Tag: schizoaffective disorder

Writing Itch 2

by Midnight Demon, posted in baseball, Bipolar Disorder, blogging, cauda equina syndrome, chronic physical pain, depression, mental disorders, mental illness, mood disorders, Paranoia, psychache, psychosis

Writing Itch 2

I have been trying all sorts of things to get my mind of the writing itch, I even tried writing in my journal but nothing has scratch it so it calms down.

I am listening to the ball game because it usually calms me down, even though I get excited while listening. They have a new player on the team and I am excited to hear how he pans out.

I have been trying hard on what to write and I still got nothing so this might just be a rant of sorts or just a random thoughts put on a computer screen. Today I read about how my favorite actor, Wil Wheaton was having trouble finding work as an on-screen actor. He really misses being an actor. I miss seeing him on the screen. I wish they would give him a chance because I really think he is a good actor. But I guess as young actors age, they don’t find work so easily. He is busy writing, which has kept him busy. I guess it’s better than doing nothing. And I know how hard it is to write. But he is more creative than I am. I write every day but I don’t think it’s substantial. I have questioned whether what I write really helps people because I don’t get many likes like I used to and my comments are down.

I don’t know if people reading this right now have read my previous blog of the day. I am reading a chapter on the psychologist/psychiatrist Adler. He has a unique perspective of how to treat diagnosis by treating the whole person rather than the diagnosis. It’s kind of what my therapist has been doing, treating me as a person rather than a diagnosis. My psychiatrist also does the same thing. She has been the most liberal psych that I ever had, but the she has been the ONLY outpatient psychiatrist I ever had. I say liberal because she is not a drug pusher like some psychiatrists are. She rather you take less medication than more. That is why I was kind of shocked that when we restarted the Zoloft, I thought she wanted me on 50 mg and instead she wanted me on 100 mg. That is the only time that we kind of disagreed but I am glad I am on 100 mg because it is helping me cope better. It hasn’t really “cured” me of my depression, like most medications, but it does relief some of the symptoms.

I was reading an old notebook that had some journal entries about therapy way back in 2001. It talked about my therapy sessions and what was going on then. I found that despite the years, I am no better. Even though I was reading some blogs from last year, things are the same as far as being depressed and suicidal. I want to “fix” myself but have not been able to find the right treatment even though I have been in treatment. Medication and talk therapy only goes so far. I think that if I wasn’t in chronic pain all the time, I would most likely be better off. I guess you really have to be careful what you wish for because there were times before Cauda Equina Syndrome entered my life that I sometimes wish I was in physical pain than in emotional pain. I had no idea how debilitating physical pain could be. I thought it would be “easier” because there are medications for physical pain. But the daily pain that I have is so exhausting. Even with me trying to take a shower this afternoon was tiring and painful. I could barely stand for 10 minutes to shower. I had to sit for a little bit before I could shut the water off and dry myself. It was terrible. I don’t wish this on my worst enemies. I knew back then in 2000 that I had a bad back. I never should have gone to a chiropractor but I did because it was some relief. I should have stopped going when I was better but they just suck you in for more adjustments because it’s “better for your health”. Yea, right. I wouldn’t recommend them for shit now and especially if you have herniated discs in your back or neck. That is just causing trouble.

This month marks sixteen years that I have known my therapist. We met for the first time but unfortunately, I couldn’t see her right away because of insurance issues. I was so thankful that in January she was still accepting patients. I really don’t know what I would do without her. She has been my voice of reason at times, even though she can be a real pain in the ass as well. She has saved my life numerous times, by telling me she cares for me and sometimes she loves me. I know it’s a kind of love that two people have because I love her, too, though I don’t show it often. I was pretty much in love with her the day I met her. I remember a session where I finally admitted my feelings for her and the next day I saw her, she wore a mini skirt and her legs were and are gorgeous. She doesn’t wear skirts anymore, least not short ones since she is married but good god almighty, I could hardly speak that day. And I was totally like, you got to be kidding me. I got her a birthday present that I will give her at the end of the month when I see her again. Her birthday is this weekend. Got to love Google for helping me find these things about her.

