Tag: chronic pain

It’s 72 degrees and I need a heating pad

by Midnight Demon, posted in Bipolar Disorder, blogging, chronic physical pain, CRPS, depression, mood disorders

It’s 72 degrees and I need a heating pad

I had decided to do my PT exercises today. I printed them out after I spent nearly a half hour trying to get the battery contrast settings to “normal”. When I somewhat “fixed” it, I then rebooted and hit F2 quickly to check what the settings were in the bios. Sure enough, they were at 0. Fucking fuck. I put it to 100%, restarted, and then changed the settings I played with. Once that was done, I put the laptop aside. I struggled with the stupid body pillow, which at this point, I want to throw out the goddamn window. But it is helping with sleeping on my side and aligning my hips while I sleep.

I then did the exercises. I was only able to do about three or four outward motion with my left. I knew I was lucky to get that much. I had no problems doing the right. Then I did the others. I tried the one standing and adjusting my posture. My back DID NOT LIKE IT! I am still hurting. My spine is aching so bad. I took some advil and I am sure the constipation I am feeling isn’t helping. I woke up late so didn’t take Miralax. I just been taking fiber pills. Taking three things for the movement of bowels is hard. It’s worse when neither works. I went a little bit last night. It was better than nothing. I was hoping to get on top of it today but sleep interfered. I woke up at 8 to take my morning meds. I should have stayed up but didn’t and I regret that decision.

So now I have a heating pad on my back because it is sore with the AC on. Hope it works other than making me hot. I finished Dostoevsky’s Brother’s Karamazov today. Figures the last chapter had nothing to do with the plot!! I am just grateful it wasn’t long. I wrote a review on Goodreads. I plan on starting Dr. Stacey Freedenthal’s “Helping the Suicidal Person”. It is supposed to be good. Maybe it will help me be a little more hopeful and get me out of this funk. I am almost 90% sure I will end my life soon, though I am playing with the dates, again.

Tomorrow will be really hot. Twenty degrees hotter than today, which also does not help my back pain. It is also going to be yucky humid. I heard one school system has closed due to the extreme heat. That isn’t good.

Sox won today. I went to update the standings in my Twitter profile. I checked the MLB standings as I couldn’t remember if I did it or not yesterday. Seems I missed the whole Seattle series. OOPS. I corrected it. I made mention of wins or losses but never changed my profile to reflect it. Oh well. It is correct now.

Today my sister said she wasn’t having a BBQ but just throwing things on the grill. HAHAHA I got my brother in law a gift for Father’s day. He liked it. I had bought it for myself but it wasn’t what I expected. I am still looking for a keychain nail clipper with a file. I had one on my last set of keys but I lost them. I still haven’t been able to find them. I know I had them because I walked in the house. What I did after that point is a mystery. I was in a lot of pain and just want to rest so things were a blur. I have been careful where I set my keys down now. I have to remember to take them as they are in the kitchen. I don’t want to leave the house without them.

This morning, my cousin’s mother in law sent me a couple of pictures of my father set in a Jesus frame. My heart shattered in a million pieces. She sent them through FB messenger. For some reason, messenger downloads the images to my phone and I quickly deleted them. I didn’t want to see them. It hurt too much. I know she didn’t mean me no harm but it was unexpected. Sometimes as I flick through my phone and see the folder that I have of my father just gets me in ways. Even in death he is torturing me.

One Drink Ago

by Midnight Demon, posted in Bipolar Disorder, blogging, chronic physical pain, CRPS, depression, mood disorders

One Drink Ago

This song is by Terri Clark and Dallas Smith. Terri is my favorite female country artist. She is fricken gorgeous and I have loved her since the early 90s. This song hasn’t made it to Boston radio yet. I don’t know if it will. I hate that some songs are released but don’t make their way up here.

I had a hard time sleeping due to pain and then being over tired. I think I tried to sleep some time after 1. It wasn’t a fitful sleep as my med alarm kept going off for my morning meds. Then I was able to sleep most of the day. I woke up around 12ish, made an egg and coffee. The coffee made me sleepy so I went back to sleep for a few hours. I have been taking fiber pills since last night, hoping to go but nothing is working. I took some more Miralax and fiber when I had something to eat for dinner. I had some more of my zucchini pie. I was going to have a burger but the pie is going to go bad if it is not eaten. I think I might have to throw it away tomorrow. I have been the only one eating it. My mother said it gave her diarrhea and my sister didn’t like the taste. Whatever.

