On edge

This morning, I woke up from a bad dream. It was a culmination of stuff I’ve been reading on social media the past few days. Unfortunately, it involved my friend and her kids and so was that more upsetting. I had to take an Ativan. There was a pt that kept wanting to talk to me but I didn’t feel like talking. He then swore at me. I blew him off. He started swearing at staff so security was called and he was brought to another room. Long as he was away from me that was all I cared about.

I met with the doc. Told him to change the migraine med to a prn order rather than have it as a one time dose. I don’t know if he will as I am leaving tomorrow.

My knees have been bothering me for more than a few weeks now. I asked my pcp’s nurse to change our appt to in person so I can see my pcp about it. I am really scared as knee problems run in the family.

I told my sister I would pick up some burgers for dinner tomorrow night. I’ll also get some coffee pods as I think I have just one left. I’ll also have to get half and half.

I am reading a suicidology book and it is not as interesting as I thought it would be. Not sure I am going to learn anything new other than finding out what is meant by Qual and Quant research. Chapter I am reading now is about Indigenous populations so it is interesting. I might finish reading the chapter today. There is nothing going on today.

In a grumpy mood

I’m in the hospital. I’ve been here since Thursday. The depression and grief were just so overwhelming that I didn’t want to live anymore. So before things progressed to a bad place, I got evaluated. Sleep has been an issue so we are working on that while I am here.

I had a difficult night sleeping. For some reason dreams hurt my head and give me severe headaches. Not fun waking up to them. My foot also flared up (CRPS) around 0530 so I had to take pain meds. Then I was pretty much up and didn’t go back to sleep. My BP and heart rate were up this morning. I’m not surprised. I have been working with a friendly LGBTQ nurse the past few days. She had to give me my T shot today and they ordered it for the glut muscle. She was good. The only thing that hurt was the pinch of the needle.

I’ve had three cups of coffee today, all caffeinated. Has not helped my headache. Hoping tylenol will. I have been using diclofenac gel for my knees and it has helped so much. I haven’t been doing stairs so still not sure if that is a problem for me. At home, stairs would hurt my knees going down. Going up, not so much. I do stairs a lot when home because my room is above the living area.

I hope to be going out today for some fresh air. One of the MHS’s will be taking me. Depending on how well she knows the hospital, I might give some history. I did the last time I went out. It was cool for me to speak about it. When I leave, I want to take some pics of the current construction so I can remember how the Bulfinch is right now. I love that building so much. It was built by my favorite architect, Charles Bulfinch. He has a place in Rockport that I really would love to see. The place is I think 1.5 miles from the commuter rail stop, which is too far for me to walk right now. I might take an Uber if I go this summer.

I went to a webinar yesterday. CAMS care hosted Dr. Thomas Joiner and his theory of Interpersonal Theory of Suicide. It was very interesting. I learned a lot and got my wheels turning. I might write about his theory in a future blog. He is coming out with a new book in Jan/Feb and I can’t wait to read it.

There is another pt here who is trans. I am glad I got to meet them. I hope we can stay friends after the hospital.

I am tired. I hope today goes OK. Also hope this fog I am in dissipates. I am going to try sumatriptan to see if it helps this headache. Could be migraine activity as it has gone on for a few days now. I just feel shitty. I went outside and it is nice out. Hot but a dry heat. Not too humid.

about my hiatus

About my hiatus

I have been in the hospital the past three months. I was not in a state where I could write a blog. I was doped up most of the time and barely knew what was going on around me. I was sick with renal failure, covid, and infection called C diff. I was barely eating so they had place an nasogastric tube down in my stomach for a bit. I don’t know how long this tube was place. I had taken a pic of it sometime in Sept. I missed how the season ended for my Sox. When I came home for a bit, I thought it was the end of Aug but it was the beginning of Oct. I was home for a week or so before going back to the hospital for psych. I spent four weeks in the hospital on the psych unit. I got really good care there. I learned my top surgery was postponed and I was very, very devastated. It was good that I was in the hospital because if I wasn’t, I probably would have ended my life right then. I was so angry and frustrated as I didn’t have answers and had to wait for them. I had no access to my phone so I didn’t have the usual supports I have when I am home. It was extremely frustrating. The staff tried to help me but all they could do was sympathize with me. There was only one LGBTIQQ staff person on the unit and even she couldn’t really understand my predicament.

