Category: chronic physical pain

walking in the mud today

by Midnight Demon, posted in blogging, cauda equina syndrome, Chronic pain, chronic physical pain, CRPS, depression, mood disorders, suicide

Walking in mud today

I had an appointment today with the behavioral psychologist. I didn’t want to leave my house as I had a bowel accident soon after waking up. I lost control and was feeling shitty, no pun intended. I felt really down and anxious. I left when I had to, remembering that I had to go the opposite way I go for my medical and therapy appointments. My mother needed something mailed so I decided to take the block to the main street rather than walk to the end of my street to cross it. I felt like I was walking in mud the whole time. My legs felt so damn heavy I didn’t think I was ever going to reach my destination. I wasn’t short of breath or anything. I just was so damn tired. To get to this appointment involved a lot of walking and by the time I reached the psychologist’s office building, my right ankle was tender and tired. The appointment went well. I have one more appointment with him and that will be our closing one. I won’t have to see him again after that. My feet will be glad.

I came home and basically collapsed. I was hungry so I had the peanut butter and jelly sandwich I had taken out of the freezer. It was the Smuckers kind that was all ready made. I like them because they are already made and I don’t have to stand to make a sandwich. I then went up to my room and tried the past several hours to think of something to write. I had the title, which usually is my stopping point. I was thinking of the blog since I was walking in mud but sort of lost my words once I wrote it out. I had some things I wanted to tell my neurosurgeon but I forgot those, too. His nurse practitioner had called me before my appointment with the psychologist and told me losing my bowels was more evidence I had a tethered cord. But she wasn’t worried about it. Fuck. I have to suffer another five fucking weeks? I don’t want to be incontinent with my damn bowels. I want to ask the neurosurgeon if waiting is a good idea. I can’t imagine that as my nerve damage is getting worse that waiting five fricken weeks is a wise decision. I hope the doc reads the message and not the unit secretary or that NP I spoke to today. These nerves are fragile and I just feel like if I have to wait, I am not going to get function back. I really don’t want to cath and be in diapers the rest of my life. I will end up killing myself if this happens.

Saturday blog 08022020

by Midnight Demon, posted in blogging, Chronic pain, chronic physical pain, CRPS, depression, mood disorders, recurrent major depressive disorder, suicide

Saturday Blog 08022020

I didn’t get much sleep last night. I went to bed around 5 and then woke up around 0845 to pee and I have been up since. I got my haircut but I have yet to make my dirty gravy that I want to make. This is in preparation of my upcoming surgery. I want to have some gravy so that I can make some quick meals when I need them. I plan on making some burritos but I got to get bags that are freezer quality. I have to buy the bags my next pay period.

I was telling a writing friend about the trouble I am having with this essay I’ve been working with. She said to start over. That isn’t a bad idea. Or I could just cut out the parts that are gloomy. But I feel that if I am able to write what keeps me here then the bad stuff will be minimized and counteracted. Not sure if that is the right word or not but works for now.

I am so damn tired. I wanted to take another shower as I had my haircut but I am hurting too much. Ankle and foot are smarting big time and I know standing for 10 minutes isn’t going to help matters. I really don’t want another painsomnia episode. I also had some delicious mac and cheese my sister made. I know that is making me tired as well. I hope I can sleep at a decent hour and not wake up in the middle of the night to pee. That is the sucky part of having a bladder that is dysfunctional. I hate that I am having to empty every couple of hours because I get the urge to go. I am not sure if this is “overactive” or not. My uro wants me to be on a medicine to calm the bladder so that it isn’t crazy but I still found myself going every 2-3 hours which drives me crazy. I am going to talk to her about it when I see her on Wed. I just hope the appointment doesn’t go longer than planned because I rescheduled my psychopharm appointment to an earlier time that day. The uro nearly always runs late. But she is thorough so it is definitely worth waiting. But if it comes to an hour late and I still haven’t been seen, I am rescheduling because I don’t want to miss my psychopharm appointment.

I just got an inkling to call my father as I haven’t heard from him in a while. He has been dead nearly four years now. I miss him, something I never thought would happen. I was not happy with him at all. He abused me so severely I am still in therapy for it. The new therapist hasn’t heard his tales. I will bring it up sometime during next session. I am sure she will “love” him.

news broken and…

by Midnight Demon, posted in blogging, cauda equina syndrome, Chronic pain, chronic physical pain, CRPS, depression, mood disorders, recurrent major depressive disorder

News broken and…

I broke the news about my having surgery and my mother burst into tears for god knows what reason. Even after her breakdown she didn’t know why she cried. She obviously doesn’t want me to have surgery. She doesn’t understand and my youngest sister tried to get her to. I don’t know how much of it was because she couldn’t hear or just couldn’t tolerate talking about it. My middle sister was adamant I was being selfish because I didn’t think of my aftercare. She doesn’t want to take care of me so I will have to have home services if I need it. Fuck. So will have to set those up as well as meal plan as I will be on my own and as much as I like Ensure, I really don’t want to be on a liquid diet while I recover. I will have to make sure I order some. I already have a $200 grocery tab going. Not sure I will have $40 for a case through Amazon.

I just googled the surgery and it is approximately four hours or more long. Fricken crazy. I wonder if I will have to shave my back. I got a lot of hair back there. The testosterone has made me so damn hairy. I hope I will be okay with everything. My sister was thinking of all the disasters that could happen. Thanks but I am already imagining walking in the hospital and being wheeled out. I have no idea what will happen if that happens. I might have to go to a rehab hospital for a bit but the house is not handicap equip and unless they give out loans to make the house accessible, I am not sure what would happen. Granted we are adding rooms to the house so I could take one but I would need an elevator to get to the second floor or some kind of lift.