Sox were part of the reason I was up. They took the lead and then lost it in the 8th inning. The bullpen came apart. Game is earlier tonight, 2000. Tomorrow it will be at 1600. Tomorrow is also father’s day. I have been thinking about my father most of the month. Still can’t believe he is gone some days. Today I was wondering what he was doing and almost said it out loud to my mother. Then I said to her, you know what I just thought, and told her. I asked her if she thinks of her mother the same way. She said she doesn’t but she does miss her. My grandmother died in 2006. It was a blessing as she was in chronic pain due to cancer and dementia. She wasn’t the same person anymore. I think it was the only time I cried because my mother had been crying when she passed. I didn’t see her. I didn’t want to. She died at home.

I love Carrie Underwood. Her voice is amazing. I added Something in the Water to my playlist. Her vocals are just mind blowing. So powerful. Her latest song Cry Pretty is another favorite of mine. It made me cry the first few times I heard it because it was talking to me. The lyrics was speaking to me. It is a very powerful song. I think I posted it a few weeks ago. If not, I will post it again. Can’t have too much Carrie.

day 5 and a flare

by Midnight Demon, posted in Bipolar Disorder, blogging, chronic physical pain, CRPS, depression, mood disorders, suicide

Day 5 and a flare (warning, long post)

Last night, I had to go to the bathroom kind of late, around 2300 or so. I was also hungry so went downstairs. I must have went down four steps and my ankle went out on me. It became really painful. I stopped and hung on the bannister to prevent falling. Pain subsided a little and I went down a few more steps only for it to happen again. Shit. I held on again to the bannister and waited for my ankle to calm down a bit. I knew the downward motion of my ankle was causing it to get annoyed. I finally went down the rest of the stairs and did my business.

When I came back up to my room, my ankle felt okay. The game was late as it was on the west coast and I couldn’t stay up as I needed to be up at 6. Around midnight, I turned in, or tried to. My body pillow was a mess and was not making me comfortable. I must have flung it off the bed as when I came up to my room today, the whole side of it was on the floor. It collected all the dust that surrounded it. Great. I used a lint roller to get it off. I just decided to use a regular pillow and somehow fell asleep. I woke up about three hours later in pain. It was too early to take the 12 hr pill so I took the immediate release. Two hours later I was still in pain so took the longer acting med. I was early but oh well. I then slept for about an hour until my alarm went off.

I took my morning meds and then went downstairs to brush my teeth and wash my face. I was deciding on what to wear. I thought I could wear shorts but it was too cold and it was kind of rainy. I decided sweatpants and a long sleeve shirt were in order. Except, I couldn’t find the one I wanted to wear. I scrounged my bed and it was nowhere. Oh well, just go with the one I usually sleep in. I left to catch the bus. As I got to the corner, the bus I was to take rolled by. Luckily, another one soon followed so I didn’t have to wait long.

I brought my Dostoevsky book with me. I had 45 minutes before PT. I got coffee at the lower end coffee shop and a coffee roll. When I finished the roll, I got to reading until it was time to leave for PT. PT was not so great. She gave me a few new exercises but I think I am going to have trouble doing it on my left side due to moving my damn ankle/foot. I might have to wear the AFO (ankle foot orthotic) to keep it stable. We just did the right side and she explained what muscles were moving. Then she massaged my hip. She said my muscles were hard as a rock. I said like a tennis ball and she said yes. Some parts of where she was touching was bothersome to my thigh muscle. I had to remind her that my L2/L3 surgery fucked it up. We talked about the PTSD and stuff that surrounded my pain issues and she offered some concrete grounding techniques which I will try as the ones I were using were not working. I chiefly use distraction and music. She had me laying on my back under some kind of box thing. As we were ending, she moved my knee to my chest and my back cramped up badly. It hurt so much. I was able to walk out of there but I was hurting. I came home because my next appointment wasn’t until 1500. I made a fried egg that I kind of overcooked the yolk. Then I went upstairs and was hoping to catch a nap. Well my ankle said no to that soon as I laid down. I left an hour early than I wanted to. I went to Starbucks for espresso and a Danish.

I read my book as I brought that with me. I was going to get some serious reading done. But my god, did Dostoevsky talk and talk and talk. It was about 4 chapters of the prosecutor giving his closing argument. When he was finished, so was I. I have about 8 chapters left in the book and I should be able to finish the book this weekend. Progress. I promised one of my suicidologists that I would read her book so I will. It should be somewhat easy reading once I remember where I put it. HA. Don’t know if it is buried on my bed or I put it somewhere else.

I went to my psychiatrist appt. I gave her the run down of being hypomanic without euphoria and the cycle I seem to be in. She didn’t read anything I sent her but she said she would read it as she always does. I felt kind of deflated because I really wanted to talk about the article I sent her. I couldn’t bring it up if she didn’t read it. I actually was not really present. I just glossed over things and she accepted it. I told her my therapist wanted to meet with me twice a week but I am not sure if I can do it physically, especially with physical therapy sessions going on as well. I had told him I would think about it and get back to him. She thought it was good to be seen twice a week. Then we made an appt for two weeks and I left.

