Tag: cauda equina syndrome

shit show of a day

by Midnight Demon, posted in blogging, Chronic pain, chronic physical pain, CRPS, depression, mood disorders

Shit show of a day

So this morning as I was making coffee, I answered my mother’s phone. She was having some nursing come and her doctor’s nurse wanted to talk to her. Both women misgendered me and deadnamed me. One of the women couldn’t understand why I was going by G instead of my birth name and why I was a son and not a daughter as I was conflicting with her paperwork. I don’t understand why they couldn’t be gender affirmed in their care.

I shrugged it off as there was nothing I could do about it. I would have to tell my mother that I am her son and to refer me as it on her doctor’s records. I went to group and each one went ok. I had to miss the first one because I didn’t get an email in time telling me where the group was. For some reason I am not getting the email when they send it out. It worked out okay because the last group on the day was on gender. I was bored during some of the groups but it was ok.

My sister gave me the presents from my mother, including my birthday card that said “daughter”. I flipped out. I was so damn fucking hurt. And with the stuff that happened in the morning it really didn’t make me feel good. I texted my therapist, who is on vacation, and she flipped out and knew I was hurting. She asked who else I could reach out to. I had already sent a few messages out to friends that would talk to me. I put on some Bon Jovi to just listen to music. I wanted to listen to something that wouldn’t stir anything up.

I felt bad that I bothered my therapist. I wasn’t looking for support as I knew I wasn’t going to get it, with her being on vacation. I ordered a cheeseburger with mustard and pickles. I got the burger with ketchup. It even said on the paper mustard. Someone can’t read. I ate it anyway. I wasn’t going to let a burger go to waste.

My mother is doing ok. She is still weak. I am not too happy with her right now but there is nothing I can do about it right now. I have to somehow get over this, that she cannot accept me for me. But it hurts so much. I tried crying tonight about it but the tears wouldn’t come. I don’t know why when I felt tearful. I think the citalopram is the reason I can’t cry. It really sucks. I am glad my therapist is on vacation so I don’t have to deal with it.

listening to the 80s

by Midnight Demon, posted in blogging, Chronic pain, chronic physical pain, CRPS, depression, mood disorders

Listening to 80s

I felt like listening to Pandora today so just turned it on and 80s music started playing so I will keep it on that. I love the 80s. I had coffee and I am somewhat energized. I haven’t decided what I am going to do today. I need to go to the grocery store for half and half and coffee. I might go this afternoon. My back is still bothering me from trying to find this book that I just ordered another copy of. Fuck it. I still got to go to the bank and deposit some money so my account isn’t overdrawn.

My allergies are bad today. I keep clearing my throat and coughing to clear it. I hate when I am so congested in the morning. Makes me gag. Brushing my teeth was fun. I am sucking on a cough drop to sooth my throat. My sister is out of quarantine Tues. I can’t wait. She must be so bored.

I need to shower today. I smell. I need to be better about showering as I have just been showering once a week for a while now. I used to shower every other day but I have let it lapse. I just seem to shower when I can’t stand the feel of my hair anymore. I have a full beard now so I need to wash it or it gets itchy. I have decided to keep it for now. I like it. I just wish the tiny bald spot would grow hair. It is one of the reasons I have to not keep the beard.

My back is still bothering me from looking for the book last night. I don’t think it would be wise for me to go out today. I don’t want to get stuck while out like I did before. I will just get upset. But the only priority today is to shower. Just hope my back doesn’t crap out on me. It is really bothering me right now. I just want to lie down and rest. I am getting hungry but I don’t feel like making something to eat. I haven’t had anything to eat since yesterday. I only had Ramen noodles all day and some pretzels. I don’t really know what to eat. I want to make a chicken sandwich but for some reason it is nauseating me so I don’t want to eat anything. I might make a fluffernutter. It is a sandwich with peanut butter and fluff (marshmallow crème).

The one self-care thing I absolutely hate is nail cutting. I swear my nails grow superfast and I feel like I am cutting them every week. I hate it. I hate toe nail cutting more. My sister just came up with food so I don’t have to worry about it for now. Yay! I will have some in a little while.

Saturday Blog 12122020

by Midnight Demon, posted in blogging, Chronic pain, chronic physical pain, CRPS, depression, mood disorders

Saturday Blog 12122020

I’ve had a rough day. I can’t seem to get going. I woke up with hunger, which is unusual so I had some ramen noodles as that was what I was wanting. I got the download link to One Night Lonely with Mary Chapin Carpenter but I haven’t been able to download it to my phone so that my MP3 recognizes it. It is stuck in dropbox app and I don’t remember how to “free” the songs. I have to google it I guess.

