I have a need for solitude

I have a need for solitude

This line is in another great Mary Chapin Carpenter song called it. I have been listening to a lot of MCC the past few days and it is because I need some music to calm me down and put me in a good mood. She does this as her voice is so soothing to me.

I’ve had a rough day. Voices won tonight, though I made believe they did. I always have a short supply of nortriptyline by my bed and I pretended I “took the bottle.” They think I overdosed but I didn’t. It was the only thing I could think of to shut them up. I am debating texting my therapist this but I am afraid if I do. I am going to increase my dose of Invega to 6mg daily and see how that goes. I hope I don’t get side effects.

My therapist and I talked today about being depressed and suicidal. I told her that there have been times I haven’t been depressed yet been really suicidal and then she pointed out all the times she has known me, I have been depressed and therefore suicidal. I wonder if she thought because I was in a current depressive episode that being suicidal went along with it? Going to ask her next time I see her. She really irks me. She gave me the option, after I told her I was suicidal and hearing voices, to take a month of therapy off. I don’t get it. Sure she was telling me that nothing was forcing me to stay in therapy. She has that way about her. She was being serious when she said this. And it is true. I am not being forced into therapy. It is all voluntary. I don’t know why it bothers me so much though when she says it.

I have been really thirsty since coming home. I don’t know why other than I really haven’t been drinking much the past few days. I have been bad. Then I drink a ton and go to sleep only to wake up at 3 in the morning having to go pee. It sucks. I am falling asleep as I am typing this so I am going to stop here for the night. I will try and write more tomorrow.

news broken and…

News broken and…

I broke the news about my having surgery and my mother burst into tears for god knows what reason. Even after her breakdown she didn’t know why she cried. She obviously doesn’t want me to have surgery. She doesn’t understand and my youngest sister tried to get her to. I don’t know how much of it was because she couldn’t hear or just couldn’t tolerate talking about it. My middle sister was adamant I was being selfish because I didn’t think of my aftercare. She doesn’t want to take care of me so I will have to have home services if I need it. Fuck. So will have to set those up as well as meal plan as I will be on my own and as much as I like Ensure, I really don’t want to be on a liquid diet while I recover. I will have to make sure I order some. I already have a $200 grocery tab going. Not sure I will have $40 for a case through Amazon.

I just googled the surgery and it is approximately four hours or more long. Fricken crazy. I wonder if I will have to shave my back. I got a lot of hair back there. The testosterone has made me so damn hairy. I hope I will be okay with everything. My sister was thinking of all the disasters that could happen. Thanks but I am already imagining walking in the hospital and being wheeled out. I have no idea what will happen if that happens. I might have to go to a rehab hospital for a bit but the house is not handicap equip and unless they give out loans to make the house accessible, I am not sure what would happen. Granted we are adding rooms to the house so I could take one but I would need an elevator to get to the second floor or some kind of lift.

I went to Starbucks today to try and write an essay and it didn’t happen. I got into watching traffic and social media. I should not turn on the WIFI but I did and well, 145 words got written. That was it. On the way home my foot acted up and two hours later I got the worse pain spasms ever. I was screaming they were so fricken painful. I just wanted to die. The voices started to ramp up during this time so in between screams I am hearing orders to kill myself. I couldn’t move so I just sat there being tormented. Once the pain meds kicked in, I was able to go downstairs for dinner. The voices are still murmuring in the background but not as troublesome. God they were so fricken loud. One of them is still trying to break through but I am ignoring him. He is eventually going to get pissed at me and I hope not because that will mean I have to listen to him and that will mean hospitalization. I wish I could get hospitalized without my family knowing where I will be going. Sucks I have to tell my mother where I am all the fricken time. I am 44 I think I can handle shit on my own like I have since I was 15.

Today is the official day I got diagnosed with cauda equina syndrome. You can google it or check out my blogs about it if you want. I am not going to say more about it. Because my psychiatrist and I first met some time this month, I think today is perfect to pick for our anniversary. I just sent her an email with my thoughts on it. Figures I would have a flare on my left ankle/foot on this day just to spook me. Having this kind of pain, numbness, and loss of function is what sent me to the ER, on my psych’s urging. She knew then something was terribly wrong and then when the residents called her, she told me at 4 am that I had this horrible condition. I still am and never will be 100% recovered. This is why I am hoping against hope that my surgery doesn’t have complications and that I can walk out the door instead of being wheeled.

Sunday Palindrome International Day 02022020

Sunday Palindrome International Day 02022020

I am a number nerd. I don’t know how I became one, probably because when I was little I wanted to be a mathematician like the show I was watching that right now I cannot remember. It was a spin off of some detective cop show called Dragnet. The math show was called Mathnet and it was really interesting. I think it played for three seasons and then it was cancelled. I felt bad because I really loved this show. So today’s date, 02022020, is an International Palindrome because both US and Europe write today’s date the same way for the first time in forever.

