Tag: hopelessness

four hour test and a flare up

by Midnight Demon, posted in Bipolar Disorder, blogging, chronic physical pain, depression, mood disorders

Four hour test and a flare up

I didn’t sleep very well last night. My alarm went off after I finally settled down. Think I might have gotten an hour and half. I took a shower and then it was time to get ready to catch the bus that never came. I had to take a different bus that went farther than the Square. Once I got off that bus, I ordered my Starbucks as I waited for another bus to take me to the Square. I quickly had my breakfast and took the espresso with me as I was now running late. I hoped there was no delays on the train and there wasn’t. I made it with 10 minutes to spare.

The first part of the scan was to inject me with the radioactive stuff and then take like 4 minutes of scans. Then I had to wait 2 hours to finish the rest of it. I was hurting for the positioning of my foot but it wasn’t too bad. I went to the café and met up with a friend of mine. We talked until he had to leave. I also went to see my former coworkers in the lab. There were only a few people I recognized and talked to. Everyone else was new.

While in the café, I got a cup of tea and then wrote in my journal. I was so tired and wanted to sleep but I just couldn’t nap. I went back to radiology a few minutes before I was supposed to and waited in the waiting room. They called me back and we went to a different room. It was cold and my foot immediately didn’t like it. It was the same positions as before but for about 10 minutes or so per scan. One of the scans, the tech put a rubber band on my feet. It irritated my foot. By the time we were done, I was flared up. I wish I could have had a ride home. The tech said results would be available this afternoon but I haven’t received notification of them yet.

I slowly walked to the train station. By the time I got there, my ankle was really hurting and my foot felt like ice. I took a strong pain pill that I had with me. The train was there when I got to the platform but it was delayed. We sat for a bit. I didn’t care as long as I didn’t miss the bus home, which would come in about 40 minutes, or so I thought. As I reached the Square, I got a text saying the bus was having moderate delays. Great. By this time, my foot bones were killing me and I just wanted to crash. Finally the bus came. I went to Walgreens to buy something for my mother and then came home. My ankle bone hurt. I was in so much damn pain I knew I wasn’t going to sleep. I was hungry but all that I wanted was my mother’s brownies.

I had two brownies and then went upstairs to change into my PJs and thermal socks. While taking off the sock on my bad foot, it flared up more. I was in pure agony. Half my ankle and foot were in 12/10 pain. I took my regular pain meds. Then after a couple hours, I took another strong pain pill and Ativan as I was getting anxious from the pain. I still haven’t heard anything about my scan. It could take up to 24 hours for radiology results to be put online. I care but don’t at this point as I just want to see my pillow.

The insurance card I was waiting for came in the mail today so I can change my name at the hospital I have my care. YAHOO! I’ll go to registration tomorrow after my psych appt, I might go before hand depending on what time they open. I just checked my prescription card and the updated name has happened. YAY! Progress. Now I just need to update it at the pharmacy. I hope I don’t need all new prescriptions in my new name. That will suck. Only thing I need next week will be my Ativan, and by then, my license will be changed to my new name. It won’t be a laminated card as I will have a temporary one. I just hope the gender marker doesn’t cause a hubbub. I really don’t want hassles.

OK, Pain is at a new level. Didn’t think that would be possible. I need to lie down. Until tomorrow!

Painsomnia 

by Midnight Demon, posted in Bipolar Disorder, blogging, Chronic pain, chronic physical pain, depression, mental disorders, mental illness, mood disorders, physical pain

I was pushing for 0200 to go to sleep but i had to pee and then brush my teeth as my mouth felt yucky.  I haven’t brushed in two days so i really needed to get rid of the yuck.

Pain has been keeping me up. Started with my metatarsals and then moved up to my ankle bones. I took extra meds and 1200 mg of neurontin. It hurt so bad, not as bad as it was last week. I figure I would write as sleep isn’t coming just yet. I am really tired. I’ve been playing with my phone. Making grocery lists for tomorrow, making a coping plan on one of the apps I downloaded. Dr. Jobes is supposed to come out with a mobile app. I can’t wait.

I’ve been fighting the suicidal urges. I can’t help it as I feel so rotten and hopeless. Pain is really bringing me down. I’ve posted my distress on Twitter but no one has said anything. 

