heaviness continues

Heaviness continues

I reluctantly went to my psychopharm appointment today. My ankle/foot flared up just before I had to leave so I really didn’t want to leave the house. The pain sort of got better with me moving but soon as I got near my house, each step was agonizing. I could barely make it up the stairs. My legs feel heavy and the feeling of walking in mud has been going on for more than a week now. My psychopharm wants me to think about ECT as this could be depression. Could also be medication related but don’t know. I have been taking the medication late in the afternoon when I am home in case it makes me so drowsy I need to sleep. If it keeps me up at least I will have my night meds to bring me down. We talked about upcoming surgery and how nervous it was making me. She will be having some kind of surgery in the middle of April so I don’t know if I will see her. It all depends on how well I recover and if I am up to seeing her in person. We have been conversing via the patient website thing so we may have to do that until she returns. I am not sure if someone will be covering her while she is gone. I forgot to ask.

The voices have been quiet since the medication increase, though as I told my psychopharm, it is a little too quiet. I am having some difficulty functioning as I just feel so down and my cognition isn’t there. She isn’t sure if it is depression making it this way or not. That is why she either wants to change antipsychotics and have me start ECT. I probably wouldn’t be a candidate now as I am facing surgery in two weeks. She wanted to start the process and I told her no. I am not ready. I am going up on the antidepressant and antipsychotic so would like to see if that changes my mood. If the antidepressant makes me sick, then I will think more of ECT. I will be out of choices for meds if this fails, either on its own therapeutic level or me having side effects.

I am feeling depressed because right now I am in a lot of pain. I honestly don’t want to keep my appointments tomorrow but I already skipped my uro appointment two weeks ago. I don’t want to miss it again. It is with the nurse practitioner who does the catheter stuff not my urologist. I don’t have an appointment with my uro on the books. I need to make one probably after my surgery to see how things went. She said she wanted to redo the urodynamic testing two months after surgery to see if there is changes. Maybe when I call to make the appointment I will ask about the testing as well. I know they can be pretty booked. My urologist thinks I may have some function return after two months post op. I hope so. I hate thinking I am going to cath the rest of my life. It is too depressing to think about.

karma returned?

Karma returned?

Yesterday, I helped two strangers. On the way home from the hospital where I had my appointments, I noticed I lost my ring. I had no idea where it could have been. Last time I felt it was when I was washing my hands and a part of me wondered if I accidently threw it away with the paper towels I was using as I was adjusting it on my finger. That was the last time I remember seeing it. I should have put it on my other hand where it wasn’t so loose but I didn’t so I thought I lost it. Today I called up police and security of the hospital to check to see if someone turned it in. Someone had. I took the next bus to the station and went to the hosp. While there, I decided to go to the lab and see my friends. It was good to see them. I miss working there. I even had a dream that I had to FedEx a sample to get results by 5 the next day. Weird. I think the lab will always be a part of me, even if they get my name and gender wrong. Some of my friends who follow me on social media know I am transitioning. I wasn’t out to all of the people in the lab so I just had to take it.

I had a good session with my therapist yesterday. I had written her a letter which she said I started off strong and then went off on a tangent. I don’t remember what I wrote so it is possible. I am finding transference with her gets easier as time goes on. She kept my letter and the papers I printed out which were the SSF part A. I told her we can use them and they can be our talking point. It will help focus things. Least that is what I hope will happen. Just hope she doesn’t sort of hold me to it every meeting. My psychopharm is. She pulls out the sheets every meeting. She asks about my suicidality. She has been asking since I told her to. My therapist has too. She wanted to know more details about it but I didn’t want to talk about it. I told her it would be a few months before I was ready to act on my thoughts, though I didn’t say it in those words. I am still not sure I will tell her I was going to kill myself.

I told my psychopharm that if I don’t feel better by Monday, I will consider going inpatient for a while. I really hope I don’t end up back south east of Boston again. That place was terrible. I would really hate having to use catheters there. I would rather have a foley put in so I won’t have to worry about it. I get my order of supplies tomorrow. I plan on packing a bag in addition to trying to clear the alcove space that needs to happen. I hope this bag that I have been trying to find is there and not in the other alcove.

