Tag: cauda equina syndrome

shower and a shave

by Midnight Demon, posted in blogging, Chronic pain, chronic physical pain, CRPS, depression, mood disorders

Shower and shave

I need to shave my head and shower today. I am getting very stinky. I should trim my armpit hair. I haven’t done it in a while. It just grows so damn fast, like the hair on my head. I am really congested today with allergies. Today is supposed to be nice out. I am sure I will overdress and be hot. I will probably sweat a lot, too. I got PT today. My mother does, too.

I had a good session with my therapist on Mon. We talked about my suicidality and how I would like things to proceed from now on. We are going to continue working with the chronic pain workbook and I am to do the Crisis Response Plan. It has been hard to do. I haven’t been suicidal so I haven’t done it. I did write it out in my therapy book. I got to put it in my journal. She wants to work with me and I am glad because I really don’t want another therapist.

Baseball spring training is underway. I haven’t watched it because I really don’t watch TV. I don’t know if it has been on the radio or not. They are now doing 9 inning games so it would be worthwhile to see or hear it. They don’t have it on their radio app which sucks. I don’t know if games are going to be on the app this year or not. It was wonderful last year as I could play it anywhere I go and could listen along as I carried my phone with me around the house. I caught every pitch. It was really good.

I finally was able to get my songs on Dropbox off and put it on my phone for Mary Chapin Carpenter’s One Night Lonely album. I can finally listen to the songs from that awesome night. I still can’t believe I fell asleep midway through her singing. Her voice is so soothing to me so I am not surprised. I am so happy she has her acoustic album.

I have been trying to get my mother to use he/him pronouns with me and she is still resisting it. Yesterday my nephew called me a he and then my mother was like she. I feel so invalidated when she does this. Even when I told her I was her son her response was like “whatever”. I hate that she is like this. I will never understand how a parent can reject their child, never. More stuff to talk to in therapy about.

Since I have been eating regularly, I stopped losing weight. I actually gained some weight but I am still under 200 pounds. I still hate my body. I still want the things on my chest to be gone, completely. Eventually I will get a hysterectomy so I can find out if my bladder is cramping or not. Yesterday I had to email my urologist because I have been retaining again. There have been long stretches where I don’t void. The other day was nearly sixteen hours since my last void. I thought I would have to cath. Yesterday voiding was okay, nearly every three hours I was urinating. It still scares me that I might have to cath again one of these days.

I need to empty my recycles. I have a lot of Gatorade bottles in my room. I just have been so lazy to bring them all the way to the first floor where the recycle bin is. I will try and do that today as tomorrow is trash day.

Sunday Blog 07032021

by Midnight Demon, posted in blogging, Chronic pain, chronic physical pain, CRPS, depression, mood disorders

Sunday Blog 07032021

I am sitting in my kitchen while the floor guys work on my stairs and floors. The smell is awful. It is cold outside so I won’t open a window just yet. My shoulder is tingly this morning. I put heat on it and that settled it down some. Now it is back to tingly. I don’t know why it tingles and just in one spot. I wish I brought clothes down so I could take a shower. I won’t be able to go up to my room at least until tonight. Going to be another long day of sitting. I wanted to go to the grocery store today but I got my roller bag in my room. The porch is blocked off so I can’t get the reusable bags. Sucks. I won’t be able to go to the grocery store anyways as I don’t have jeans on. I just have my PJs. I don’t have access to my room because the stairs are still wet. I think the guys are done now. I can’t imagine it taking too long to put down another coat of poly.

I am going to try and write today. I am writing an essay I hope to be 1000 words about being in therapy for thirty years. I just hope I can stay on topic. I wish I had my notebook it would be easier to write. Then I could type it all up. I find that I write better that way than writing off the word document.

I am having a second cup of coffee because I am so tired. Yesterday I had two cups too, though I didn’t finish the second cup. I had to go downstairs for a sweatshirt because I can’t go upstairs to get mine. I am wearing my brother in law’s and it is nice and roomy. I also brought up a scarf as the window is behind me and bothers my neck. It is cold today. I have to open the windows and door to let the smell of the poly go out.

I am listening to Mary Chapin Carpenter’s One Night Lonely album. I was finally able to get it off of dropbox and put the music on my phone. It took several attempts for my stupid MP3 player to recognize it. I love this acoustic album. She always wanted one and I am glad she finally got it with all her great songs. There are 26 songs so it is about two hours and ten minutes or so long. It was a wonderful evening. I fell asleep the first time I heard it because it was so soothing and relaxing. I had to listen to it again. A few days after the concert the songs were available for purchase. I bought them right away. I love her music so much.

My sister made chicken cacciatore for dinner. It was really good. I had some soup before I went downstairs to eat so I am pretty full right now. My mother liked it. It was a good family meal. I feel so tired right now. I want to check on the floor to see if it is tacky or not so I can go upstairs to my room. I think it will be good in a couple of hours so I am trying to be patient. I did check and the floor and stairs aren’t tacky so I can go up them. Thank god. I need my bed. I am so tired from sitting in a chair all day. I got heat on my neck and shoulders right now. My neck pain is starting to act up again. I need to do my meds for the week and then lay down. I need to rest my neck as I have been sitting straight all day.

