tough painful week

Tough painful week

I’ve had a rough week both physically and emotionally. Monday I semi said goodbye to my psych of 26 years. She still wants to care for me so when she finds another home, she will call me. She is not sure where she will be as she has not thought that far. I totally understand that. I figure it might be a few months but in the meantime I will still be in contact with her either through phone or email. I started having side effects of my mood stabilizer, which is really bad timing as I am not currently under direct care of a psychiatrist. My psych is trying to push seeing someone faster. My pcp’s social worker is also trying to get me to see a gender affirming psych that is joining the clinic. I just had bloods drawn for a level as last time I was barely therapeutic. I am having double vision and just to make sure there isn’t something wrong with my eyes, I am seeing my eye doc next week.

I had PT which was sort of good. On Saturday, I did some stuff around my room. Sunday I did a little more even though my back didn’t like it. Monday I was okay until I was coming home from my psych’s appointment. Back flared up terribly. I was still hurting when I saw my PT on Tuesday. She gave me some decompressing exercises to do. I was really hurting past few days as I have been having pain go down my leg and the pain was near my spine yesterday when I was coming home from the therapist appointment.

The therapist appointment went well. I found out what kind of therapist she is and I think it is going to work out. She loves the Sox and we both have the same favorite player, though she is a lot more obsessive than I am about him!! At one point, I thought she was going to jump down my throat when I was criticizing him and she stopped me before I could say anything. Yikes! I have my next appointment with her the week after next. She is a CBT therapist but also has some DBT stuff. I am going to bring her my copy of Craig Bryan’s CBT for suicide attempters and see if she is receptive to it. If she isn’t, then I guess that will be okay and we can go from there. I will have a hard time with it though as I feel like I have all these things that could possibly help me with my suicidality but I don’t have a therapist to go along with it and it frustrates the hell out of me! I did ask her if she would turn me away and she said no. I was relieved to hear this. Maybe she will work out after all.

My sister had sent me texts Wed saying she wanted to take my stuff upstairs today. I told her no as I knew I would be hurting as I have all week. Fortunately, she decided to go to the beach so I didn’t have to deal with her. We haven’t really spoken kind words to each other since she moved in. I really don’t care as she really hasn’t been there and doesn’t understand anything I have been going through since I have been on disability. I really don’t see this changing. Maybe when the work on the house is done with but certainly not right now.

A couple of hours ago, I used the bathroom. I normally don’t really look in the mirror as I hate my face. Today I did and much to my surprise, I have darker hair around my jawline! The fuzz is becoming darker. I was so excited. I knew I had to post transition pics, which I did on Instagram and facebook. I kind of did on Twitter, too, though didn’t give as big a description. Kind of hard to do when you only have 240 characters. I just sent it out to a couple of people that want to keep track of my transition. I hope when my T gets increased next week, the facial hair will come in faster and darker. I would love to come downstairs one morning and shock the hell out of my mother with a beard. I am not sure she knows I am on T. I sure as hell didn’t tell her. I am not sure if she asked my sisters or if my sisters told her. She hasn’t said a word to me about anything. I have mentioned that I will be having my breasts removed. She didn’t seem to like that at all. Yet she wants me to be “happy.” I don’t think I can ever be happy as I don’t know what the hell it is. I rather be content but the way things are going, I doubt that will ever happen. I forced myself to shower because some icky water fell on me. I have this thing that turns musty smells to water and the container fell on me. I had to shower. I was hurting afterwards. My back wanted to kill me. I started getting suicidal thoughts again. I have been having them on and off since being discharged from the hospital. They haven’t been really bad like they were. I have thought on a few occasions to end it and started to plan it but once the pain backed off, so did the planning. I just wish something helped with the flares. Since changing my meds to something else, nothing has worked for the flares. The 24/7 pain has been lowered. I wake up with a 2 or 3 but sometimes if I have more than a few days activity, I will have ankle/foot pain that is more than I can bear. I haven’t been able to find something to help ease that pain. Distraction works but only to a point. I could watch a movie but soon as that movie is over, the pain returns, sometimes worse than what it was before I started watching the movie. Last night I did five cryptograms. It was really cool as I really miss doing them. I started to remember the hacks. Some were really too difficult for me so had to go to a new puzzle. One quote was perfect for my psych so I sent it to her. I also sent her the transition pics and the excitement about growing in a beard. I half want to shave the stuff off just to see if it would grow back thicker but my friends told me to leave it alone. Hair under my chin is growing more together. Just wish it was in the middle of my chin. There is still a bare spot.

