Category: CRPS

yet another painsomnia night

by Midnight Demon, posted in Bipolar Disorder, blogging, chronic physical pain, CRPS, depression, mood disorders

Yet another Painsomnia night

I didn’t go to sleep till 5 am this morning. I was up all night in pain. My damn foot and ankle were having a contest as to who was going to hurt me more. Around maybe 4 I decided to put on the ace brace and noticed my foot was really puffy looking, probably why it was hurting so bad. I then decided to have some crumpets because I was hungry. I then tried to sleep.

I didn’t sleep, maybe 4 hours. Then I was a hungry maniac. I had more crumpets, waffles and then some chips with dip. I had two glasses of mango orange juice and a cup of tea. I was hoping the tea would keep me up but nope. I went up to my room and slept for a few more hours. I woke up because I had to pee really bad. I went to the bathroom and it was like I could not stop peeing, at all. It just kept flowing. After like 10 minutes, it stopped. I went again about a half hour later. My bladder hurts so bad from the strain. I have no idea what is going on. I have no idea if my pain meds or the baclofen I have been taking is affecting my bladder or it is just my nerves going berserk. Either way I need to see a urologist but I am so scared of the testing involved. Urodynamic testing is not fun. They use a catheter and fill and empty your bladder. Then they fill it again and you need to void in front of a nurse. Last time they filled me up and I could not pee for the life of me. It was an hour or two before I was finally able to void. I was on serious pain meds at the time so they couldn’t tell if it was neurogenic bladder or retention caused by opiates. I am scared this is what is going to happen again, which is why I have been avoiding having this test done. Not to mention that I have a trauma history and it freaks me out. I had a uro that I was seeing at another hospital, but every time I set up the appointment, he got called away to an emergency. After the third time, I didn’t reschedule.

My back was doing somewhat better, until I sat down on my bed with the bunched up blankets under my butt cheek. That flared me up again. I just took some ibuprofen. Any kind of muscle thing and I am hurting for a while. I hate it. I have to be so careful the next few weeks.

My sister has been calling me a nanny because I take care of my niece while she is out. I think it’s so funny. She wants me to check on her and make sure she does her homework. I just made a cup of tea and wanted to listen to the game. Guess I will be going to watch it on her big screen TV. Being a nanny has some perks!

I hope I can sleep tonight. I really don’t want another night of horrid no sleep. I know last night was because I took my night meds late and I was sitting for more than three hours with my family. Actually, sitting more than three hours anywhere will cause me to have a flare at night. There is nothing I can do about it. Just happens.

Easter Sunday 2018

by Midnight Demon, posted in Bipolar Disorder, blogging, chronic physical pain, CRPS, depression, mood disorders, suicide

Easter Sunday 2018

I woke up to my fricken med alarm around 645 this morning. It scared me out of my sleep and all I wanted to do was throw my phone against the wall. I shut the thing off and dutifully took my meds. My back was so bad. It hurt more than my CRPS pain in my ankle/foot. I had to use the bathroom and it hurt to move. I decided to cancel therapy for tomorrow as I wasn’t sure how my back was going to be. I was sure that just walking to the office would not be a good idea. When I came back to my room, I texted my therapist. I then got my heating pad and adjusted it a few times to get the heat where it hurt, which was mostly around my hip. I had used a tennis ball to try and massage it but the pain was so intense. I know I need to do it a few more times to get the knots out. I am lucky it is just muscle pain or it could be a lot worse.

I fell back to sleep. My sister was having Easter dinner at 2. I think I woke up a little after 1. My pain was a little better but my ankle was throbbing. I heard my mother make her way downstairs so thought the food must be ready. I followed her after gobbling a few chocolate chip cookies for an appetizer. My brother in law’s family wasn’t there yet. The time my sister told her to be there and the time my brother in law said was off by an hour. I have no idea why he said 3 pm as we never have dinner that late. That caused a little argument. Just what I wanted to hear, fighting on Easter.

The in laws arrived about a half hour later, which was good because I wanted to eat. Everything was good and peaceful. I saw my nephew and his sister, who I haven’t seen since Christmas. They don’t come over much or call. I might get a text from them every so often. I still can’t believe my nephew is going to be 24 this year. Seems like only yesterday I was holding him in my arms and playing catch with him. This caused him to puke on me for at least his first two years. I never learned. I was just happy to play with him. He often was like Dino the dinosaur in Fred Flintstone. I would come home from work and he’d promptly attack me with hugs. Later it was just to grab my baseball hat so I could chase him.

