Category: disability

On phone blog: darkness has returned

by Midnight Demon, posted in Bipolar Disorder, blogging, Chronic pain, chronic physical pain, CRPS, depression, disability, mental disorders, mental illness, mood disorders, physical pain

I’ve been down since last night. With not knowing how my allergic reaction was going to go, I asked my mother to check on me before she went to bed. I was still up when she came upstairs. She didn’t check on me and I felt so hurt. I really think I don’t matter to her anymore. She just expects me to give her half my check for the mortgage and that is all. Maybe go to the store for her for a few things but that is it.

I wish I had a car so I could leave. I would just drive off and not sure where I would go. I just feel like no one cares in my own family. My sister just expects me to go up and down the stairs like they are nothing. I am tired of being used essentially. They only call or talk if they have a problem or need something to be done.

I feel so down. Going to tell my mother no party this year for my birthday. Fuck them. My day so I don’t want to be around them. Maybe I will have a virtual party with my online friends. That will be cool.

I haven’t done anything today but stay on bed. I really haven’t felt well. I had to take some benadryl because my throat was feeling funny. That made me tired so I just stayed in bed all day. I woke up around 2 freezing. I don’t know why. It was 22 degrees out but I had a long sleeve shirt and blanket on. I put on a heavier shirt and my heavier Red Sox throw. Woke up a few hours later sweating. Can’t win. I should open my window so I can get some air. I just don’t feel like moving stuff to get to the window.

I have therapy tomorrow. I sent him the link to my blog and now I regret it. I didn’t think. Oh well, maybe he won’t think to read it that often. I got off about him a lot here. Hate to think my space for venting is now compromised.

I wanted to make coffee using the Keurig but decided not to. Then I found out my sis bought a k-cup holder. Shit. I bought her one, too. If she doesn’t want it, I will just return it.

I never showered today. I never had the energy to do it. Maybe tomorrow. I bought some new soaps from a friend that makes them. Both are made with goat milk. One is lavender and the other is rose clay. Smells so awesome. My mother took the hand spray shower head out so now we have a regular shower head. Boring. But I think it will be better. My mother always gets what she wants. I just hope she keeps the seat clear, or i will fight her on it. I need the seat because I sometimes do need to sit while showering.

I am so tired and feeling shitty. Was talking to a friend last night. She kind of got on my nerves because she is so interested in my transition and how my mother is taking it. None of her damn business. I don’t know why I tell her. My mother doesn’t know I am taking hormones. She doesn’t need to.

That is the other thing. My sisters haven’t asked one thing how it is going. They still don’t use the right pronouns. They will call me G at least. But if my mother doesn’t get it, they will say my birth name. I am so frustrated with it all. I rather be fucking dead. Just can’t handle another depression and my family not accepting me as me. I’m so tired of it. Tired of being in pain, too. Just want to end it.

Another blog by phone: doctors suck when they don’t know what is wrong

by Midnight Demon, posted in Bipolar Disorder, blogging, Chronic pain, chronic physical pain, CRPS, depression, disability, medical, mental illness, mood disorders, physical pain

Once again I am a ping pong ball between my psychiatrist and PCP. He doesn’t think my feeling crummy and fatigue has anything to do with my sodium levels even though I explained to the jerk that when I was 2 points lower I felt sick. Now I feel sicker because the damn sodium is lower! He has exhausted all medical tests to cause this so I am going with my fucking gut this is due to my mood stabilizer lowering my sodium levels causing this. So I am decreasing the dose by 300 mg. I see my psych tomorrow and I hope she won’t fight me on this and just repeat my tests in a week to see if there are changes.

The asshole wanted to discuss this AFTER my appt. No, not happening. Because you know what is after tomorrow? The weekend! Nothing will get fucking done until Monday and I am sick of feeling like crap so this is happening tonight. Fuck him. I want to see my therapist again without it being a big fucking ordeal. It is bad enough I get flares after I see him but to be totally wiped out the day after? No. I am just not letting this happen again. I waited 8 fucking years for the CRPS diagnosis. I am not waiting another week of back and forth to figure this out. I know it is the med. And if I am wrong, then I am wrong and we go from there. I am willing to be unstable to stop feeling like shit. It is my fucking life last I checked!