I printed put the RMV forms for name change and stuff. I don’t need a letter from my doc to give to them. I do need to being some bank statements and stuff to prove who I am. Which reminds me, I nees to call the cable company to change my name. I hope I can do it online. To change everything on my license will be about $75, I think. 

I still need to call HR at my work place to find put when I will be getting an updated insurance card. I just need the one for prescriptions so i can change it at the pharmacy. So many things needing changing.

Dammit, my bone pain in my foot is back. I’m not going to sleep tonight. Ao much for wanting to do one errand later today. Maybe I will in the late afternoon. 

I am ordering some stuff from Amazon. I saw a body pillow that converts into a nice back pillow and arm rest so you can read. It is $60. Hope it is worth it. I’ll get it next week, hopefully. My online grocery order keeps going up and down. I order stuff then take it off. I really want to make a spinach, egg, cheese, and bacon sandwich or burrito. I still haven’t made a burrito since I’ve been home from the hospital. I jist have been in too much pain to cook.

Painsomnia is the worst. My foot feels so awful right now and i can’t take anymore meds. I am going to try and sleep now and see if I will be successful. Wish me luck!

ugh another psych admit

by Midnight Demon, posted in Bipolar Disorder, blogging, chronic physical pain, depression, mood disorders, suicide

Ugh another psych admit

Met with my psych this morning. I should have known it wasn’t going to be a good day when the 747 bus never showed up but my cousin did to give me a ride to the Square. I gave her some sauce and a piece of my cranberry cake. Then she said she wanted me to go in the hospital. From her tone, there was no arguing with her. She didn’t like that I picked a date, again, or the dire emails I sent when my pain caused me to be suicidal, more than usual. I’m just grateful she let me go to my therapist’s office later this afternoon. I told her I wanted his input.

I came home waited for my new laptop screen to be delivered. I was expecting it around 1230. It didn’t come till after 1300, which left little time for a nap. I wasn’t in that much pain but knew I would need some when it got closer to my therapist’s time. Unfortunately, I didn’t bring my bag of all things, which contained a water bottle so I didn’t take my pain meds. I still felt good so thought I would be okay.

I talked with my therapist about what my psych had said. He didn’t see the point in going in except maybe learning a few things, if I went to the unit my psych wants me at. I thought about this as I left his office. I got to the corner of where his block was and the top of my foot felt like it was being smashed with a brick. Fuck! I had no water to take my one pain pill I had. I carefully walked to the station. Went down the stairs and the train was coming, a full one. Nope not standing three stops. I sat down and waited for the next one, which wasn’t too long. It was less crowded and I got a seat. By the time I got to the Square for the bus home, I wanted to cry. The pain intensified. I could have killed myself right then and there. I missed the bus by mere fractions and sat for the next one. I thought I was going to bawl as the bus was in traffic on the ride home. I was hurting so bad and I needed to get my meds at Walgreens. I honestly have no clue how I got home.

I wanted to tell my youngest sister I would be going in the hosp tomorrow but she was surrounded by her family and my middle sister and I didn’t want to bring it up. My brother in law is anti-mental health issues of any kind. I’ll text her later with it.

I did tell my mother, which is a huge step for me as I usually just leave her notes the morning of. We were talking when my psych called me. HAHA she is worried about. She asked how I was and I said not so great as it has been a long day. I then explained that I wanted to go to the unit she recommended and if I end up at the hospital I was in a few months ago, I will sign a 3 day (basically it’s a form forcing the hospital a 72 hour notice to decide if I need to stay (court will be involved), can go home, or will leave against medical advice). If I do go to the hospital and get assigned a different treatment team other than Bonnie and Clyde, I will stay as they may be helpful. There is one doc there I really like working with and he is sincere in trying to help anyway he can, unlike the Bonnie and Clyde couple. Bonnie and Clyde are assholes who after learning I wanted to leave the hospital to kill myself, then asked when I wanted to be discharged. Fuck you too! It was a complete waste of time and I won’t go back to their “treatment”. Plus those assholes put in my medical record that I have gender dysphoria so now all my medical records in this healthcare system know, whereas only my psych knew before. I am still steamed about this but once something is in the records, it cannot be removed without serious documentation and possibly a lawyer. Not worth it. I did bring it up to my psych, who was not happy to learn my PCP read her notes. He is okay with me being trans so I just hope it doesn’t make me a target of any discrimination, now or in the future. I told my therapist today that he will not be getting any releases from my long term disability folks. They do not need to know anything about what I talk to him about. Course they could just read my blog, which would be all they needed to either have me continue with their shit or not. I feel like their stuff is heavier than social security!! Once I get my newer laptop running again (crosses fingers and eyes), I plan on going to the website to see what exactly I am disabled. I am kind of in the dark as to whether or not it’s physical or psych or both. With my long term disability, it’s physical and depression, though how they determined that without my therapist’s notes, I have no clue. Must have gotten them from my psych, but even she didn’t get anything, so who knows. As long as they continue to pay me (the small amount) I am happy.