I had partial yesterday and a meeting with the therapist which felt good to talk to him. He validated a lot of what I was going through and is willing to have a reduced schedule for me because of my pain. I will go three days a week and go to 3 groups. I haven’t decided if I will do that. I am going to give it one more full day to see how I do. It is tiring even though it is on virtual. I can’t say I am learning a lot because it is a lot of old stuff through the years being brought up once again, with the distress tolerance and wise mind and mindfulness. All DBT stuff I have learned before.

The therapist and I talked about how I was really feeling and I honestly told him how I felt. It felt good to finally tell someone that pain is again causing me to be so miserable. It was good telling someone that this might not work for me because of pain and he understood this to be a barrier in treatment.

I did have a good session with my therapist Thursday afternoon. She thinks trauma is the reason I get suicidal and depressed because I am not dealing with it. I thought about what she said and it made sense. I told her let’s work on it then but she thinks I don’t have the coping skills to deal with it right now. We are going to give a few weeks of partial a shot and then go from there. She is on vacation in a couple of weeks so it might not be until the new year that we work on this. I have no idea what it entails. I am tempted to read my “trauma and recovery” book that I got in college but I don’t know where it is right now. I think it is in the basement with my other books from my office. I just tried to find the book but it isn’t there so I don’t know where it is. I will just order another copy.

Trauma has been something I have stayed away with in therapy for a long time. It was something I never thought I needed to go through. Seems like now I got to face it and I am not sure I can do it. I just hope my therapist doesn’t refer me to a trauma specialist because I won’t go through with it. I don’t want to see two therapists for basically the same problem.

I’m listening to Taylor Swift’s folklore again. I want to get the new album but I have to deposit money in my account. I will probably do that tomorrow. My favorite song on this album is exile. It is a duet and it is so good. I have it on repeat right now.

pain is lonely

by Midnight Demon, posted in blogging, Chronic pain, chronic physical pain, CRPS, depression, mood disorders

Pain is lonely

I was scrolling through facebook and came across the meme “Pain is lonely” and it struck a cord with me. It is lonely. You have no one to talk to about it that really get it, unless you talk to someone that has the similar chronic pain that you have. I find that even though I talk to my BFF sometimes she doesn’t understand the kind of pain I got through with my ankle and foot. She understands everything else, how pain can make you cranky and tired and not motivate you to do stuff. It is a tradeoff. I rather have some understanding than none.

I got a call from the partial hospital place and they sent me email to fill out and send back. I had to fill out some form using adobe but it was confusing so I just saved it and sent the form. If it is wrong I am sure they will let me know. I have my first meeting at 9 and then group start at 10. Fun. I told them I have an appointment at 2 that I need to keep. It is my therapy appointment. The schedule is DBT based with some creative groups in between. Looks like a regular hospital group program but without the admission.

I went to pick up my prescription because I thought my neurologist changed the order. She didn’t but just gave me more refills. WTF I told her specifically I am taking more than what is prescribed like we discussed. Fuck. I hate when she doesn’t fucking listen. I hope she has it in her notes. Fuck. I am so pissed off.

My mother’s covid test came back negative but she has a cold. Despite me and my sister telling her to wear a mask, she refuses. She wears it around her neck with her mouth and nose exposed. Helpful. Not. I am staying in my room and using sanitizer when I get back to my room just to disinfect my hands. I do not want to get sick. As far as I know, I am the only one that got the flu vaccine.

My neck muscles have been really hurting me today on my left side. It feels like I pulled a muscle or something. I might have slept wrong again. I am going to tell my neurosurgeon when I see him because the pain isn’t going away and I haven’t found much relief. Heat, rest, meds, and stretching have not helped.

I am so tired. I didn’t sleep well again. I woke up around 0230 to pee and stayed in bed for a half hour before I finally got up to go. The urge was there but it wasn’t strong enough so I wasn’t sure if I had to go or not. I should just go anyway rather than lay there wondering. It took me some time to get back to sleep afterwards. I set the alarm for my appointment that was canceled on me due to covid. I am not going to reschedule the test. This is the third time I have had to set up an appointment since my surgery and I am not going through the anxiety again. So fuck it. I am not making another appointment.