There is a LOT of stuff that I have given her over the years. She must have a file cabinet just for my letters alone. I used to write to her all the time when we were seeing each other. That was when I had a car and she was local, not out in the boonies like she is today. I do miss seeing her but talking on the phone is fine. I think it’s better because I have more face to face contact with her when I see her than I did before. I still might look at the floor than talking with her but there is definitely more face contact. Before I would just spend the entire session looking at a chair or the floor or something on her rug. Anything but her face. It was too scary because I didn’t want the connection. Now that we have the connection, I can look at her without worry, though it still is scary at times.

I sent her the link to my blog again about Chronic pain and suicidality. I want her to read it before our next session because I think it’s important for her to know. She didn’t have time to read it on Monday or before today’s session. If she doesn’t read it, I feel like why bother sending her stuff. Same with the letters. That is why I don’t write them anymore because she doesn’t read them or it takes her a long time to get to them. I know she only has a few minutes between sessions but I just feel like she is missing out on my work if she doesn’t read what I send her. I rather her be late to session than her not reading my blog or letter. If I am putting effort into this thing, the least she can do is try to read it.

I counted my antipsychotic pills (trilafon) and found that I will run out before I see my psychiatrist again. I will have to email her to send another script sometime next week. I thought I wouldn’t run out but if I am taking 2 a day, I will run out. I need to take 2 to keep the paranoia and voices down. I find that it works best if I take it twice a day than once a day. I know my psych just wants me to take it once a day but it doesn’t cover me the whole day. I have tried to just take it at night because that is when the voices are at the worst. It just doesn’t seem to hold me and then a few hours later I will need another dose because I am still up battling the voices so I can sleep. I don’t want to bother her as she is on vacation. She did ask me if I was set on meds and I thought I would be okay with the trilafon but I miscalculated. 30 pills only gets you so far in two weeks. Some days I need 12 mg because the voices are so damn bad. I have been getting musical hallucinations lately that have been god awful. I hear a song over and over like it is playing but it’s not. And it plays the entire song over and over. I have tried listening to music to stop it from playing but it doesn’t help. Then there are a battle between what is in my head and what is actually playing on my MP3 player. It sucks. Least the lyrics haven’t changed so that is good. Sometimes the lyrics will tell me to do things, even if I have heard the same song a million times. It’s just odd. But it’s just part of the psychosis. And it’s worse at night than during the day. Everything is worse at night. My pain, physically and mentally, the voices, the songs, the paranoia, the delusions. Everything.

Go Boldly!

by Midnight Demon, posted in Bipolar Disorder, blogging, chronic physical pain, depression, mood disorders

Go Boldly!

The Canadian Star Trek stamps that I ordered last week finally came today. I am so excited. I love collecting stamps from other countries. I have a beautiful poster of Mexican stamps that would go nicely in my room but I never hung it up because I was too lazy. I am thinking more of setting up shelves in my room for all the books that I have because I don’t really have the space for bookcases. My walls are pretty bare.

I got out today, finally. It was a challenge because I was really tired after therapy but I pushed through it, got dressed and caught the bus. I had to go to the bank to make a deposit. My mother thankfully gave me a few bucks so my checking account doesn’t go in the red. I am still debating on cancelling my Amazon Prime membership then reinstating it later this month when it’s closer to my check coming in. I really like the 2 day free shipping option. Though I might just pay for the year and be done with it. I don’t know. I will decide in a few weeks which way to go.

I got the reading done and actually read more than 10 pages because it was a very interesting read. I am learning about Adler’s psychology and it’s interesting that he thought of “holism” back during the times of Freud. He wanted to treat the whole person, not just the diagnosis. His concepts are not that far off and more psychology people are into this type of psychology, an integration of mind and body kind of thing, though Adler didn’t exactly put it that way.