So tomorrow morning, I will be catching the first bus to the Square to go to the ER, where I hope I’ll be placed in the unit my psych wants me to go to. I am not feeling hopeful about it as we have tried to get on this unit many times and failed. I am very tired. I will be taking my night meds shortly and hopefully go to bed within an hour, if not sooner. I just hope my stupid foot pain doesn’t keep me up all night. I also hope I have access to my phone on this unit or I will not like it. I won’t be able to use the app for my PT. I can’t say that it’s been helping because my scores have been terrible when I am in high pain. Maybe that is a good thing. It will be nice to see if the scores change over time. I told my psych that PT is going to be a long process that won’t happen overnight. Unfortunately, I just don’t have the patience or the hopefulness to stick with it as my depression is so severe. Even my therapist said today I don’t look too hopeful that the hospitalization or anything will help. He is right. I have been let down so many times but usually just the change of environment has helped a little, even if the staff hasn’t been. Sometimes a hospitalization will help me see things differently but that was when I was dealing with mental demons, not pain demons. It is so unpredictable and that is what wears me out. As I was telling my mother tonight, there is no reason for my ankle to hurt doing “normal” movements that it should do. Physically there is nothing wrong with the bones, that I know of. I am still waiting to hear back about the bone scan. The tendons might be inflamed but after all the rest that I have given it the last 5 years, it should have been calmed down by now. If this is truly a nerve injury, I am screwed as there is no treatment and if anything, it should have shown some improvement by now if there was going to be any. The fact that the pain has gotten worse doesn’t help me feel too hopeful about the future. Hence why I get so suicidal in a flare up.

in a rotten hopeless mood

by Midnight Demon, posted in Bipolar Disorder, blogging, chronic physical pain, depression, mood disorders

In a rotten and hopeless mood

I had a difficult night sleeping. Every time I moved my ankle, it hurt. If I moved my foot, it hurt. And it wasn’t a “normal” pain that I feel, it was excruciating so much so that I was moaning and punching my pillow. This happened several times as I tried to sleep. I finally went to bed around 4 am or so. I woke up about 4 hours later. I called my PT and told the secretary that I wasn’t coming in due to pain and no sleep. I took some pain meds and my morning BP meds. Then emailed my PT to let her know I wasn’t blowing her off. There was supposed to be heavy rain today but it never showed. It’s really humid, which I don’t like.

I went back to sleep until around 1300 or so. My pain was down so I chanced a shower. I also shaved until my trimmer ran out of juice. Then I had to manually shave with a razor. I was sweating after I dried off. Hate humidity. I had something to eat, last night’s leftovers. I then went back to my room to cool off as I had the AC on. I was tired from the shower so tried to nap. Soon as I laid down, my stupid ankle went berserk. I was in so much pain, I started crying. My mother called at that moment and I just broke down on the phone. I was in the middle of an email to my psych as I was feeling really hopeless and suicidal at this point. Like what is the point of going on if I am just going to be in pain every single day without adequate relief? I texted my therapist and he responded with that I must be feeling frustrated and lonely. Whatever! Stupid jerk. Monday he was a caring and understanding therapist and today he is a jerk. I am so done. I really wanted to put my plan back on the table. Thing is, I might be too fat to do the deed.

My check came in while I was still up in the middle of the night. I paid a few bills. Now I got to wait till Friday for the rest of the checks to clear. I can’t touch my account until then. If I have at least $60, I am going to try and go to the RMV Friday to update and renew my license. I just hope it isn’t too early to do so and then I have to go back closer to the expiration date.