My ankle was kind of giving me grief but it wasn’t bad until I got within two blocks of home. Before the Walgreens by my house, there is this dead end street that leads to some houses. The sidewalk has a little handicapped ramp that, to me, is very inclined. I walked down it and it brought me almost to my knees. Pain was so fricken bad. I had to stand in place until it settle down. It was the same as last night when I was going down the stairs but 10 times worse. I didn’t know what to do. My sister was away (or so I thought) and there wasn’t anyone else I could call for a ride. I took my blessed time limping home. The block that lead to the final block to my street was hilly and downward. OMG did it hurt to walk downhill. I had to stop a few times to catch myself. I finally made it home and my sister’s apartment door was wide open as well as my door. I called for my niece but there was no answer. I stuck my head in my sister’s apartment and called for her again. My sister was home making dinner. My other sister was there as well eating some kind of cheese plate. I had some cheese and pepperoni and chatted with my sisters. I then went upstairs. I took my things up the stairs carefully. I took a seat in the kitchen and my ankle just went berserk. I had no idea how I was going to walk down the hallway to my room. I was in a serious flare. I have been on the new med for five fucking days. I have no idea if CRPS doesn’t care if you take meds or not. I posted the question in my support group. I am still waiting for an answer or support. I had to take the med when I finally got to my room. It was two hours early but I didn’t care. After I made dinner with a boot on, my ankle still flared again. I took the breakthrough med. It is going to be a long night and I have been up for 15 hours so far. I cried in pain while I was in the kitchen. My mother was oblivious.

I don’t know what to do to make this pain go the fuck away. I thought the new meds would work and they did for a bit. Until I walked that handicap ramp, which I will never fucking do again. I wish I could say the same of the stupid stairs but I live in a two floor house so that isn’t possible. Even wearing the boot didn’t help. More than a few weeks till my date. I wasn’t going to go through with it. But I change my mind. I could still change it, again. I haven’t told anyone about this because people keep saying they need me and that makes me feel guilty. Someone also reminded me of the ripple effect and I told her to stop talking to me. I don’t want to hear it. I just want to be left alone in my misery that no one understands. I am so done with explaining about how suicidal I am and not getting any understanding about it. Not that I want support for it. That would be ridiculous. But to know at least where I am coming from rather than have supposed opinions. I just have become callous to anyone that thinks they know me.

I did ask my psychiatrist if she thought I was “treatable”. She said yes. But that is all she said without any elaboration. I am in too much pain, both mentally and physically, to tell her what I am thinking. I am also afraid of telling her what I am thinking for fear of another hospitalization. I won’t go this time, not unless I make an attempt. That is the only way I will go back. I just hope to be successful. Things will be really bad if I don’t succeed. I am scared though. I’ve never tried this method before. And if I don’t get it right on the first try, I am kind of screwed. I am just messed up.

About depression that I have to get off my chest

by Midnight Demon, posted in Bipolar Disorder, blogging, chronic physical pain, CRPS, depression, mood disorders, suicide, suicide attempt

About depression that I have to get off my chest

There has been a LOT of talk lately about depression being treatable. Let me say first, that for some, it is. Therapy has been helpful to some in dealing with it. Medications and therapy still prove to be useful in treatment of depression or actually any mental illness. It was once thought that schizophrenia was a medication only illness. But I learned through one of my suicidologists that isn’t always true, as there was a paper written by him about he helped decrease an individual’s suicide risk by seeing him weekly or more if suicide was more present. It helped the patient feel cared for. If I find the article in my files, I will share it if you care to read it.

I am in no way saying you should NOT get help if you are feeling depressed. But my experiences (which are not the same to the whole depression population) beg to differ. I have yet to find anything that helps the mood shifts. Since my long time therapist stopped seeing me for reasons I have still yet to learn, I have been the most unstable and hopeless I have been in the 16 years I was in “treatment” with her. We had our disagreements about treatment. Transference and countertranferences were helpful at times but were no long lasting. She stuck with the way she was treating me and I stuck to being, well, depressed and suicidal.