A Tired Saturday Blog 06032021

by Midnight Demon, posted in blogging, Chronic pain, chronic physical pain, CRPS, depression, mood disorders

A tired Saturday Blog 06032021

I woke up at six with what I thought was my mother screaming out in pain. Turns out it was just a dream. My mother was safely sleeping in her bed when I came down to check on her and use the bathroom. I slept for an hour before I had to collect my stuff because the guys are doing the floor and stairs today. I won’t be in my room all day. It is going to be a long day. I wish I could go to a Starbucks and just sit there for the afternoon. Sucks the pandemic takes so much away from you.

I didn’t get a book. I don’t know what to read. I have so many books I can’t pick one. My right shoulder is tingly today. It worries me when it tingles. The PT says it is just muscle movement because of the severity of the knots. I have to do my exercises today. I forgot my heat wrap in my room so I won’t be able to get it. I will have to use some towels or something to make a heat pack.

I sent my therapist some tips on dealing with a suicidal person. I hope she reads it. It is important stuff. The thing that pisses me off is that she always wants to pass me off to some group when I am suicidal. I feel like she can’t handle me and it is not a good feeling. I feel like I am too much for her. I see her Mon and we will talk about this. I just hope she read one of my blogs that I sent her about the response plan. I think it is important.

I have been craving cool ranch dorito chips and I finally got them. It has been the only chips that I have eaten in a while. I usually don’t buy chips because they usually go stale by the time I finish the bag. I only eat a handful at a time and that is it. I didn’t buy a big back. Just a snack bag so that will be plenty. My sister made egg rolls and they were good. I think I will have tuna for lunch. I haven’t had it in a while. Yesterday I had Filet o Fish for dinner. It was good. I love McD’s fish sandwich. My sister has some rye bread and celery so I will make the tuna downstairs. It will be a lot quieter than up here where the men are sanding my floors. I hope it isn’t going to be a two day project.

Baseball Spring Training has begun. My Sox are doing well but it is so hard watching them because my favorite players aren’t there anymore. I am very heartbroken that JBJ (Jackie Bradley Jr.) got signed with the Brewers in Milwaukie. There are only three players on the field that I know and like 3 pitchers. All the rest of the guys are new. My 3Bs are gone from the outfield. No more “Win, Dance, Repeat” shenanigans. I will miss my boys. I hope they do well where they are now. I am sure they will. They have great talent. A shame the Red Sox was too cheap to keep them.

I don’t know what to say

by Midnight Demon, posted in blogging, Chronic pain, chronic physical pain, CRPS, depression, mood disorders, suicide

I don’t know what to say

Been a hard few days for me with pain and depression. I had therapy Wednesday and it was a disaster. I became suicidal after we went over some negative thoughts and then we both became frustrated. I told her I didn’t want to be in the hosp. She wanted me to join a group of some sort. I called the chronic pain support and they have a long waiting list so I won’t be able to go to that for a while. I got the impression she doesn’t know how to support me when I am suicidal. Yesterday I wrote her a message telling her about the suicide response plan and safety planning by Brown and Stanley. I don’t care which one we use but I think it is important to use one of them. I told her I prefer the suicide response plan because it is what Jobes uses for CAMS. I told her what CAMS was and how I find benefit from it but there are no CAMS trained therapists in Boston.

I got really upset and thought she didn’t want to work with me anymore because she said that she was tired of this cycle we get in when I get suicidal. She wants me to check the facts about this. I was sure she didn’t want to work with me anymore because I was too suicidal. I still feel like I might need another therapist but I know finding one now is going to be impossible because of the pandemic and because of my history.

Last night I had a runny nose and was sneezing my head off. I felt lousy. I still feel like I am coming down with a cold so I am trying to limit my exposure to my mother in case I am sick. I need to shower and shave my head. I got my haircut Wed. I didn’t have it all nice when I was talking to my therapist though. I had rinse out the hairs and it was messy. I didn’t care. I haven’t showered all week. I am trying to get enough energy to do it. I just feel so tired and don’t want to do anything. I really need to go to the grocery store to get more Gatorade. I have just six bottles right now. That is not going to be enough for the month, or even a week.

Yesterday I had PT and my deltoid is sore today. It feels bruised but there is no bruise mark on it. She did a lot of work on my arms yesterday. I got more stretches for my neck. I am glad because my neck has been such a pain. I need to put heat on it. Only thing is my family keeps moving my heat wrap on me so when I am in the kitchen, it isn’t there for me to throw in the microwave. It is the only way I can put heat on. PT also gave me some tennis balls for my back and hamstring. I have to rig something to have it between my shoulder blades. She said that I can use scotch tape but I think the balls will be too heavy for it. Will try it and see. Otherwise I will have to think of something else. Maybe a sock or something.

I got a letter from my pcp yesterday. He is leaving to go to the CDC. His last day is April 1st. This really sucks because I really liked him. He was a good doctor. I am going to miss him. I see him Monday for a follow up. It will be our last. Really sucks.