I haven’t been able to find out if that little rodent called ground hog saw his shadow or not today. They always bring about the movie Ground Hog Day. It is a movie that I have not seen, mostly because I am not a Bill Murray fan. I did sort of like him in Ghostbusters. I tolerated his presence.

Today I was going to try and make room to have access to the alcove in my room. Only problem is that my foot and ankle bones are being crushed and hurt really bad. Some pressure fluctuations are going on and my foot isn’t liking it one bit. Pressure is 29.34 right now. I am going to keep track of it because this bone pain is horrific. I just want to die right now and I am wondering why I cannot act on my thoughts. It’s always a slippery slope. I feel like I should be in the hospital but with the catharizing and upcoming neurosurg appointment, I really can’t be in right now. I was feeling hopeful earlier as I sent off an email to my psychiatrist to see if she is still going to write a letter saying I can have top surgery. I really would like to have these suckers off in the fall of this year.

I was having a weird something going on last night. In this something I was imagining telling my therapist how I feel about her. It came out in a sarcastic tone and then it got serious and we spent time talking about whether or not to continue. I have developed feelings for female therapists for nearly every one of the 14 I have had. Only two were male in this psychotherapy stuff, not counting group therapy. My therapist is around my age (so she says). She is cute and funny and sarcastic as all hell. She also has a caring side but doesn’t show it that often, which annoys me. She doesn’t want me to depend on her and I get that but I really need to know that she cares or this is just not going to work. I understand she wants to work with “this population of people” but that isn’t the same as knowing you give a shit about me. I can’t work with someone who doesn’t care because I feel it is worthless trying to. I’ve had my doubts about her since the first day I met her. I just don’t know if she is the right one or not. Yes, it has been seven months we have been working together. There are qualities about her that I really like but if I don’t feel cared for, then I don’t think it is worth it. I’ve never had a therapist this straightforward before. She doesn’t tolerate my “I don’t knows”. Instead of saying, “yea you do” she will say think about it then answer whatever it is that she asked for. I am very quick to run away from my feelings and she knows this. Trying to stay with my feelings are so damn difficult. I want to feel blank most of the time because it better than feeling turmoil. She challenges me and I challenge her with my quick runaway from feelings. She always brings it back to me when I run away from something. Lately she has been catching on so will stop the maneuvering away and that is the roadblock. I will shut down and it is so hard to go back to that place I was just a few seconds ago. I will also do this while blogging. Feelings will come up and I will take a break by going on the internet for a long while then come back to the word doc and be like where the hell was I. It is then hard to get back into writing the blog because I lost the feeling for too long. I have been trying not to do this, to stay with it and keep focus like my therapist is slowly teaching me. But it is so hard because I always want to run away. I don’t want to feel.

I need a nap but I am not sure my pain will let me. It’s 3pm right now. If I get at least a half hour’s rest, I should be good. I really need to lay down as my back has been hurting as well. Not horribly so but just annoying. Also worries me because I think I am going to have back surgery. I think the pain meds have been blocking my back pain so I don’t know how bad things really are aside from the bladder issues. I am so damn nervous. I might be blogging about this all week so if you are a daily reader, now you know what is going to be written about every day this week or whenever I post my blog.

painful day

Painful day

I woke up around 230 am in pain and my day has pretty much stayed that way. I have been in bed all day but I just cannot get up. I need to go to the pharmacy but I can barely manage the stairs right now so it will have to be tomorrow. I know it is because I did way too much walking Wed and Thurs for my appointments. Cold weather and having a cold just wipes me out. Next week I have four appointments. I am debating keeping my appointment with my therapist for Monday. I don’t see the point in seeing her. My anxiety is still going to be up. I am already starting to panic about Wed. Wed I see my neurosurgeon and we will be discussing what to do with my back and bladder problems. I have no idea how it is going to play out but I just hope he is on time.

Thursday I have two appointments, one with my therapist again and then seeing my pcp. Hoping that the pcp can do something about these bladder pains I have been having. Nothing is fucking wrong on scans. I really don’t want a cystoscope done. It probably is just inflammation from the catheter but I don’t want to live the rest of my life in pain because of this. WTF.

I see uro the following week so that is good. I really like my urologist. I am glad she is my doc. I know she will do what is best for me. I might have to switch catheters even though I really like the ones I have been using. They are just convenient for me. I just looked at some through the company that I am currently using. I requested some samples. I might call my supplier and see if they have samples as well. They gave me a bag but with the catheter I use, I cannot use the bag so it is useless for me. Things I never thought I would be talking about on a Friday night.

My eating has been poor the past two days. Yesterday morning I ordered nuggets from McDonalds and that has been the last thing I have eaten in the past 48 hours. I just had an Ensure as I don’t think I will be going downstairs. I need to go to the grocery store this weekend and get some more of the new cereal I like. It is by Special K and is called honey oat. It has multigrain flakes in it. It is so good. I hope they have a bigger box in the store than they have on the app that I buy my groceries from.