The pain program called me this morning. I had talked to them Tuesday saying I was sick and didn’t know when I was going to feel better. I guess they felt I already had too many cancellations so they discharged me. Thank god. I didn’t want to go anyway but was forced by the pain doc because I felt they wouldn’t prescribe my pain meds otherwise. I also went because my PT felt it was a good program but the program changed because they were not doing anything she said was available. I just had OT (occupational therapy) and physical therapy. I honestly felt the PT didn’t understand CRPS. I really didn’t. And like the PT I was seeing, this PT’s exercises caused flare ups. And it wasn’t the muscles that I was stretching but my damn foot because I had to exert pressure on. I won’t be going back. Ever.

Today I felt a little better but after I got my haircut, did some shopping, I was fatigued again. I felt like napping but it has been so hard to wake up. I hadn’t eaten anything all day except for 4 cookies with my coffee until my mother made dinner. I didn’t keep my fluids to 1L. Only because I haven’t had a shit in a week. I am so backed up it hurts. I took Miralax today and felt stuff moving but still nothing. Going to take some more fiber pills and hope for the best at this point. Just hope I don’t get colon blow.

Ah, what is a little psychosis and a lot of anger

by Midnight Demon, posted in Bipolar Disorder, blogging, Chronic pain, chronic physical pain, CRPS, depression, disability, mental disorders, mental illness, mood disorders, painsomnia, physical pain, psychosis

**may contain errors as I am on my phone**

My day started ok. It was raining pretty hard so I canceled PT. I tried to reschedule but there was nothing open the rest of the week.

Then FB had this you got 4,000 like thing. The 1st pic was my legal document stating my legal name change. I decided to post it to my support group for CRPS. Everyone was supportive except this one person who thought I should give my mother respect and she went on about my mother’s feelings and shit like she knew her. It really upset me and made me angry. I didn’t respond right away. I didn’t think I would but a few hours later I did. I told her you don’t know anything about my mother so stop pretending that you do. I didn’t say nothing more. Then she responds with “I didn’t mean to offend you” bullshit. I didn’t read what she wrote. I was seeing red. My damn foot was hurting me. And that made me more angry.

I kept on having bursts of anger throughout the day. Other than this incident, nothing else was going on except pain. I tried to nap. Pain got worse. It was making me to angry. Then I was reading Twitter and the stuff about the SCOTUS judge nominee who is being accused of rape just flipped me out. Some people were on his side. Others were like why she wait so long, and other stupid shit that I can’t remember now. As a sexual assault survivor, it made me so fucking angry. And what really was the killer that it wasn’t just men saying this. Some women were too. Are you kidding me?

I couldn’t escape the fight over who was innocent and who was guilty. In the end, the vote was postponed, which I was happy about. Now the accuser is facing death threats and is in hiding. She has to make an appearance for something but no one has heard from her. I hope she is okay. That really ticked me off that these high profile cases get death threats and then people wonder why women don’t come forward with their attacks.

The third attack that caused me to be angry was a fucking idiot that didn’t know there was a difference between addiction and dependence. This person was adamant about it being the same thing. WRONG!! This person attacked anyone that said different. I have no idea if this was a troll or not but I didn’t respond. It just fueled the fire that was burning inside. I honestly felt like cutting to release some of the tension. I texted my therapist about what to do about this anger and he said we need to talk about it. What? Talk about being angry? First you want me to be angry and when I tell you I am we need to talk about it? Are you fucking kidding me?? I am ready to rip someone’s head off and you want to talk about it? Fuck you.

More gas to the flames.

