, cheese, and bacon sandwich or burrito. I still haven’t made a burrito since I’ve been home from the hospital. I jist have been in too much pain to cook.

Painsomnia is the worst. My foot feels so awful right now and i can’t take anymore meds. I am going to try and sleep now and see if I will be successful. Wish me luck!

Tiring day on the unit

by Midnight Demon, posted in baseball, Bipolar Disorder, Chronic pain, chronic physical pain, depression, mood disorders

I woke up a few time during the night but I slept a solid 3 hours from 6 to around 940 am. I missed breakfast but it wasn’t anything good. I Had cereal. I met with my team and we discussed discharge. The attending is going to talk to my psych to see if it will be ok. I think it will be either Thurs or Fri if she okays it.

My pain was low this morning so I chanced to shower and it wiped me out. I tried staying awake after lunch but it was impossible. After the shower, I also got anxious so I took an Ativan and then inadvertently slept all afternoon. There wasn’t any groups I wanted to attend so it was probably best I slept.

It was very cold today so I had staff shut the window near my bed but kept the other window open. The rest of the unit is fricken hot so I am glad I didn’t shut it.

I got an email from my patient information thing. It said I had new test results. I haven’t had any blood work so I was curious to see what it was. Apparently the system just posted labs from the ED. You will be happy to learn (as well I) that I am not pregnant. I got to get my gender changed. 

I got an email from a researcher saying she wanted to use some excerpts of my blog for her dissertation. I responded but didn’t realize it was the “do not reply WordPress” address. I had to copy and paste a new email. I am such a dork. I am excited about this. I did ask what blogs she would be using so I can get an idea what she is working on.

The baseball world is sad today. One of the greatest pitchers for the Blue Jays died in a plane crash. He was 40. He was retired. I feel for him, his family, and his teammates.

Another frustrating day on the psych unit 

by Midnight Demon, posted in Bipolar Disorder, blogging, Chronic pain, chronic physical pain, disability, mood disorders

The crummy SW came back. We met for less than 15 mins. No plan on helping me, just go with the flow. Met with psychiatrist who spoke about the anxiety suicidal ideation brings to clinicians. He wants a way to basically stop me from going there but acknowledged that it was basically my go to escape plan. No other plans for getting me out sooner were discussed. I am frustrated. I don’t want to be here but I need a safety net before I can fucking go. Told him I needed to work with my therapist on that, which I cannot do while I am here. I don’t think he got it. No plans for discharge were talked about. Bastard.

Contact person got me a shower chair. I just took some pain meds so in about an hour, I’ll take off my boot, see how my ankle and foot are, then try to shower. Hate that all these steps need to be in place for this activity but that is what it is like living with chronic pain.

I am getting really annoyed every single time I need a pain med the nurse asks me what my pain is. Then asks what will this bring it down to. Um, I don’t know? It could help, stay the same. Get worse because I move it, the pain could change to something else? Fuck. There is so much stigma around the damn pain and pain meds yet if I ask for an Ativan, they don’t ask me what level of anxiety or agitation I’m feeling. What the fuck is the difference? Just shut up and give me my meds!

As you can probably tell, I am very disgruntled, to say the least. I am a bit aggravated and annoyed. I only went to the group therapy group today. It was the only appealing group. I have read some more Harry potter this morning but now I am too discouraged to go back to it. It is the only book I brought with me so I am trying to stretch it out as I don’t know how long I’ll be here. 

I have no idea with the SW asked if I was dating. She always asks weird questions when every admission. Dumbfuck. Like dating would help me when I want to end my pain. Pfffttt. Last time I was here we spent a good amount of time going over my transition, which was not the reason for my admission. So annoying because when it was the reason I went into the hospital, they didn’t want to talk about it at all.

I’ve been having the same contact person nearly every day, which is good because then there is some continuity. I don’t have to go over my story every shift. I might take a nap before I take a shower just to see how my foot/ankle responds to no boot. If it doesn’t explode, that will be good. I could use a low pain day today. It is raining out and the week is going to be cold. But least no snow is in the forecast.