Guess that is all for today. Not sure if I will post over the weekend. It has been difficult finding my words lately, hence the spotty posts. Thanks for reading and understanding.

thoughts on my blog, input needed

Thoughts on my blog

I have been discharged from the hospital. I am paranoid that I am being monitored by someone at the hospital on what I write. I am not 100% positive of this because my stats views have gone back down to there regular numbers. Either way, it got me thinking about how to proceed.

For those that read my blog every day, I would like your input. You can give it to me via my contact page or if you want to leave a comment, that is fine too. If you are a close friend and follow me on other social media, feel free to contact me there as well. I am thinking of password protecting my blogs going forward but want my readers to read them. It would be the same password (unless I feel that it contains information that I only want some people to read. These posts would most likely be of suicidal nature that I don’t want to freak someone out and call the cops on me.)

Let me know how you feel about this. I know that my readership will most likely be down, but I need to do this because I still want this to be my outlet for my frustrated feelings, anger, and depressed thoughts as well as my suicidality, which is why I created this blog in the first place. I know I could just write some where else these “toxic” feelings but it is hard as this has been my source of support and some of it does help people in knowing they are not alone with chronic pain and depression and suicidal thoughts/feelings.

I have protected my posts on Twitter. I am not sure anyone can see them anymore. I know that people that follow me cannot retweet what I write. I really hated doing this but it will only be for a short while when I think I will be free from being monitored. I am really upset over this intrusion of my venting and it being used against me, like there are only nurses at this particular hospital and none of the other hospitals in and around Boston. This is how narrow minded this doctor was and he had the gall to call me a “Trumpian”. This angered me so damn much I had a breakdown after our meeting. I couldn’t stop crying because I was so angry and frustrated. One of the nice mental health workers came into my room to talk to me. She didn’t know exactly what was going on but tried to reassure me this didn’t affect future care at the hospital. I think it is so stupid. I emailed my psychiatrist, who probably just blew it off as me venting steam. I am not sure if the doctor emailed my psychiatrist and told her what I was writing. I would have filed a complaint but usually that doesn’t get anything changed. He was one of the higher ups so my complaint would most likely be thrown in the trash and my record possibly flagged as not to be admitted anymore at that hospital, which is fine with me.

The day before discharge, I had a meeting with my sister and social worker via the phone. OMG it was so fucking terrible. My sister basically verbally abused me. I won’t repeat what was said. I just felt like no matter how much I tried to tell her how much pain I was in and how I needed to recover afterwards, she didn’t hear me at all. She wanted me to go through my stuff while I was recovering from my appointments or anything else that caused my pain to keep me up all night and just stay in bed. I felt so horrible after the meeting which was the same day I was spoke to about my blog. I was just waiting for number three incident to complete the three’s. Thankfully it never happened. I was in so much pain though from being emotionally tapped out. Since I have been home, I have not seen my sister. She asked my mother if I was home but did not come to my room to even say hi to me and her voice toward my mother was kind of testy, like I didn’t belong here at all. I swear she is just like my bastard father. She called me selfish but that is just a projection. The social worker really understood what I go through at home. During the phone call, I wanted to hang up so fucking bad. I wanted to talk to my sister about her use of pronouns but I didn’t think it would be worthwhile. I had an agenda but it totally backfired as I just had to go through my stuff no matter what or how I feel. I really feel unwanted.

So for those reading along, please let me know if you would be willing to read my blogs that are password protected or if you just want me to write like I have been even though it might ruffle some feathers at the stupid hospital I was at.

Free falling with no safety net

Free falling with no safety net

I didn’t think I would write a post today. I had been working on my office, going through my stuff, throwing away, recycling, or giving to goodwill. I was hurting but it was bearable. I didn’t eat much all day. I really have no appetite. I had a protein bar at like 3 am and didn’t eat again till twelve hours later. I made a custard pie that took forever because my oven sucks. I had a slice of that. It was so good.

Right now my right heel and my left metatarsals are competing as to who is going to hurt more. Right now my left is (the CRPS one). I am having so many symptoms of CRPS right now that I doubt I will sleep even though I am exhausted.