I had 5 shots of espresso in my soy latte. It was a bit strong but it did the trick. I am wide awake. I feel like I have energy so I might continue reading what I started as I do have a deadline to meet. It’s kind of exciting to be reading this knowing that I have a deadline. I feel like I am back in school or something. I know what I am doing might now mean much to the person that I am doing this for, but it means a lot to me to be learning something that I normally wouldn’t read, which is why I picked Adler over Freud. I do hope that I get this book when it is published but I will mostly likely buy it if I don’t get it. I am getting to be a bookaholic. I just seem to “buy” the books more than read them. Just like my composition notebooks. I buy them to have them, not really write in them, LOL. Which reminds me, school season is on the way so I wonder how many I will buy before September…

I had therapy today. I asked her if she knew anything about Adler and she said her memory was faint on the subject. It was a boring session. We didn’t talk about anything that we didn’t talk about the other day. Though we did talk about her upcoming birthday. She didn’t want to talk about it but I had to because if she wasn’t born, I probably wouldn’t be here or worse, be talking to some other shrink. She always seems to think my birthday is special so I kind of want the same for her. I still have her birthday gift which I probably won’t give her till I see her next. I thought about mailing it to her but I think that is kind of impersonal. I told her this weekend is Peal Jam weekend as they are playing at my favorite ballpark, Fenway Park. I wasn’t able to get tickets because they sold out in minutes, not that I had the money to begin with. It would have been great to go though. So I will have my own concert in my room, blaring my favorite Pearl Jam songs. There is just one album that is missing from my Pearl Jam collection. I have no idea when it came out. I think it was the album before their current one. It’s on my list of CDs to get. All my Pearl Jam albums are CDs except for the current album, Lightening Bolt. That one I bought digital, which I could make as a CD, if I really cared to.

I really can’t wait to show my sister the gift that I bought my brother in law, which is the Canadian stamps. It’s the first time buying anyone a Christmas gift in a LONG time. I just hope I don’t misplace it between now and then or put it in a “secret” spot and forget where that spot is. That would be terrible.

Random 449

by Midnight Demon, posted in Bipolar Disorder, blogging, chronic physical pain, depression, mood disorders

Random 449

Last night I almost had a meltdown again. I couldn’t sleep. My brain was way wired and the songs in my head were so fucking loud. I emailed my psychiatrist because I didn’t know what to do. I clearly explained what was going on with the voices and the pain that I have been experiencing. I told her how I felt about having to deal with both illnesses and feeling like a junkie (the latest word the voices are telling me). I just wanted some reassurance I wasn’t a junkie because of all the meds I take including my pain meds. She wrote back a little while ago and said that she understood and that I wasn’t a junkie by any measure. That helped, it really did.

I meant to go out today but when I woke up, I didn’t feel like it. I slept the entire afternoon. If my mother didn’t make dinner, I doubt I would eat something. I just have no motivation to do a damn thing but lay my head on a pillow and sleep. I had a rough night and I knew I would feel like shit when I woke up. I could have gotten dressed anyways and made it out to Starbucks. I really wanted to start the chapter I need to read and I figure if I read at least 10 pages a day for the next 6 days, my mission will be complete. But I got to really make some effort in reading it. I also need to print out the email that tells me what I am suppose to critique in this chapter. I hope to do so tomorrow.

My sister called me this morning to ask how I was. I told her I was fine. She was at work and I didn’t want to worry her. And besides, what good will it do? She can’t do anything for me. Things will just work out on its own. I think I might have to go in the hospital, eventually. But I got to wait for the pain to quiet down some. I don’t know when that will be but I know that it needs to be soon if I am going to have any sanity left.

I totally overspent this month on my budget. I forgot to budget for my transportation cost and now I am left with only a few dollars for the month. I am suppose to get a check soon from the state and I hope it’s sometime this month. I bought some hamburger and hotdog rolls that are going to go to waste if I don’t buy the meat for it. I hate wasting bread. Unfortunately, when I placed my online order, they didn’t have my hotdogs. I was so mad. They credited me and all, but I got the rolls but no hotdogs.