I spent most of the afternoon and evening down my sister’s. My back was surprisingly cooperating and so was my foot/ankle, though it was still throbbing. It hurt to go from a seated position to a standing. My aunt came over around 6. She saw a stray cat and wanted to take it home as it was malnourished. It had been living for some time on my sister’s porch for at least a month. I guess she told my cousin and he talked her out of it. Now my brother in law will be calling some cat shelter for it. That really pissed me off as the cat would have had a good home with my aunt.

I was late in taking my meds because I was downstairs. I hope I am not up all night. I did have a cup of caffeinated tea. For some reason, having tea late can either not affect me or will. I am tired so hopefully I will sleep.

I read twitter before writing this blog. There was a tweet that someone wrote that got my attention. It was about chronic pain and people being forced off their pain meds because their doctors are no longer prescribing it for them anymore. One tweet read that they were planning their suicide. I felt that person’s pain because my thoughts are the same. I am also planning. I don’t know if I will go through with it, even though I have given myself a date and some time to actually plan it. Not saying that it will happen the way I do plan it but the thought is there. Now that the CDC is admitting it falsified its data for their proposed guidelines, hopefully that will make doctors treat patients the way they should be treated. I don’t have hope that I will ever be treated for my pain because I have a psychiatric illness. I think that is why my PCP and pain docs are staying away from me like a 10 foot pole. I can’t prove it but it makes sense. I think that is why my PCP is in constant contact with my psychiatrist, which is kind of leading me not to trust my psychiatrist as much. I know what I tell her is confidential and all but my paranoia gets the better of me. I don’t know if she tells him how suicidal I have become. I have no idea what she writes in her notes about me because he reads them, even though he is not supposed to. I am too scared to request my records from her. It would be easier if I had access to them when I was hospital employee, but now I need to fill out a release like every one else. Plus I am not so sure reading them will benefit me in anyway.

Shitty cold day but no snow yet

by Midnight Demon, posted in Bipolar Disorder, blogging, Chronic pain, chronic physical pain, CRPS, mood disorders, painsomnia, physical pain

I slept like every hour until I had to get up to send my niece off to school, starting at 3! I was so tired. My mother called me twice and I told her I was sleeping. Then she left the stupid kettle on and the noise woke me up. She went to the bathroom after she turned it on. Pisses me off when she does this because there usually is hardly any water in it. She doesn’t fill it like I do. So I was grumpy and she got mad. I made a burrito, just one as I was hungry and wanted to go back to sleep.

While I was sleeping my phone kept going off. The LGBT doc office called to remind me of my appt. I don’t know Why they have to call when they text and email me. Might be a settings thing. Then my mother called again to say dinner was ready. I wasn’t hungry, I wanted sleep dammit.

My ankle and foot have been going back and forth all day as to who is going to hurt me more. Snow hasn’t started yet. I wish it would. Maybe I would get some pain relief. I hope I will be able to go to the pharmacy to get my meds filled. Depends on how bad the snow is and if it is walkable. Some places have already called off school.

In my painsomnia state, I post a pic of my scars on IG. I have no idea why I did it. I might delete the pic. I had started self harm 27 yrs ago this month. I started when I was 15 and stopped around the age of 24, when I met my ex therapist. I was slowly stopping it before I saw her but the urges are tough to go away. I still have them but I cope better with them. It is not frequent. I sometimes think I traded self harm for being suicidal all the time.

I bought a new book called Helping the Suicidal person. I was supposed to start it last week but never did. I’d like to review it. We’ll see.

Gender Dysphoria

by Midnight Demon, posted in Bipolar Disorder, chronic physical pain, CRPS, depression, transgender

I am having a hard time right now. My brain is playing games with me. My stupid female breasts are hurting me a lot tonight. If I didn’t know any better, I’d say I was going to have my menses soon. They weigh so heavy for some reason. Maybe it is because of the pain.

I can’t decide if I am male or female. I know I am a male but all my body parts are female. I am so distraught. It is making me tearful. I have no one to talk to that understands. I have one friend on FB that is trans ftm. I only met him because I met his mother through a mutual game we were playing at the time. Weird how things play out.

I know the pain will pass, eventually. I just hate it as it is just a reminder of who I am not.

There is a homeless guy by the Starbucks that I go to. Every time he sees me he misgenders me. Lately he has been calling me “lady”. Screw you pal, now you aren’t getting my extra buck when I have it. I hate my body so much. And having these painful things on my chest doesn’t make me like it any better. I hate being trapped in this shell.

I see the LGBT doc next week. I don’t know how it will go. It will be our 2nd appt. I need a minimum of three before being considered for hormone therapy. So frustrating. Wish I could have top surgery tomorrow and be done with these fuckers that hurt. Like I need more pain in my life. Just hate myself so much right now. I wish I was dead.