Tag: chronic illness

Sunday full of pain

by Midnight Demon, posted in blogging, Chronic pain, chronic physical pain, CRPS, depression, mood disorders

Sunday full of pain

I am still in a flare. I have been in pain all day. My foot/ankle have been hurting non stop. I went out briefly to get my prescription as I was running low on my medication. I am glad my insurance filled it before the end of the month because I am not sure how I am going to pay for it next month. After Jan 1st I will have to pay for my meds again until my deductible is reached. My shoulder has also been bothering me today.

I called my mother. She seemed like she was in good spirits despite being in the hospital. We don’t know what else is going on because the doctor never calls us like they should. My sister is getting so frustrated by this. Her appetite is back so I am glad to hear that. She said she was eating crackers when I called. The steroids they have her on must be doing their job but is wreaking havoc with her blood sugars.

I have group therapy tomorrow but I start my new schedule of only going to three groups a day instead of five. This is because I have appointments and we don’t want to mess with the insurance because I am skipping a day. I attend three days a week. This is a relief to me because going five days was really starting to get on my nerves. I am finding the program helpful as it gives me structure but that is all it is doing for me. I am not feeling like it is helping in any other way.

I have been having a down day because of the amount of pain that I am in. I really haven’t been in a flare this long before in a while. Pain is like a 10 on a scale of 1 to 10, 10 being the worst. It has been like this for days. I hate that I have been in so much pain and there not much I can do about it. Because I can’t do anything about it, it has made me feel suicidal at times. I feel trapped by the pain and want to escape. I posted on facebook that I felt like everyone would be better off without me and that is still how I feel.

My therapist is on vacation this week. I won’t be texting her like I have been because I am not sure she will respond. I am glad I don’t have to text her because she is away. I am also glad to have this break. I am tired. I hope I can sleep through the night but that may not be possible because of the amount of pain that I am in. I wanted to take a nap earlier today but I didn’t. I’ve been up since 9am. But I had broken sleep throughout the night. I don’t know why I keep waking up so damn early. It sucks.

failure so I don’t try

by Midnight Demon, posted in blogging, Chronic pain, chronic physical pain, CRPS, depression, mood disorders

Sad that I am in a lot of pain and in a depressed mood same time as last year when I tried to take my life. I am so suicidal but so fearful of being another failure I don’t try. I have been in pain since 0330 this morning when I woke up with shoulder pain. I stayed up for an hour trying to get it to calm down. I can’t remember if I took a BT med or not. I was in agony.

I have been in a lousy mood all day. My friend pissed me off this morning over a misunderstanding. I am so upset with her that I can’t bring myself to talk to her. Then I had partial hospital which was basically just attending groups. I was uncomfortable throughout as my shoulder was still hurting me causing my neck to feel out of sorts. My hamstring in my left leg was hurting me as well. I just felt like the left side of me was just not going to be happy today. My ankle was bothering me but not as bad as the shoulder pain. I just wanted to sleep but I couldn’t because I had group. By the second group, I had enough. I forced myself to a third group and was in agony and full of piss and vinegar throughout the meeting. I just wanted to lay down. I was bored and the group didn’t hold my interest. I am finding it hard to participate in them. I often have nothing to contribute or to add. I don’t relate to anything being said.

After the third group I texted my therapist that I was in a bad mood and we texted for a bit. She didn’t want me to have therapy if I was going to be angry. I thought things over a bit using DBT and realized I was more hurt (physically and emotionally) than angry. That helped diffuse my anger somewhat. I went to therapy and we talked. I told her in two days will be my anniversary of when I last attempted to take my life. I told her of the day and it was similar to what I am feeling today with being in so much pain. I am so depressed but I don’t feel the pressure of suicidality that I did last year. I do have the pills to do the job if I choose to go through with it. But I fear I will be a failure so I don’t try.

I didn’t nap today though I tried. I was just in too much pain and anguish. I was really upset that I was misgendered. Even my therapist misgendered me by accident. She was really sorry she did as it was a typo. The sentence didn’t make sense so I knew it was an error but it still stung just the same. Yesterday my mother called me a girl and it hurt so bad. Then she fell which got me worried so I couldn’t be “angry” at her so much. I hate that caring for her sometimes over takes the feelings I have for her, especially when they are negative. It drives me crazy.

pain is lonely

by Midnight Demon, posted in blogging, Chronic pain, chronic physical pain, CRPS, depression, mood disorders

Pain is lonely

I was scrolling through facebook and came across the meme “Pain is lonely” and it struck a cord with me. It is lonely. You have no one to talk to about it that really get it, unless you talk to someone that has the similar chronic pain that you have. I find that even though I talk to my BFF sometimes she doesn’t understand the kind of pain I got through with my ankle and foot. She understands everything else, how pain can make you cranky and tired and not motivate you to do stuff. It is a tradeoff. I rather have some understanding than none.