If I am a junkie, it’s to Oreo’s new Oreo Thins. It’s just the right amount of cookie and cream. Only thing is I can eat a package at time. And the packages are small to begin with. I think that will be my snack as I haven’t had one all day. I will have some soy milk with it. I have been drinking more soy milk than regular milk lately because my bowels don’t like it much and I don’t have to worry about going unexpectedly.

Harry Potter and other things

by Midnight Demon, posted in Bipolar Disorder, blogging, chronic physical pain, depression, mood disorders

Harry Potter and other things

I made my monthly trip to Harvard Square to pick up my copy of Harry Potter and the Cursed Child. Just as I thought, it was a script of the London Play that opened up July 30th. It will be interesting to read as I never read a script before. It’s in my pile of “to read” books.

While I was waiting for a friend to get back to me on whether or not we could meet up, there were a ton of police cars racing toward the train station. I have no idea what transpired in the minutes it took for me to walk to the bookstore. I saw that they arrested someone and was being attended to by EMT personnel. Maybe a fight broke out or something. It didn’t affect train traffic, thank goodness. It was all outside the station.

My friend just got back to me. He is booked till late tonight. That’s too bad. I am sure I will be back in the square one of these days so our schedules will match up to meet.

I got really tired as the humidity was bad. It was my first day out in a few days as I have been sleeping almost non stop since Thursday. I had therapy in the afternoon and was pretty alert during session. We talked a little bit about how much the pain is draining me and that I don’t get that much support around my medication issues. My family thinks I shouldn’t be taking anything for my pain or that there should be some magical cure for it. That would be nice but unfortunately, the damage has been done and there is no undoing it.

I did tell my therapist about my sleeping and she said that it could just be that I am exhausted both mentally and physically from dealing with it. I told her the most I have done is taken a shower during the day or afternoon. I took one today and it wasn’t too bad. It woke me up some more. I really wanted to go to Harvard today even though by the time I got to my Square to get coffee, I just wanted to go back home. The bus was there as if taunting me. I walked by and proceeded to Harvard. Also while waiting for my friend to tweet me back, I went to Starbucks and got something to eat. I was kind of hungry as I didn’t eat anything all day. Then when I came home, my mother had a chicken salad. It was good and light. Prevented me from having to cook. I might make something later as those were the only things that I ate.

My therapist didn’t read the blog I sent her so I had to look up what blog I sent her as I didn’t remember. I also don’t remember writing the blog as it was late at night. I was sort of reading it while on the phone with her but it wasn’t registering in my brain. I still have no idea what I wrote. It was about dealing with chronic pain and suicidality. I told my therapist about how I felt about my medication and how it’s really fucking with me right now. I hate being on it but what choice do I have? I hate being on all the meds I am on but again, what choice do I have? And the voices don’t help because they want me to either not take anything or take everything. This is poison, this is okay to take, that isn’t, this is. It’s always a constant battle going on in my head. Most of the times I win, but sometimes I lose. Then it’s more medication to control what I have lost. Sucks. Sure the pressure would be easier if I was in the hospital. They would be controlling my meds but they don’t know how I take my pain meds at home because it’s not written the way I take it. I have tried to get them to change it but it’s no use. I never run out because I still use the same amount of pills a day. I just take two pills instead of 1 twice a day. Sometimes it is more than that but it’s rare. My ex-PCP knows this because I always was straight with him about how I take my meds. But the NP doesn’t ask and I just don’t offer. Then there are days when I am only taking two pills a day. It all depends on my pain level for any given day. But the chronicity of it is what is getting me down.

You would think that after dealing with it for so long (4+ years), I would be used to it by now. I’m not because I could be having low pain like right now and then my pain jumps to 10 in an instant. I could be resting for hours, lie down and wham, pain out of the woodworks. This is why I try to take my pain meds either before my night meds or after because I never know what level pain I am going to be in. That is also hard for me to be in the hospital because I could have no pain, high pain, or low pain. It’s difficult to gauge. And then they are only give me one damn pill and that just pisses me off. I also need to time it right so I can get it on the same shift as day or evening. Only exception is if I wake up in the middle of the night in pain. Then I got night shift to give me my meds. It just sucks.