I talked to my BFF. She was mad at her husband for doing something without her permission. I am on my friend’s side. He shouldn’t have done that. It helped me to calm down a bit. Her grandkids were on IG and OMG they are so fucking cute. I want to cuddle them. I felt a little bit better afterwards, until the fucking Sox blew the fucking game with the snakes! After the loss, I felt weird and was hearing male voices. I felt paranoid and anxious. I really feel like i am being spied on. I was tempted to call my psych but it is late. She probably would tell me to take an ativan and then call her tomorrow/today. Meds are kicking in. I had to take some neurontin because I was having an L shaped pain and it was indescribable. It drove me nuts. I felt like my head was spinning. I need sleep. Then I saw an article saying if you have less sleep, it could lead to Alzheimer’s. I have it on both sides of my family so I am screwed either way, if I should make it to old age. I just hope this psychotic episode goes away. Male voices scare me as they aren’t my regular ones and usually land me in the hospital. I won’t go though. I don’t want to go back. They screw up my meds all the time and I finally have them all straightened out.

I have therapy tomorrow. Hope I get angry with the jerk.

Foot is driving me nutso!!

by Midnight Demon, posted in Bipolar Disorder, Chronic pain, chronic physical pain, CRPS, depression, disability, mental disorders, mood disorders, painsomnia, physical pain, suicidality, transgender

I’ve been trying to sleep since 2100. My mother wasn’t up in her room yet. I called to see if she was ok as with the AC on, I can’t hear things. She was okay. Her sugars had stabilized.

I got a blog that I read and wished I didn’t. It was about the lesbian protests or something like that in London during the Pride parade. What gets me is that anytime transgender is mentioned, it is almost always having to do with transwomen. I know I cannot be the only transman in the world. I know one came out in the Navy. I know there is another fellow in Oregon. We talk occasionally. We can’t be the only ones out there. So why isn’t it out there?? I just feel alone and invisible.

Then I started talking about suicide and someone tried guilt tripping me. I call it what it is and they say it is on me. Really? I will be fucking dead. How will I know what will happen to my family?? Am I supposed to be a ghost or something? Pissed me off.

My foot felt like it was in a pressure cooker. Then it felt like it was being crushed. Now my big toe is hurting big time. I call uncle, except I don’t think it works. I found my very last breakthrough med. Tomorrow I got to call and have them change the order and make sure the count is so I can take more than 1 a day. Otherwise the pharmacy won’t fill it and I’ll chop my fucking ankle off.

I will need a shower tomorrow. I hate showering. I need to shave my head to keep it bald. Also need to do a touch up of shaving because I missed some spots. My foot isn’t going to be happy. Then I got PT. Oh joy. Yes the curative physical therapy to increase mobility. This is interesting as I haven’t moved my damned ankle in 17 fucking years. It is a fucking joke. Oh and the damn pain clinic refuses to use CRPS. I have left ankle/foot pain. Can I bring a bat to my next appt and clobber them over the head?? Not to kill them, just to knock some sense in them or make them read my damn medical record that says why I need prescription pain medication. Fucking assholes.

I am done trying to say to them what I need. I have a better chance of winning the lottery. My foot is screaming. It is too late for gaba. I need to be up early enough to call the assholes and hope it doesn’t take a week to change the order. I can’t believe I was stupid and didn’t read it before I left. Ugh. Live and learn I guess.

Maybe 300 mg of gaba to calm some of it down. My PT is going to be unhappy with me. I’ve only done home exercises about 3 times. I couldn’t do it the 1st two days after our last session because my thigh hurt too much. Thursday I did it. Friday I was off to asshole’s office. Saturday I slept all day. Today I was in a fuck it mood.ok so what is that just one time? Oops I can’t count. We’ll just say 3 times. I probably am not going to see her anymore anyway. I really don’t want to. I think it is pointless to see her for my ankle/foot. I saw her before and I was in too much pain. And without breakthrough meds, forget it. I am tired of working through the pain.

I have no life. Just doc appts. I can’t remember a day I went to the Square just for fun, to have my espresso and write. Hasn’t happened in so long. Maybe February when I was trying to write the story in my head. It is gone now. Why bother writing it when I am going to die soon?

Part of me is trying to hang around. But with every painful flare, it gets less and less. Just do it runs through my head. Someday soon. I hope. Just do it…