I have an appointment next week with my pcp to get medically cleared for top surgery. I really hope this conversation goes well. It will be the first time meeting my new pcp as a fully conscious being. The first two times I met her, I was still in the confused, delusional state. All I could do when I met her was blink my eyes and nod yes or no.

I am having difficulty writing in a constant stream of consciousness. It has taken me two days to write three hundred words for this blog. My thoughts are still hard to write with everything that I have been through. It was really difficult in the hospital as I really lost the ability to write. Writing has always been a coping mechanism for me and when I couldn’t think to write, it hurt, literally. I would get these headaches that felt like my brain was being crushed. It literally hurt to think. I got several migraines while in the hospital. I would wake up around 0330-430 every morning with severe migraines. It was terrible. The trauma of everything I went through was very difficult to process. I had become catatonic at one point.

I am still feeling wicked depressed and anxious at times. I am off all pain meds and off my Ativan. It is weird not taking meds around the clock like I once did for years. Now I just take it a few times a day as I am taking my blood pressure med three times a day and take the Latuda at dinner time. It makes me tired and I often find that by 1900 I am sleepy. But that could be because I have been waking up before 0500 most mornings. I find it hard to get back to sleep with these early morning awakenings. I am so much clear headed now than I was in the middle of October. My memory is still not there on what transpired the six weeks I was on the medical floor of the hospital. I just have these weird dreams/delusions that sometimes intrude in my head. One day while in the psych ward, I was flooded with memories and couldn’t make sense of things at all. The anxiety it produced was terrifying. I was convinced I killed my mother and a bunch of weird shit around my house. Taylor Swift music got me through a lot of the anxiety but while in the psych ward, I didn’t have my music to calm me so it was very difficult to cope. Now that I am home and have music again and my laptop, I am coping so much better. I am reunited with my online friends again and it feels so good because I was missed so much. I have missed blogging so much. I regret that I didn’t write before now but it has been hard finding my writing voice again. It has been a real struggle.

In closing, I am going to try and write a blog a day like before, even if it is less than 500 words.

the 330 am blog

The 330 am blog

I’ve been up since 0130 because of pain. My right shoulder hurts and didn’t get better until I got up and started stretching it out a bit. I’ve been in a weird mood since waking up. I feel like I should be suicidal with the amount of pain that I am in but I am not. I don’t know if this is a good sign that I am getting better or what. I think the groups is helping me though I don’t know how because the skills I haven’t learned really. I know what they are but I haven’t worked on them. I have tried the DEAR MAN skill that my therapist wants me to but we had to go over it and then I dissociated afterwards so I don’t remember a thing about what we talked about. I didn’t even know if I had attended the session so I asked her if I did. She said I did. So weird.

I have one more week of groups and then I am done and I don’t think I will go back. It was too stressful. Plus my email kept deleting the emails that the clinicians were sending and I don’t know why that is. I got to make a rule so that it goes to my inbox and nowhere else.

My therapist wants me to send her screenshots of the handouts I am given during groups. I think she wants to make sure I am going and I find this irritating. I feel like she doesn’t trust me. The agreement was that I would text her and Then I would have a response to what I was texting. Thing is the past few days I haven’t had any responses to what I text her about. I feel like this is a one way street again.

I haven’t really participated in group that past few days. I listen but I have been getting bored. Even the group that I thought would be interesting was a flop. I didn’t like it at all. I have been going to the first three groups because those are the most important ones as they are mostly clinical. The first one is just a check in and the other two are either CBT or DBT groups. I find it interesting that they are using both therapies in the program. Both are useful, don’t get me wrong and they do work to their own extent.

I love the therapist that I have in the program. He is so energetic and empathetic and fun to work with. He is a really good guy and I love when he leads groups because he makes them fun instead of boring. He brings this energy that is positive and soothing. I love it. I am going to miss him when I leave. I feel like I should write him an email but I think I will wait as it is the weekend. I am surprised the hospital doesn’t recognize MLK day. It is this Monday and my therapist is off but the program is on. Very weird.

I have put back the weight I lost. I am disappointed in this because I was able to go below 200 and now I am a few pounds over. My struggle with weight is so finicky. It all depends on my appetite and if I eat regularly. Lately I have just been eating one meal a day because I usually full and don’t want to eat anything else for the day. This talking about eating is making me hungry. I think I am going to make scrambled eggs with cheese. I just hope we have the bread.