Presidents’ Day blog 2020

Presidents’ Day Blog 2020

It has been another painful day except this time it is my leg that hurts. I haven’t been able to do much today. Both legs hurt but the left is worse. I hope I don’t have a DVT. I always worry about that when I have been laying about and not being active too much. Hard to be active when you are in pain. I see my therapist tomorrow and I plan on calling my pcp’s office if it still hurts. I got to call the office anyways as there seems to be a scheduling error. I don’t have an appointment with my psychopharm until March. I thought I had one on the books for the last week of Feb but there isn’t one. I need a refill on my meds for the end of the month so I would like to see her but if I can’t, I will just tell her I need a refill. I got to call my surgeon’s office as they have the wrong medical record number on my paperwork. I think the number is my mother’s.

The last call I need to make is to make an appointment with the public transportation Ride service. It is a pickup service that I may need after surgery because I will be too weak to take public transportation. Once I have it, I will be able to see that pain clinic my pcp wants me to go to. But that won’t be until after my surgery. I don’t want to be changing up meds before then. I just hope that my pain will be taken cared of while I am in the hospital.

I was hoping to go to Starbucks tomorrow but I am out of funds. I’ll have to make my coffee tomorrow. Past few days I have been drinking tea. I still have the iced coffee in the fridge. It is past its expiration date so I hope it still takes good even though it hasn’t been opened. I will see tomorrow.

I got my grocery bill down to $174 even. Hope I can keep that total for a week. I don’t get paid until next Monday. I got a lot of cereal and frozen dinners so I have food while recovering from surgery. I wanted something quick that I didn’t have to stand and cook. I don’t think I will be able to do much the first few weeks after surgery. I have no idea what I am going to do about therapy. I don’t think going six weeks without is a good idea.

The voices are somewhat better. The increase in dose of the Invega has helped stabilize the psychosis. I chatted with a suicide hotline last night because the pain was so bad, I was losing my mind. We were talking and I felt like I gave too much information about being suicidal. They asked me what my plan was and I said that wasn’t relevant as I am not going to act on my thoughts tonight. I can hardly walk or stand so there was no way for me to attempt. They wanted me to let my therapist know I talked to them. I cringed at this. So after the conversation ended, I texted my therapist to tell her. I also asked for an appt for tomorrow and she responded with some times. I think it will be good to talk to her as things have been building up. The stress of surgery is causing so much havoc. The flares have been, too. I just feel so hopeless and helpless when the flares are so bad I can’t stand. It causes me to think of ending things and once I start, I can’t help but plan things. It is my escape and I don’t think that is ever going to change.

Saturday Blog 15022020

Saturday Blog 15022020

I really haven’t done much today. My only goal for the day was to write a blog. I have been in pain most of the day, which meant having to take gaba. I have a risk for falling when I take gaba during the day and I have to be extra careful when going up and down stairs.

I put a medication on my bed when I got it from the pharmacy and I can’t find it. It has disappeared or my bed ate it. Sucks because I really need it right now. My psychopharm and I had decided to go up on the Invega before resorting to psych admission. Problem I have with admission is cathing. I am not sure what the process is as every floor is different. I am not sure if I will be able to cath or if I will have to have a leg bag. Having a 500mL bag will suck as I know I will wake up in the middle of the night to empty it. I doubt they will allow me to change bags as the tubing might pose a safety risk. The psychopharm did say that if my safety becomes an issue to go to the ED regardless of the cathing issue. My safety is more important.

I hit a rough spot the other night and I texted my therapist about it but got no response from her. I am sure we will talk about it when I see her next week. I had to fool the voices in order for them to leave me alone. This is when I increased the Invega. I am doing okay with the 6 mg. The voices have gone away. The psychopharm said I can go up to 7.5 mg if I need to. The script I am missing is the Invega. I don’t know if I used it or where I put it. It isn’t on my bed. I might have to get a refill to the pharmacy but that would mean borrowing money again as I am broke until next week. I don’t know if my mother will give me it. I already borrowed money off her earlier this month. I keep forgetting to budget money for my meds. Next month I need to have food so I put in a large order of groceries but I don’t think I can afford the $230 cart that I built. I might just order a few things rather than the whole thing. I am trying to get my food stamps increased but with the way the stupid ass president is cutting things, I doubt I can. Hell, they may just take it away from me because I am disabled and cannot work. So stupid. But the poor and disabled are the first groups of people to get screwed in government funds.