I went to Starbucks today to try and write an essay and it didn’t happen. I got into watching traffic and social media. I should not turn on the WIFI but I did and well, 145 words got written. That was it. On the way home my foot acted up and two hours later I got the worse pain spasms ever. I was screaming they were so fricken painful. I just wanted to die. The voices started to ramp up during this time so in between screams I am hearing orders to kill myself. I couldn’t move so I just sat there being tormented. Once the pain meds kicked in, I was able to go downstairs for dinner. The voices are still murmuring in the background but not as troublesome. God they were so fricken loud. One of them is still trying to break through but I am ignoring him. He is eventually going to get pissed at me and I hope not because that will mean I have to listen to him and that will mean hospitalization. I wish I could get hospitalized without my family knowing where I will be going. Sucks I have to tell my mother where I am all the fricken time. I am 44 I think I can handle shit on my own like I have since I was 15.

Today is the official day I got diagnosed with cauda equina syndrome. You can google it or check out my blogs about it if you want. I am not going to say more about it. Because my psychiatrist and I first met some time this month, I think today is perfect to pick for our anniversary. I just sent her an email with my thoughts on it. Figures I would have a flare on my left ankle/foot on this day just to spook me. Having this kind of pain, numbness, and loss of function is what sent me to the ER, on my psych’s urging. She knew then something was terribly wrong and then when the residents called her, she told me at 4 am that I had this horrible condition. I still am and never will be 100% recovered. This is why I am hoping against hope that my surgery doesn’t have complications and that I can walk out the door instead of being wheeled.

Sunday Palindrome International Day 02022020

by Midnight Demon, posted in blogging, Chronic pain, chronic physical pain, CRPS, depression, mood disorders, recurrent major depressive disorder

Sunday Palindrome International Day 02022020

I am a number nerd. I don’t know how I became one, probably because when I was little I wanted to be a mathematician like the show I was watching that right now I cannot remember. It was a spin off of some detective cop show called Dragnet. The math show was called Mathnet and it was really interesting. I think it played for three seasons and then it was cancelled. I felt bad because I really loved this show. So today’s date, 02022020, is an International Palindrome because both US and Europe write today’s date the same way for the first time in forever.

I haven’t been able to find out if that little rodent called ground hog saw his shadow or not today. They always bring about the movie Ground Hog Day. It is a movie that I have not seen, mostly because I am not a Bill Murray fan. I did sort of like him in Ghostbusters. I tolerated his presence.

Today I was going to try and make room to have access to the alcove in my room. Only problem is that my foot and ankle bones are being crushed and hurt really bad. Some pressure fluctuations are going on and my foot isn’t liking it one bit. Pressure is 29.34 right now. I am going to keep track of it because this bone pain is horrific. I just want to die right now and I am wondering why I cannot act on my thoughts. It’s always a slippery slope. I feel like I should be in the hospital but with the catharizing and upcoming neurosurg appointment, I really can’t be in right now. I was feeling hopeful earlier as I sent off an email to my psychiatrist to see if she is still going to write a letter saying I can have top surgery. I really would like to have these suckers off in the fall of this year.

I was having a weird something going on last night. In this something I was imagining telling my therapist how I feel about her. It came out in a sarcastic tone and then it got serious and we spent time talking about whether or not to continue. I have developed feelings for female therapists for nearly every one of the 14 I have had. Only two were male in this psychotherapy stuff, not counting group therapy. My therapist is around my age (so she says). She is cute and funny and sarcastic as all hell. She also has a caring side but doesn’t show it that often, which annoys me. She doesn’t want me to depend on her and I get that but I really need to know that she cares or this is just not going to work. I understand she wants to work with “this population of people” but that isn’t the same as knowing you give a shit about me. I can’t work with someone who doesn’t care because I feel it is worthless trying to. I’ve had my doubts about her since the first day I met her. I just don’t know if she is the right one or not. Yes, it has been seven months we have been working together. There are qualities about her that I really like but if I don’t feel cared for, then I don’t think it is worth it. I’ve never had a therapist this straightforward before. She doesn’t tolerate my “I don’t knows”. Instead of saying, “yea you do” she will say think about it then answer whatever it is that she asked for. I am very quick to run away from my feelings and she knows this. Trying to stay with my feelings are so damn difficult. I want to feel blank most of the time because it better than feeling turmoil. She challenges me and I challenge her with my quick runaway from feelings. She always brings it back to me when I run away from something. Lately she has been catching on so will stop the maneuvering away and that is the roadblock. I will shut down and it is so hard to go back to that place I was just a few seconds ago. I will also do this while blogging. Feelings will come up and I will take a break by going on the internet for a long while then come back to the word doc and be like where the hell was I. It is then hard to get back into writing the blog because I lost the feeling for too long. I have been trying not to do this, to stay with it and keep focus like my therapist is slowly teaching me. But it is so hard because I always want to run away. I don’t want to feel.

I need a nap but I am not sure my pain will let me. It’s 3pm right now. If I get at least a half hour’s rest, I should be good. I really need to lay down as my back has been hurting as well. Not horribly so but just annoying. Also worries me because I think I am going to have back surgery. I think the pain meds have been blocking my back pain so I don’t know how bad things really are aside from the bladder issues. I am so damn nervous. I might be blogging about this all week so if you are a daily reader, now you know what is going to be written about every day this week or whenever I post my blog.