I was talking to my mother about my desk. She doesn’t want to get rid of it. FFS. My sisters and I had agreed to toss it because it is much to large and heavy to move. It is too big for my bedroom. And there would be no point if they end up tearing my rug out. I think the floor is rotten and needs to be done because there have been spots that have some up through the rug and we aren’t sure why. It might be mold. I know the drywall where my headboard is needs to be redone because the bubbling has spread. Whether or not that is due to mold, I have no clue. I don’t understand why it wasn’t addressed when I wasn’t moved in and it could have been replaced. But my room had just been painted and I think they didn’t want to mess with it. I don’t know. I just go along with things.

My aunt had come over and between her and my mother calling me my birth name and “she”, it set off my gender dysphoria. My boobs still feel really heavy. I know I am losing weight because I have no appetite. I can’t wait till next week when I can order my chicken patties and fish. I won’t be able to place my order until Wed, though I am not sure I will be able to as I need to pay off my cell phone in full on Monday, which doesn’t leave me with much afterwards. My full check on Wed will need to go toward all my bills.

I am listening to Celine Dion. I bought a few songs of hers that I haven’t listened to in a while. Seems Amazon has a knock off version of her songs and I foolishly bought 4 and then had to buy the correct 4. Damn assholes. I hate iTunes worse so I will stick with Amazon for now.

Left foot has gone berserk. I thought I had the phone far enough away but I didn’t. It is now buzzing intensely from the sound waves. I just took a melatonin to help me sleep. I hope it overrides the exhaustion to make me sleep. Tomorrow is my father’s birthday. He would have been 87. My sisters and I plan on going to the track. I really don’t want to as I don’t gamble (I have no clue how to bet on horses). I rather just have a family dinner. I was overruled. I don’t seem to have a say for anything anymore. I feel like I don’t matter to my family at all. Just adds gas to the suicidal fire. Last night, I wrote another suicide note. I think I took a pic of it and posted it on Twitter, not knowing if anyone can read my scribble. It was handwritten. I have been trying all day not to think about my dark side and now, with the pain, it is so hard to fight it. I might as well give in. I am not worth anything. As my chemistry teacher told me long ago, we are just a bag of chemicals. That is all we are.

gender dysphoria flares again

Gender dysphoria flares again

I had PT today. I didn’t get to drink more than one cup of coffee. I could barely finish the cup as I had to run. I was in slow mo today as I was just so tired. I had another bad night sleeping. I really have no idea what time I fell asleep but I know it was after 0230. I got dressed and wore my favorite flannel shirt that I found last night while going through my clothes.

Because of the standing and sort of half bending I did (with breaks because my back wasn’t having it), my hammy on the left and both calves were killing me. I could barely move which further slowed me down. I had the button down flannel on and it was a little tight in the chest area, so much so that it triggered my loathing of the things on me. I tried to ignore it and listen to my music but it was like a band around me and I hated it so bad. I thought about top surgery again. I honestly don’t know if I can do it, especially as I am really suicidal right now. I just don’t feel that is a priority right now. At the same time, I want these stupid things off. I hate myself for being in the wrong body. It also sort of throws gas on the suicidal fire that is going on.

I came home after getting some pizza at one of the local pizza places. I got the Sicilian kind as I really wanted it. I found five bucks in the shirt so it was sort of a reward. By the time I got to my room to change, my fucking legs gave up on me and both feet were killing me. I got my laptop and was scrolling through Twitter. There was a physician weekly chat and the topic today was insurances, specifically how they deny services or delay care due to prior authorizations. It made me think of top surgery and moving forward with it as I am not sure my insurance will cover it and then I will be screwed. My PCP had mentioned that it will take some doing with both of my insurances to get the surgery covered. There is a meeting of transmen I am thinking of attending the first week in April, if I don’t end up ending things before then.

I’ve had it with my fucking mother. She has been calling me my birthname the past few days and today with all the gender dysphoria going on, I just can’t deal. It is sending me further down the black hole I am in. She refuses to call me by my legal name or use the right pronouns. I am so fucking upset. I just feel like I am a fucking outsider in my own home. No one in my house respects me. I give it to them. I guess I am not worth the same in return. I am just done. I got three more notes to write. Hope I can do it. No one is to blame except me.