What I have to get off my chest is that sometimes, depression is untreatable in a small percentage of people. There is such a thing as treatment resistant depression. Despite ECT (“shock” therapy), medication, and therapy, one can still feel depressed. There are a trillion reasons for this. Sometimes it has to do with the trauma one experienced. Some has to do with biology itself, that the genetic predisposition of a person makes them depressed. Other times it has nothing to do with a trauma or situation. It just happens that you start withdrawing from life, slowly at first and before you know it, you can’t go back to things you loved because, frankly, you are too depressed. Sometimes you maybe too depressed to seek help and a friend or family member needs to push you to get it. The thing is, depression still exists despite treatment. Some people have suffered depression for years and have never told a single soul. They are the small percentage that still go on with their episodes after they pass. They are less likely to die by suicide. Hell you don’t NEED depression to end your life. It has happened. Look at the Shawshank Redemption movie. The warden was “well” mentally and rather than be arrested and humiliated, he killed himself. Would anyone have thought he would do such a thing? No. And that is what my point is. Although we know what the risks are for suicide, depression and mental illness is only a small window into those risks. There are some people who die that have no history of mental illness yet die by suicide. I won’t go into more discussion about it because this is a loaded issue. I suggest reading the Myths and Facts of Suicide by Thomas Joiner. It is a really good book about what I am talking about.

I can only talk about my experience, no one else’s. I have been depressed since I was 8, maybe younger. I only know this because I started thinking suicide was a good idea at that age. I was 10 when I tried to end my life for the first time. I suffered from depression and after taking Prozac, became bipolar because the medication caused mania like symptoms. Not once during my years of being on medication AND therapy did my thoughts of suicide leave me fully. Neither did depression. There were brief times where I felt contentment. I honestly don’t believe in happiness. Like anger, it is a fleeting emotion and doesn’t last. But feeling contentment does happen for me and I sometimes feel comfortable in it. I know it isn’t going to last long. It never does. The depression always finds a way back, maybe not right away but it does come back. Despite some of my successes in life, graduating from high school, getting my Associate’s degree, publishing two books, I still was depressed. I was elated for a little while but it was fleeing. Just like when I wrote the article for the New York Times. I couldn’t believe and still don’t, that it happened. I still have the check that one day I will frame along with the article. But soon after all the paperwork was filed and I was waiting for it to be published, I was intensely depressed. The New York fucking Times was publishing something I wrote and instead of being happy as a pig in shit, I was depressed. I learned that no matter what my success in life was, no matter how much money I made, good job that I had, I was going to always be depressed. I could do one of two things. I could accept that this was the way it was always going to be or fight it. I chose to accept it.

I knew I had been fighting it since I was 16 that I would always have to take medication for my mental illness. It wasn’t easy but I knew if I was to avoid a lifetime of hospitalizations, I would need to take medicine to hold off the demons. Yet despite this theory, I was still hospitalized. Many times. Some times it was like a revolving door during my worst episodes. In 1994, I suffered a huge major depressive episode. I was hospitalized almost every two weeks and then for two months because I tried to end my life. It was one of the lowest periods of my life. I couldn’t bring myself to do anything. Showering didn’t matter. I gained a ton of weight from the meds I was put on. I started living an almost double life. The life the psychiatrists wanted to see and who I really was at home, when I was by myself. Hopelessness was rampant and totally lost on me. I can’t say that I got better. I just got better at hiding from myself, to keep the darkness at a minimum so I wouldn’t be committed at the age of 19 to a state hospital. Even then the façade I built was hard to put down. I just did what I was told to do and when I felt like acting on my feelings of suicide, I told my therapist or psychiatrist, which inevitably led to another hospitalization. But the hospitals in the 1990s were different than they are today. Today they are nothing but holding pens. Two maybe three days you are in and then you are out. If you need more help and have an outpatient therapist, you see them. You don’t need to be in. Maybe you stay for a week or two. But never more than that. Insurance won’t pay for it. And you don’t really get “treated”. You are watched 24/7 to make sure you don’t harm yourself. You might find a “treatment team” that listens but that is ALL THEY DO. They don’t help you in what you came in for. That is for you and your outpatient therapist to work out. If you don’t have one, you might get referred to someone. I’ve never been in that situation so not sure how that works.

I have lost faith that my illness is “treatable”. Seems no matter what I do, I end up depressed or just stay depressed. I am okay with that. I’ve known for a while that there is no longer an antidepressant out there for me. I am grateful my mood stabilizer still works. I just hope that it does fuck up my sodium levels and I need to some off it. Then I will be really screwed. In that sense, I still take my meds because they help. I no longer have commanding voices every day and the accompanying paranoia and delusions. I have to take a med for that every day. But therapy is still elusive. I honestly don’t know if it helps. Talking with someone honestly, like writing this blog, has been useful. Sometimes it feels good to talk to my therapist and leave knowing that someone understands, even if he thinks I am crazy. He said that he is “taking my lead”, which I am not sure about but it is a learning curve like anything else. And I will stress again, that if you aren’t comfortable with the person you are talking to, if they make you uncomfortable or just not getting it, find someone else. There are a lot of different therapists out there. A lot of different degrees as well (but all should be licensed by the state you are in, if they aren’t, I wouldn’t see them). It will take some time to know if they fit with you. The average is about 3 or 4 sessions. Any more than that might be a waste of time if there is no connection.