I got a call from the partial hospital place and they sent me email to fill out and send back. I had to fill out some form using adobe but it was confusing so I just saved it and sent the form. If it is wrong I am sure they will let me know. I have my first meeting at 9 and then group start at 10. Fun. I told them I have an appointment at 2 that I need to keep. It is my therapy appointment. The schedule is DBT based with some creative groups in between. Looks like a regular hospital group program but without the admission.

I went to pick up my prescription because I thought my neurologist changed the order. She didn’t but just gave me more refills. WTF I told her specifically I am taking more than what is prescribed like we discussed. Fuck. I hate when she doesn’t fucking listen. I hope she has it in her notes. Fuck. I am so pissed off.

My mother’s covid test came back negative but she has a cold. Despite me and my sister telling her to wear a mask, she refuses. She wears it around her neck with her mouth and nose exposed. Helpful. Not. I am staying in my room and using sanitizer when I get back to my room just to disinfect my hands. I do not want to get sick. As far as I know, I am the only one that got the flu vaccine.

My neck muscles have been really hurting me today on my left side. It feels like I pulled a muscle or something. I might have slept wrong again. I am going to tell my neurosurgeon when I see him because the pain isn’t going away and I haven’t found much relief. Heat, rest, meds, and stretching have not helped.

I am so tired. I didn’t sleep well again. I woke up around 0230 to pee and stayed in bed for a half hour before I finally got up to go. The urge was there but it wasn’t strong enough so I wasn’t sure if I had to go or not. I should just go anyway rather than lay there wondering. It took me some time to get back to sleep afterwards. I set the alarm for my appointment that was canceled on me due to covid. I am not going to reschedule the test. This is the third time I have had to set up an appointment since my surgery and I am not going through the anxiety again. So fuck it. I am not making another appointment.

depressed and not eating

by Midnight Demon, posted in blogging, Chronic pain, chronic physical pain, CRPS, depression, mood disorders

Depressed and not eating

I haven’t had anything solid to eat since Wed. I just have no appetite. I have been drinking Ensure and Powerade so at least I am hydrated. I might make some ramen noodles after this blog. Least it will be something.

I had an appointment with my psychiatrist yesterday. He wants me to go to a partial hospital program as he want to “nip this in the bud”. Idiot. I am already depressed. I don’t know if I am going to go or not. I will discuss it with my therapist Mon. I know she will be for it. I just don’t want to get up in the morning because I am not a morning person and it is difficult to take stuff in when I am not that awake. It will be virtual so I don’t have to leave my house but still. Rolling out of bed to turn the laptop on to attend a group doesn’t sound like fun. I am getting pissed off that he hasn’t given much thought to a citalopram increase and just wants to increase the stupid Latuda. I got to go to the pharmacy to pick it up. Just seems dumb to me that he is banking on an antipsychotic for mood benefit. If it hasn’t changed my mood and I am getting more depressed, it isn’t working for me. I don’t understand why he won’t increase the SSRI. Just annoys me.

I haven’t done my check in for the day. I will later. I usually try to do it around 1500 but today has been an off day. I slept late and didn’t go to my PT appointment. I overslept. It was early this morning and I just couldn’t get out of bed. My legs have been killing me for most of the day. I think I did too much yesterday when I went for my haircut and then went grocery shopping. I bought cheese for the house. My mother didn’t like what I spent for the parmesan but we haven’t had it in a while since we ran out so I wasn’t going to wait for a sale like she does.

I am tired today. I have little energy. I feel down and can’t really concentrate at times. My neck has been feeling tense this past week and hurts. I had a difficult time sleeping. I keep waking up in pain. My arm and shoulder hurt. I haven’t been able to find a comfortable position to sleep in. I usually sleep on my right side but lately that has been causing me pain in my left shoulder. I don’t know why but I keep waking up with it hurting. My neck muscles feel like they are pulling and I can’t get them to calm down. I’ve tried heat and meds and nothing has worked. I think I need a massage. Only problem is I don’t have the money for it. It is always expensive. Maybe I can with Christmas money. We’ll see.